Emotional Changes


That word. Those words. Multiple Sclerosis. Diagnosis. I can’t understand what is happening, or why it’s happening. “But I’m so young. But it’s not fair”. I guess it’s too late for those now. “What will I do? Will I be able to walk next year?” That is what floods my mind, as I walk down the hall, from the office after I rose slowly from the chair.
 
Sitting in the hospital, getting steroids again, I can’t help but think about how annoyed I am. I had a life, I had things to do, I don’t have time for this. I guess it’s too late for that now.
 
I haven’t said very much lately, I guess I haven’t had very much to say. I haven’t seen very many people lately, I guess there aren’t very many people to see. I haven’t smiled that often recently, I guess I don’t have anything to smile about. I guess it’s too late for all of that now.

Emotional Changes

Not only does Multiple Sclerosis have an affect physically, it takes a toll emotionally as well. As soon as you’re diagnosed or the idea of being diagnosed is brought up in discussions with doctors, there are very real and powerful feelings that are usually brought to the surface. Also, throughout the course of the disease there are many emotional changes that can occur due to damage in the central nervous system.

New Emotions

Everyone will react to their diagnosis, or thought of diagnosis, differently. Some common feelings that individuals might feel upon diagnosis are shock, denial, confusion, anger, anxiety, or relief. Being in a state of shock is a common and understandable first reaction to being diagnosed with MS. It is also common for people to be in denial and to try to avoid the feelings associated with being diagnosed. It’s OK to have these feelings. It’s normal to have these feelings.
Confusion and anger seem to go hand-in-hand, they both come from a place of not knowing. Not knowing why this had to happen to you. Unfortunately, no one is really going to ever figure that out. Anxiety comes when you start thinking about what’s next, what’s in store for your future. And to feel relief when diagnosed? I know some that have. Often after years of experiencing symptoms and not being able to put a name to it, finally it has a name, and now with the name a course of treatment.

Different Emotions

But what about the emotional changes that happen after diagnosis? Once we have reconciled with ourselves that this is our ‘new normal’, what can happen then? Unfortunately, as it is with many symptoms, emotional changes are very common. These changes can include anxiety, mood swings, stress, depression and pseudo-bulbar affect.
  •      Anxiety: anxiety is a very common emotional symptom. Feelings of anxiety can stem from uncertainty with the future, to thinking about medical expenses, to thinking about how your other symptoms impact your current life.
  •      Mood swings: this is the most common emotional side effects that can happen with MS. Mood swings can present as moodiness, crankiness, anger or irritability. They can happen at anytime and can come out of nowhere.
  •      Stress: feeling stressed out is extremely common when having MS. Considering every day can bring a new challenge, having varying degrees of stress at certain times is quite common. Chronic stress can we can the immune system and increase your risk for other illnesses. Research has not been conclusive regarding the correlation between stress and relapses but stress certainly doesn’t help anything. Finding stress reduction techniques that help for you, that you can do daily, can be incredibly important in how you manage MS.
  •      Depression: major depression is also very common in people with MS. Surveys and research have showed that more than 50% of people with MS will struggle with major depression at one point in their life time. Since depression can put individuals at risk for doing harm to themselves, knowing the signs of major depression is important.
  •      Pseudo-bulbar affect: this is a rare type of emotional response but can still happen in individuals with MS. This occurs when individuals experience periods of uncontrollable crying or laughter, without a stimulus to elicit such a reaction. This reaction occurs due to damage in the pre-frontal cortex of the brain and is present for every 1 out of 10 people with MS.
The emotions that an individual is experiencing will dictate the treatment needed. Usually lifestyle modifications, therapy or medication are the most helpful interventions.
I have certainly struggled with my fair share of stressors and negative feelings stemming from MS. When I was first diagnosed I struggled considerably with anger. I was frustrated and mad that this happened to me. Anything that reminded me of having MS would put me in a pretty negative mood. It took me many years to come to terms with my diagnosis, and creating LissMS was one of the things that help me to shift my perspective on my disease.
Creating positive things from a negative one is a powerful way to shift our perspective and outlook. What is something that you can do that will shift your thought process about your diagnosis?

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::

When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.

It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.

It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.

And even then, my neuros answer was 🤷🏻‍♂️.

If you also haven’t considered it, let me be the first to tell you:

✨IT’S ABSOLUTELY POSSIBLE✨ 
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.

What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.

I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.

I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!

:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::

When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.

It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.

It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.

And even then, my neuros answer was 🤷🏻‍♂️.

If you also haven’t considered it, let me be the first to tell you:

✨IT’S ABSOLUTELY POSSIBLE✨ 
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.

What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.

I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.

I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
...

26 20
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!

Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!

Who knows, this may bomb, but the idea is fun!!

Ask away!

I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!

Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!

Who knows, this may bomb, but the idea is fun!!

Ask away!
...

