Oral Medications


In terms of healthcare and medicine, oral medications for MS are still considered to be in their infancy. Coming onto the market just five years ago, oral medications for MS were saviors for many. They provided relief from the injections I talked about last week and they provided hope for research of the future. When I was first diagnosed, oral treatments seemed like they were still just a thought, a figment of medical imagination. But a few years later they hit the market, to the cheers and sighs of relief of many patients.

The first on the scene was Gilenya in 2010. Gilenya is believed to work by preventing certain types of white blood cells from crossing the blood-brain barrier. By doing so, it is believed that this reduces inflammation and damage to nerve cells. Gilenya seemed to be an answer to many MSers prayers, no more shots! But soon after many began taking it, the reports of side effects came out. This is not unusual, as with any drug there are often side effects. But with such a high profile drug, the side effects were high profile as well. One of the main side effects reported was heart issues within the first 24 hours of taking the first dose. And sadly in 2011 an individual experienced the worst side effect possible when they passed away within 24 hours of taking their first dose. This led to regulation changes including having an EEG prior to starting the medication and being monitored for 6 hours in the hospital after receiving a first dosage. Gilenya has also been known to cause vision, breathing or liver problems in some individuals which has prompted some groups to urge the FDA to use more restrictions on the medication. There’s always two sides to every coin though, and some people report wonderful relief from their symptoms and are able to do things they haven’t done in years.
Next to emerge was Aubagio in 2012. Aubagio is believed to work by inhibiting the function of specific immune cells that are believed to be present in MS. Patients were happy to have another oral option besides Gilenya, and it proved research was still marching forward. When taking Aubagio, one of the requirements is to have liver enzymes checked regularly as Aubagio could damage the liver. There are also other side effects as well; flushing, hair loss or hair thinning among others.
I was on Aubagio for about a year after Copaxone. I experienced major hair loss (at least I thought it was major) and I had a relapse while taking it as well. Clearly my body was telling me it was time to switch!
The last oral medication to make its way into the world was Tecfidera in 2013. Tecfidera was formally known as BG-12, it was formulated specifically for people with MS and has been used in Germany at higher doses to treat acute flare ups of psoriasis for years. It is thought to inhibit immune cells and may have specific antioxidant properties that might protect against damage in the brain and spinal cord. The main side effect reported by many individuals when taking Tecfidera is flushing. In 2014 an individual sadly passed away from PML, which prompted more stringent warning labels and JC Virus testing for patients taking Tecfidera.
As I mentioned, the only one of these medications I was on (so far) was Aubagio. I experienced what I would consider extreme hair loss (having to clean up the shower and floor every day) and a major relapse while taking it. As for the other possible side effects, I didn’t notice anything else. I loved the idea of being able to take an oral medication for MS instead of an injection, but my body had different plans for me. If I need to transition off of Tysabri in the future, I will definitely look to one of the other oral options before anything else.
Like all medications, these come with plenty of side effects. What is important to remember is to always weigh the risk versus benefit. What are tolerable side effects to you? To put it plainly, if the medication is working for you, what are you willing to put up with in order to get that benefit? If your medication makes you feel hot and makes your skin look like a tomato for an hour (flushing), but you’ve been relapse free for a year, which is more important? Or you’ve tested positive for the JC virus, what level of risk is ok with you? Those are definitely tough questions to answer, but with a little honesty and getting real with yourself, it can be done.
Husband’s 2 Cents
The one oral medication she tried, Aubagio, didn’t work. Her hair fell out and she had a relapse while taking it, which included ‘not subtle’ lesions in her brain. It may be an awesome thing for some people, but unfortunately not for her. I personally never noticed any difference in her hair, but I know she did. It was frustrating to watch her be frustrated.
If you like what you’re reading and want to stay connected, join the LissMS Community here!

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24. 
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst. 

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do. 

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids. 

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list 

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity

But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
...

10 2
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.. 

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in 

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport

I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
...

10 3
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.

If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.

There’s a few things I have found helpful for managing the heat: 

BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.

CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in. 

ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must! 

HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too! 

But most of all, make sure to advocate for yourself and your comfort. 

You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.

What are your top ways to stay cool?? Tell us below! 

PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.

Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!

#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis

As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.

If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.

There’s a few things I have found helpful for managing the heat:

BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.

CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.

ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!

HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!

But most of all, make sure to advocate for yourself and your comfort.

You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.

What are your top ways to stay cool?? Tell us below!

PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.

Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!

#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
...

15 8
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs 

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport

What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
...

25 2
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS. 
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis

First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
...

10 0
5 Habits to Help MS Symptoms 

In no particular order:
• Food/ our diet
• Movement 
• Breathing 
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!

5 Habits to Help MS Symptoms

In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!
...

11 6
5 Underrated Supplements to help MS symptoms 

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?

5 Underrated Supplements to help MS symptoms

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?
...

10 0
5 things to keep in mind about nutrition and MS

1. Addition before subtraction 
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!

5 things to keep in mind about nutrition and MS

1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
...

12 1
Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style.. 
But unable to say no when asked to do anything.. 

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth

Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
...

22 2
Stress & MS!!

• How our nervous system should function 
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response

Stress & MS!!

• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
...

13 0
First, comment SAFE below and I’ll send you details on my course Embodied Resilience- 
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse. 

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t. 
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so. 

If you don’t feel safe in your body, meditation won’t “work”. 

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead: 
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud. 
- How did that feel to your mind and body? 

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience. 

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse. 

We’re still in pre-sale, so to get the best price grab your spot now!! 

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior

First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse.

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.

If you don’t feel safe in your body, meditation won’t “work”.

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.

We’re still in pre-sale, so to get the best price grab your spot now!!

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
...

4 2

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