The pain had been coming off and on for days, but this day in particular was different. On this day it started a little stronger and earlier than normal. On this day, the pain was incredible and more intense. On this day, the pain was unbearable as it flowed around my body. It felt like waves rolling up and down my arms, leaving me totally unable and unwilling to move. I couldn’t concentrate on my work, I couldn’t make sense of any thoughts in my mind. I walked from my office up and down the hallway, trying to get the pain out of my body. Nothing made it go away.
Pain in Multiple Sclerosis is real. At one point in time, “medical professionals” thought that pain didn’t impact people with MS. That couldn’t be more wrong. It is estimated that 30-50% of individuals with MS will experience pain at some point during the course of their illness. However, I believe the rate of pain to be much higher than just 50%, I think it can be as high as 80%.
Pain is classified as either primary or secondary pain. Primary pain is caused by disease progression and demyelinization. Primary pain is usually the intense feelings of burning, shooting or gnawing pain. Secondary pain is usually musculoskeletal pain either caused by poor balance and posture, spasticity, unbalanced use of muscles or joints because of weakness etc. Pain in MS can also be classified as acute or chronic pain.
There are many different types of pain in MS. Often times pain and sensory symptoms can go hand-in-hand (as I mentioned last week) and sensory symptoms can sometimes increase and turn painful.
Acute pain:
Chronic pain:
Emotional stress
One of the most under appreciated aspects of pain in MS is the emotional toll it takes. Being in constant pain can hurt physically, but it can also hurt emotionally. Individuals who are in pain are at risk of depression, are more likely to isolate and have difficulty coping.
I’ve been in pain in numerous ways with MS. I’ve had Lhermitte’s sign (technically my first symptom), burning pain in my legs, severe pain in my arms and I believe I have had Trigeminal Neuralgia several times recently. I think pain has been one of my most prominent symptoms, unfortunately. I have been on Neurontin and am currently on Cymbalta to manage my pain. AIP has also helped my pain levels immensely as well.
Getting creative with treatments can be helpful when managing pain. Regular exercise and stretching can be helpful when managing musculoskeletal pain, also making sure to maintain a balance of sodium and potassium to deter cramps. Alternative therapies can be helpful as well, acupuncture, cognitive-behavioral therapy, biofeedback, relaxation training and hypnosis can be useful.
I found myself in the conference room, staring out the window when my best friend noticed I was there as she walked by. I didn’t realize at first I had been silently crying, but once she inquired about what was wrong, the flood gates opened.
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:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
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