Treating Relapses, To Treat or Not To Treat?


Treating Relapses: To Treat or Not To Treat?

Last week we discussed what relapses look like, including those pesky pseudo-exacerbations. This week we will be covering how to treat a relapse. The opinion about such treatment, and more importantly, when treatment is necessary, seems to have changed since I was first diagnosed.

Should you Treat?

Last week I mentioned that at the root of all relapses is inflammation, so therefore the goal of treatment of relapses is to reduce inflammation. But what relapses require treatment? That’s a good question. It seems to come down to quality of life and level of impairment caused by the relapse. If you are experiencing mild* symptoms (sensory changes, mild fatigue), then treatment might not be necessary. But if you are experiencing severe symptoms (optic neuritis that impairs vision, severe weakness that interferes with walking), that interfere with your daily life and ability to go about your daily activities, then treatment might be warranted.
This is an interesting change. When I was first diagnosed, and going through my relapses years ago, it seemed like everything was treated, nothing was left to “take it’s course”, like it is today. If this mentality was around back then, or adopted by my doctor, I may not have treated several of my relapses like I did. 

Available Treatments

Once you’ve determined this is a severe relapse, and you do need treatment, there are several options available.
  • Steroid medications. Solu-Medrol (methylprednisolone) is the old standby. This is a 3 to 5 day course of IV steroids usually given in a hospital or infusion center. This medication is so effective because it works to relieve inflammation and it is able to close the blood brain barrier. There are several other types of corticosteroids used during an MS relapse including dexamethazone, prednisone, betamethasone and prednisolone. I’ve had Solu-Medrol three different times and my reaction to it was always the same, it totally wiped me out. I never got the crazy energy, or Hulk like emotions that some people experience. I got quite the opposite, which some people do feel, although not as common.
  • Acthar Gel. Acthar Gel is a treatment in injectable form that is a purified preparation of adrenocorticotropic hormone (ACTH). ACTH stimulates the adrenal cortex gland to secrete cortisol, corticosterone and aldosterone. With Acthar Gel, ACTH is delivered in a extended release formula. It is given once a day for 2 to 3 weeks and is injected into the muscle or under the skin. It is then absorbed slowly into the bloodstream. This works a little differently then steroid medication by helping the body to produce it’s on steroid hormones that reduce inflammation. This is an alternative option for people that have trouble tolerating corticosteroid medication and their side effects.
  • Plasmapheresis. In layman’s terms, plasma exchange. This is a treatment option for people whose relapse and symptoms do not respond to steroid treatment. It is a difficult process that includes several steps. 1. Blood is taken from the person. 2. Plasma is removed from the blood and replaced. 3. Blood is transfused back into the person. This is been a successful treatment for other autoimmune disease is because it removes antibodies from the blood, but is only considered as a last resort for treatment of MS relapse is at this time. It is also not approved by the FDA as a treatment specifically for an MS relapse.
  • Intervaneous Immunoglobulin (IVIG). This is another treatment that is only used in situations where other treatments have failed. This treatment uses human immunoglobulin, an antibody from healthy individuals, as an injection to help boost the immune response. This is also not an FDA approved treatment for MS relapses.

Long Term Effects

The jury seems to be still out on whether or not treating a relapse will 1, improve the relapse symptoms faster and 2, slow overall progression of the disease. In theory, you would think that treating a relapse with inflammation blasting steroids would improve both the length of the relapse and your overall disease progression. But it might not work like that (how unfortunate). So it’s up to us as patients to decide how we want to proceed when a relapse strikes.
How have you handled your relapses? Have you treated all of them, or have you left some to resolve on their own? Let me know!
*A quick note about mild symptoms. I really hate the term mild symptoms. In my opinion, and experience, even the “mild” symptoms they speak of are quick obnoxious and can interfere with quality of life. When my leg is burning or numb, it doesn’t feel mild, even though doctors consider it mild! 
 
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I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness. 

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc. 

But where did this get US? The women behind the behaviors? 
Sick, anxious and depressed- that’s where. 

Healing MS or any autoimmune disease can’t happen until you put yourself first. 

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others. 

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself. 

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and 
discarded for voicing her needs. 

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent? 

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors. 

This is the “stress management” you’ve been looking for and what will change your life. 

My program Embodied Resilience is your road map to how. 

Drop a 🌀🌀 in the comments and I’ll send you details

If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.

But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.

Healing MS or any autoimmune disease can’t happen until you put yourself first.

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others.

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.

This is the “stress management” you’ve been looking for and what will change your life.

My program Embodied Resilience is your road map to how.

Drop a 🌀🌀 in the comments and I’ll send you details
...

45 8
It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life. 

And it’s ok if that process takes longer than you “think it should” or want it too. 

You know what *won’t* help you when this happens? 
Being mean and judgemental to yourself. 

You’re not lazy and nothing is wrong with you, so stop saying that to yourself. 

You know what *will* help you when this happens?
Taking action. 
Action is the antidote to the fear and overwhelm you’re feeling. 

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable. 

Sustainable means “able to be maintained or held”- which is the goal for habits right? 

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again. 
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡

It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.

And it’s ok if that process takes longer than you “think it should” or want it too.

