I’ve heard too many times lately about doctors not listening, explaining their reasonings for actions or acting in ways that are intimidating. Hearing stories like this makes me so upset and sad, for many reasons. One of the biggest is that situations and relationships like this, can lead to you not getting the proper care that you need and deserve. Which isn’t cool in my book.
One of the best ways to prevent negative doctor situations and interactions is to create a partnership right from the beginning. Not only will this set the tone for your doctor-patient relationship, it will express to your doctor that you are an active participant in your medical treatment, and should be treated as part of the team.
There are many doctor rating sites out there these days. When looking for a new doc, take some time, get a list of names from your insurance company and see if they have any reviews. This will give you a good indication of how they practice, how organized they are and how they interact with patients. Sometimes it will take meeting with a doctor and asking them questions like “do you welcome suggestions from your patients” or “how do you handle communication with your patients”. Answers to these questions will be very informational about how they practice.
A doctor who supports you, will welcome your suggestions and ask for them. A doctor that gets frustrated or impatient with your suggestions, isn’t open to hearing them at all.
During the first appointment, communicate clearly that you are an active participant in your own health care. Make sure they are aware that you wish to have an active role in decision making and understand what is going on in treatment. Communicate how much, or how little, you want to know about any new diagnoses, and if you want to be involved in the diagnostic process. Sometimes not having a diagnosis can be scarier than hearing what your doctor is thinking. Make sure they know you’re ok with hearing their thought process and how much, if that is something you want.
Come to each appointment as prepared as possible. Think ahead of time if you have any questions, have experienced new symptoms or need any new medications or refills. The more direct and concise you can be about what’s going on, the better your doc will understand you. Similar situation applies for when you’re recounting your story and past history. There is so much in our stories, it’s easy for us to get off track sometimes. But the more you can be clear and direct about what happened, the easier it will be for your doc.
When a new treatment is offered or a new test suggested, make sure you know why you are getting that recommendation. Asking clarifying questions can be helpful. For example, if you don’t understand why a test is suggested, “I don’t understand why you want this test, can you explain it again?”. This approach can be used with any other part of your treatment as well. This also applies to any language you may not understand. Often when docs are talking with us, they use medical jargon that may be difficult to understand. Asking the same clarifying question can be helpful in this situation as well.
Being your own biggest advocate is the best step you can make in your health journey. This means speaking up when you feel the need to or saying if you agree or disagree with the trajectory of your treatment. Speaking up to a doc (or anyone) can feel uncomfortable sometimes. But having one tough conversation can save a lot of hassle and potentially more uncomfortable conversations down the road.
Another part of being your own advocate is being on top of your health information, like insurance information, billing and records. Keeping your own file of information can be really helpful as well.
Creating these partnerships with your doctor at the start can be beneficial, for both you and your doctor. The more satisfied you are with your doctor and healthcare team, the easier your autoimmune journey will be.
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:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
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