40 41
Last week I wanted 0 to do with working out. 

I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set. 

However.. I have some goals and abilities I want to maintain.

Strength training is one way of the consistent ways I help myself to feel good despite living with MS. 

So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went. 

I gave myself permission to go lighter and slower, which helped me be successful in doing it at all. 

I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for. 

I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving. 

✨Following through with my daily habits is a form of self care.✨

If you’re done with thinking: 
“I know what to do, I just can’t seem to do it” 
DM me ACTION and we’ll chat

Last week I wanted 0 to do with working out.

I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.

However.. I have some goals and abilities I want to maintain.

Strength training is one way of the consistent ways I help myself to feel good despite living with MS.

So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.

I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.

I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.

I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.

✨Following through with my daily habits is a form of self care.✨

If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
...

17 4
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband 
Or walk 8 miles around NYC with my sister 
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day 

This is possible because: 
✨Yes, the medication I’m on helps for sure 

But truthfully my life has improved so much because of:

✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)

✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)

✨This is a mindset that doesn’t require perfection✨

This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)

Which THEN gives me the motivation and desire to keep doing what I’m doing.

✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going. 

It’s not quick or sexy, its actually rather boring.
But boring is actually way better!! 

If you want a life where you:
Feel good in your body, 
Have energy to spend on your friends and family, 
Don’t think about what the MS symptom of the day will be..

I help you create that life for yourself in my signature program, Holistically Healing MS. 

Today is the last day it’s on FLASH SALE… 
Comment MOUNTAIN below and I’ll send you the details!!

Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day

This is possible because:
✨Yes, the medication I’m on helps for sure

But truthfully my life has improved so much because of:

✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)

✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)

✨This is a mindset that doesn’t require perfection✨

This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)

Which THEN gives me the motivation and desire to keep doing what I’m doing.

✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.

It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!

If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..

I help you create that life for yourself in my signature program, Holistically Healing MS.

Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
...

39 2
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness. 

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc. 

But where did this get US? The women behind the behaviors? 
Sick, anxious and depressed- that’s where. 

Healing MS or any autoimmune disease can’t happen until you put yourself first. 

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others. 

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself. 

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and 
discarded for voicing her needs. 

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent? 

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors. 

This is the “stress management” you’ve been looking for and what will change your life. 

My program Embodied Resilience is your road map to how. 

Drop a 🌀🌀 in the comments and I’ll send you details

If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.

But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.

Healing MS or any autoimmune disease can’t happen until you put yourself first.

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others.

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.

This is the “stress management” you’ve been looking for and what will change your life.

My program Embodied Resilience is your road map to how.

Drop a 🌀🌀 in the comments and I’ll send you details
...

52 10
It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life. 

And it’s ok if that process takes longer than you “think it should” or want it too. 

You know what *won’t* help you when this happens? 
Being mean and judgemental to yourself. 

You’re not lazy and nothing is wrong with you, so stop saying that to yourself. 

You know what *will* help you when this happens?
Taking action. 
Action is the antidote to the fear and overwhelm you’re feeling. 

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable. 

Sustainable means “able to be maintained or held”- which is the goal for habits right? 

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again. 
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡

It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.

And it’s ok if that process takes longer than you “think it should” or want it too.

You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.

You’re not lazy and nothing is wrong with you, so stop saying that to yourself.

You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.

Sustainable means “able to be maintained or held”- which is the goal for habits right?

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
...

12 0
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression. 

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status 
- Education 
- Health care access
- Your community 
- Economic stability 

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters. 

What are your thoughts on this? I know it’s a highly charged topic for some!

One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.

What are your thoughts on this? I know it’s a highly charged topic for some!
...

35 5
Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡

Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡
...

21 2
The food we eat can have a powerful impact on our MS symptoms and how we feel.

It’s not a magic bullet- because nothing is.

But, there is incredible potential for healing and improvement.

If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok. 

Focus on getting some of these foods on your next trip to the store:

🥗Brightly Colored Fruits & Veggies 
🥬Deep Leafy Greens 
🍤Seafood & Shellfish 
🥜Healthy Fats
🥩Organ Meat

Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.

Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas: 
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips

It doesn’t have to be hard or complicated.

There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.

Each thing you’re doing matters.

It may seem like it’s not worth it sometimes, but I’m here to tell you it is.

Keep going!
🧡🧡

The food we eat can have a powerful impact on our MS symptoms and how we feel.

It’s not a magic bullet- because nothing is.

But, there is incredible potential for healing and improvement.

If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.

Focus on getting some of these foods on your next trip to the store:

🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat

Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.

Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips

It doesn’t have to be hard or complicated.

There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.

Each thing you’re doing matters.

It may seem like it’s not worth it sometimes, but I’m here to tell you it is.

Keep going!
🧡🧡
...

19 6
In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.

In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
...

62 9
This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡

This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
...

22 4

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