You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.

You’re not lazy and nothing is wrong with you, so stop saying that to yourself.

You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.

Sustainable means “able to be maintained or held”- which is the goal for habits right?

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
...

11 0
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression. 

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status 
- Education 
- Health care access
- Your community 
- Economic stability 

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters. 

What are your thoughts on this? I know it’s a highly charged topic for some!

One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.

What are your thoughts on this? I know it’s a highly charged topic for some!
...

33 5
Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡

Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡
...

20 2
The food we eat can have a powerful impact on our MS symptoms and how we feel.

It’s not a magic bullet- because nothing is.

But, there is incredible potential for healing and improvement.

If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok. 

Focus on getting some of these foods on your next trip to the store:

🥗Brightly Colored Fruits & Veggies 
🥬Deep Leafy Greens 
🍤Seafood & Shellfish 
🥜Healthy Fats
🥩Organ Meat

Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.

Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas: 
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips

It doesn’t have to be hard or complicated.

There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.

Each thing you’re doing matters.

It may seem like it’s not worth it sometimes, but I’m here to tell you it is.

Keep going!
🧡🧡

The food we eat can have a powerful impact on our MS symptoms and how we feel.

It’s not a magic bullet- because nothing is.

But, there is incredible potential for healing and improvement.

If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.

Focus on getting some of these foods on your next trip to the store:

🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat

Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.

Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips

It doesn’t have to be hard or complicated.

There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.

Each thing you’re doing matters.

It may seem like it’s not worth it sometimes, but I’m here to tell you it is.

Keep going!
🧡🧡
...

18 6
In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.

In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
...

61 9
This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡

This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
...

22 4
Comparison is the thief of joy.

Regardless of what you see others doing,
you’re right where you should be.

❤️🧡❤️

Comparison is the thief of joy.

Regardless of what you see others doing,
you’re right where you should be.

❤️🧡❤️
...

25 10
This took me completely by surprise, cause I usually roast myself after a simple mistake 🙈

But, I just didn’t? 🤷🏻‍♀️

Working on self improvement is weird.
Like I’m not even consciously working on how I talk to myself at the moment. 

Have I in the past? Sure. And it’s something I try to stay conscious of, but def have my moments where I fall into old patterns.

But this moment gave me hope.

What moments in your journey have given you hope lately?

This took me completely by surprise, cause I usually roast myself after a simple mistake 🙈

But, I just didn’t? 🤷🏻‍♀️

Working on self improvement is weird.
Like I’m not even consciously working on how I talk to myself at the moment.

Have I in the past? Sure. And it’s something I try to stay conscious of, but def have my moments where I fall into old patterns.

But this moment gave me hope.

What moments in your journey have given you hope lately?
...

55 2
Thank you for supporting my business this past year. 

Because in reality, you’re supporting me.

So thank you.
Scott thanks you too!

Thank you for supporting my business this past year.

Because in reality, you’re supporting me.

So thank you.
Scott thanks you too!
...

38 7
👉🏼Feeling stuck with your MS symptoms?
👉🏼Feeling like your body betrayed you and is working against you?
👉🏼Are you worried you’re stuck like this and will never get better?

I get it. At one point I did too.

Years ago I was experiencing “Aggressive MS” and I thought I’d never function the same.

I thought my days of moving how I wanted, or doing anything on a whim were over.

I couldn’t walk well, couldn’t feel my body correctly and I was SCARED.

But now?
I’m confident in the ways I’m helping myself.
I no longer have aggressive MS.
I can move how I want, when I want.

Because of the changes I’ve made over the years.

No, it’s not easy, but that’s where I come in!!

I’ve dedicated my life to helping those with MS realize that feeling better is possible and helping them get there.

My 2 courses and my membership are on sale this weekend for Black Friday,

want to start your own success story??

Comment SUCCESS below and I’ll send you the link!!

👉🏼Feeling stuck with your MS symptoms?
👉🏼Feeling like your body betrayed you and is working against you?
👉🏼Are you worried you’re stuck like this and will never get better?

I get it. At one point I did too.

Years ago I was experiencing “Aggressive MS” and I thought I’d never function the same.

I thought my days of moving how I wanted, or doing anything on a whim were over.

I couldn’t walk well, couldn’t feel my body correctly and I was SCARED.

But now?
I’m confident in the ways I’m helping myself.
I no longer have aggressive MS.
I can move how I want, when I want.

Because of the changes I’ve made over the years.

No, it’s not easy, but that’s where I come in!!

I’ve dedicated my life to helping those with MS realize that feeling better is possible and helping them get there.

My 2 courses and my membership are on sale this weekend for Black Friday,

want to start your own success story??

Comment SUCCESS below and I’ll send you the link!!
...

16 0
Grab your path to healing!!

These are the lowest prices for my courses like ever, and they won’t be back. (And they’ll prob be going up in the new year- planning some updates!!)

Comment HEALING below and I’ll send you a link, or check out my stories!!

Grab your path to healing!!

These are the lowest prices for my courses like ever, and they won’t be back. (And they’ll prob be going up in the new year- planning some updates!!)

Comment HEALING below and I’ll send you a link, or check out my stories!!
...

3 2

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