Oral Medications


In terms of healthcare and medicine, oral medications for MS are still considered to be in their infancy. Coming onto the market just five years ago, oral medications for MS were saviors for many. They provided relief from the injections I talked about last week and they provided hope for research of the future. When I was first diagnosed, oral treatments seemed like they were still just a thought, a figment of medical imagination. But a few years later they hit the market, to the cheers and sighs of relief of many patients.

The first on the scene was Gilenya in 2010. Gilenya is believed to work by preventing certain types of white blood cells from crossing the blood-brain barrier. By doing so, it is believed that this reduces inflammation and damage to nerve cells. Gilenya seemed to be an answer to many MSers prayers, no more shots! But soon after many began taking it, the reports of side effects came out. This is not unusual, as with any drug there are often side effects. But with such a high profile drug, the side effects were high profile as well. One of the main side effects reported was heart issues within the first 24 hours of taking the first dose. And sadly in 2011 an individual experienced the worst side effect possible when they passed away within 24 hours of taking their first dose. This led to regulation changes including having an EEG prior to starting the medication and being monitored for 6 hours in the hospital after receiving a first dosage. Gilenya has also been known to cause vision, breathing or liver problems in some individuals which has prompted some groups to urge the FDA to use more restrictions on the medication. There’s always two sides to every coin though, and some people report wonderful relief from their symptoms and are able to do things they haven’t done in years.
Next to emerge was Aubagio in 2012. Aubagio is believed to work by inhibiting the function of specific immune cells that are believed to be present in MS. Patients were happy to have another oral option besides Gilenya, and it proved research was still marching forward. When taking Aubagio, one of the requirements is to have liver enzymes checked regularly as Aubagio could damage the liver. There are also other side effects as well; flushing, hair loss or hair thinning among others.
I was on Aubagio for about a year after Copaxone. I experienced major hair loss (at least I thought it was major) and I had a relapse while taking it as well. Clearly my body was telling me it was time to switch!
The last oral medication to make its way into the world was Tecfidera in 2013. Tecfidera was formally known as BG-12, it was formulated specifically for people with MS and has been used in Germany at higher doses to treat acute flare ups of psoriasis for years. It is thought to inhibit immune cells and may have specific antioxidant properties that might protect against damage in the brain and spinal cord. The main side effect reported by many individuals when taking Tecfidera is flushing. In 2014 an individual sadly passed away from PML, which prompted more stringent warning labels and JC Virus testing for patients taking Tecfidera.
As I mentioned, the only one of these medications I was on (so far) was Aubagio. I experienced what I would consider extreme hair loss (having to clean up the shower and floor every day) and a major relapse while taking it. As for the other possible side effects, I didn’t notice anything else. I loved the idea of being able to take an oral medication for MS instead of an injection, but my body had different plans for me. If I need to transition off of Tysabri in the future, I will definitely look to one of the other oral options before anything else.
Like all medications, these come with plenty of side effects. What is important to remember is to always weigh the risk versus benefit. What are tolerable side effects to you? To put it plainly, if the medication is working for you, what are you willing to put up with in order to get that benefit? If your medication makes you feel hot and makes your skin look like a tomato for an hour (flushing), but you’ve been relapse free for a year, which is more important? Or you’ve tested positive for the JC virus, what level of risk is ok with you? Those are definitely tough questions to answer, but with a little honesty and getting real with yourself, it can be done.
Husband’s 2 Cents
The one oral medication she tried, Aubagio, didn’t work. Her hair fell out and she had a relapse while taking it, which included ‘not subtle’ lesions in her brain. It may be an awesome thing for some people, but unfortunately not for her. I personally never noticed any difference in her hair, but I know she did. It was frustrating to watch her be frustrated.
If you like what you’re reading and want to stay connected, join the LissMS Community here!

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.

In case you needed to hear that today.

You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
...

58 9
This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡

This is my challenge to you over the next week.

Take some time and think about this past year.

All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.

Reflection is a great way to cultivate motivation to keep going..

You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
...

21 4
Comparison is the thief of joy.

Regardless of what you see others doing,
you’re right where you should be.

❤️🧡❤️

Comparison is the thief of joy.

Regardless of what you see others doing,
you’re right where you should be.

❤️🧡❤️
...

24 10
This took me completely by surprise, cause I usually roast myself after a simple mistake 🙈

But, I just didn’t? 🤷🏻‍♀️

Working on self improvement is weird.
Like I’m not even consciously working on how I talk to myself at the moment. 

Have I in the past? Sure. And it’s something I try to stay conscious of, but def have my moments where I fall into old patterns.

But this moment gave me hope.

What moments in your journey have given you hope lately?

This took me completely by surprise, cause I usually roast myself after a simple mistake 🙈

But, I just didn’t? 🤷🏻‍♀️

Working on self improvement is weird.
Like I’m not even consciously working on how I talk to myself at the moment.

Have I in the past? Sure. And it’s something I try to stay conscious of, but def have my moments where I fall into old patterns.

But this moment gave me hope.

What moments in your journey have given you hope lately?
...

55 2
Thank you for supporting my business this past year. 

Because in reality, you’re supporting me.

So thank you.
Scott thanks you too!

Thank you for supporting my business this past year.

Because in reality, you’re supporting me.

So thank you.
Scott thanks you too!
...

38 7
👉🏼Feeling stuck with your MS symptoms?
👉🏼Feeling like your body betrayed you and is working against you?
👉🏼Are you worried you’re stuck like this and will never get better?

I get it. At one point I did too.

Years ago I was experiencing “Aggressive MS” and I thought I’d never function the same.

