Black and White. Saturated and void. Over abundance and lacking. Two very opposite words, two very opposite associations made with those words. Usually my MS symptoms would be characterized by ‘white’; void or lacking. There is a numbness that is usually present in various parts of my body at any given time but generally my back and stomach are consistently numb. At times, my whole body can be numb. Along with the numbness usually comes a really odd sensitivity sensation as well. I remember several months ago, at the height of a particularly uncomfortable afternoon, I actually said out loud to Le Fiance, ‘I’d rather feel anything than nothing. I’d rather feel pain than nothing.’ Be careful what you wish for.
Something viscous has been happening in my body. Now my hands have hurt off and on since I was diagnosed, so that pain and ache is nothing new to me. But when it began to increase in late May, I noticed. There were a few times, usually at night, where pain would increase to such an intense level. It would feel like it was running through my body from joint to joint. But as quickly as it came, it would be gone. This happened several times, each time increasing in severity and length. Did I think much of it? not really. Did it confuse the hell out of me? Sure. Did I do anything about it? of course not. Just a little over two weeks ago, the pain dramatically increased. And quickly. I was ok in the morning, but as the day went on, the pain grew, until around 2pm I could barely sit still. My entire body was burning and nothing gave it relief. It eventually died down by the evening, but by then I was even more exhausted than normal. This pattern lasted for several days, until I didn’t recover by the evening. I stayed in pain throughout the night and into the next morning. I only lasted a few days before calling the doctor (really quick by my standards). What I thought was going to be labeled a MS flare, wasn’t. My neurologist said ‘doesn’t sound like MS. MS usually doesn’t cause joint pain like that. Possibly more rheumatoid issues’. UGH. Even though he is probably correct about the joint pain being rheumatoid based, it still is so invalidating when I hear, ‘nope, nothing here’. Off I went to my rheumatologist. Off I went for blood work. Off I’ll go tomorrow for results.
I’m not a fan of pain, clearly, but usually I’m pretty adept at controlling it. I’ve got a good handle on getting my mind to go somewhere else when I need it to, I think that’s where I was going with that statement I made a few months ago. I thought if I felt pain, I could control it. But this is different. This is all encompassing, engulfing. It swallows you whole. It feels like your entire body is about to crack and break, or get burned alive. I’ve experienced a great deal of pain throughout my life, both physical and emotional. But nothing that is both at the same time. This is a physical feeling, that also manifests itself in emotions. I cried at the drop of a hat. I couldn’t be touched but all I wanted was a hug. The exhaustion and frustration this brought are too great for words. I thought I was doomed.
I have started to feel better, partly due to another stupid medication Cymbalta, partly time? The pattern of pain began again yesterday however, ok until the afternoon, then woosh! It receded slightly, but I am still buzzing.
Something is off, this invisible monster is still dancing around my body in it’s costume of black and white.
follow along on Instagram:
First, comment SLAP and I’ll send you my morning exercise that is great for waking you up and helping you feel better in your body.
Second.. The actually doing something day after day after day is the hardest part!
Most people think consistency means daily- but that’s not true! Don’t fall into that perfectionist trap.
Set an alarm on your phone a few times a day.
When the alarm goes off- don’t turn it off and ignore it- do the thing!
And you’re done!
How do you help yourself remember to be consistent?
#lissms #slapittomapit #multiplesclerosis #thisisms
First, comment SLAP and I’ll send you my morning exercise that is great for waking you up and helping you feel better in your body.
Second.. The actually doing something day after day after day is the hardest part!
Most people think consistency means daily- but that’s not true! Don’t fall into that perfectionist trap.
Set an alarm on your phone a few times a day.
When the alarm goes off- don’t turn it off and ignore it- do the thing!
And you’re done!
How do you help yourself remember to be consistent?
#lissms #slapittomapit #multiplesclerosis #thisisms
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
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