I thought my days of moving how I wanted, or doing anything on a whim were over.

I couldn’t walk well, couldn’t feel my body correctly and I was SCARED.

But now?
I’m confident in the ways I’m helping myself.
I no longer have aggressive MS.
I can move how I want, when I want.

Because of the changes I’ve made over the years.

No, it’s not easy, but that’s where I come in!!

I’ve dedicated my life to helping those with MS realize that feeling better is possible and helping them get there.

My 2 courses and my membership are on sale this weekend for Black Friday,

want to start your own success story??

Comment SUCCESS below and I’ll send you the link!!

👉🏼Feeling stuck with your MS symptoms?
👉🏼Feeling like your body betrayed you and is working against you?
👉🏼Are you worried you’re stuck like this and will never get better?

I get it. At one point I did too.

Years ago I was experiencing “Aggressive MS” and I thought I’d never function the same.

I thought my days of moving how I wanted, or doing anything on a whim were over.

I couldn’t walk well, couldn’t feel my body correctly and I was SCARED.

But now?
I’m confident in the ways I’m helping myself.
I no longer have aggressive MS.
I can move how I want, when I want.

Because of the changes I’ve made over the years.

No, it’s not easy, but that’s where I come in!!

I’ve dedicated my life to helping those with MS realize that feeling better is possible and helping them get there.

My 2 courses and my membership are on sale this weekend for Black Friday,

want to start your own success story??

Comment SUCCESS below and I’ll send you the link!!
...

16 0
Grab your path to healing!!

These are the lowest prices for my courses like ever, and they won’t be back. (And they’ll prob be going up in the new year- planning some updates!!)

Comment HEALING below and I’ll send you a link, or check out my stories!!

Grab your path to healing!!

These are the lowest prices for my courses like ever, and they won’t be back. (And they’ll prob be going up in the new year- planning some updates!!)

Comment HEALING below and I’ll send you a link, or check out my stories!!
...

3 2
The first step to being successful with managing stress (& being successful with anything really) is:

Awareness of where you currently are.

You can’t change or manage what you’re not aware of.

You can only know yourself as deep as you’re awareness of yourself goes.

Try this:
Right now as you read this, pause for a sec.
Take a deep breath, and ask yourself:

Where were my thoughts?
Where is my breathing?
What am I saying to myself?

Get really honest here too (warning- it might be uncomfy)

What did you discover while checking in? Let me know in the comments!

-
-
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa. I’m a Holistic Practitioner & Therapist specializing in MS. 
I use all the tools I’ve comprised over my 10+ year career (and 14+ years with MS) to help my clients with MS decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
Interested to hear how that might look for you? Comment 🧡 below or DM me and we’ll chat!

The first step to being successful with managing stress (& being successful with anything really) is:

Awareness of where you currently are.

You can’t change or manage what you’re not aware of.

You can only know yourself as deep as you’re awareness of yourself goes.

Try this:
Right now as you read this, pause for a sec.
Take a deep breath, and ask yourself:

Where were my thoughts?
Where is my breathing?
What am I saying to myself?

Get really honest here too (warning- it might be uncomfy)

What did you discover while checking in? Let me know in the comments!

-
-
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa. I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 14+ years with MS) to help my clients with MS decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
Interested to hear how that might look for you? Comment 🧡 below or DM me and we’ll chat!
...

14 1
Progress is absolutely not linear.

But, it’s still progress nonetheless.

I see you if you’re in a “dip” or feel like you’re going “backwards”

You’re really not, you’re right where you should be.

Keep going!!
🧡❤️🧡

Progress is absolutely not linear.

But, it’s still progress nonetheless.

I see you if you’re in a “dip” or feel like you’re going “backwards”

You’re really not, you’re right where you should be.

Keep going!!
🧡❤️🧡
...

22 1
Lol, all this got me was an MS diagnosis. 

This was me basically my whole life up until a few years ago.

My clients have all talked about situations like this too.

It’s no wonder why a lot of us have an autoimmune disease now. 

Please, speak your truth. Your body will thank you.

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.

I use all the tools I’ve comprised over my 10+ year career (and 14+ years with MS) to help my clients with MS decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

Interested to hear how that might look for you? Comment 🧡 below or DM me and we’ll chat!

Lol, all this got me was an MS diagnosis.

This was me basically my whole life up until a few years ago.

My clients have all talked about situations like this too.

It’s no wonder why a lot of us have an autoimmune disease now.

Please, speak your truth. Your body will thank you.

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.

I use all the tools I’ve comprised over my 10+ year career (and 14+ years with MS) to help my clients with MS decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

Interested to hear how that might look for you? Comment 🧡 below or DM me and we’ll chat!
...

90 4
This has been a TOUGH week friends.

Don’t lose yourself.

What else would you add to this list?
What helps you when life is super hard?

❤️❤️

This has been a TOUGH week friends.

Don’t lose yourself.

What else would you add to this list?
What helps you when life is super hard?

❤️❤️
...

20 2
I’ve been actively working on my nervous system for the past year or two.

That hasn’t meant that all my anxiety or depression magically vanished.

It just means that when I do find myself feeling like an anxious mess or a depressed puddle, I know how to attend to and care for myself.

Not in the goal of “fixing” per se, more honoring and accepting.

This is one of the ways I help my clients improve their MS symptoms, but attending to their nervous systems and improving their stress response and resilience.

I have so many ways to work with me.. from 1:1 support to my free community.. comment below “interested” and we’ll chat about what would be right for you!

I’ve been actively working on my nervous system for the past year or two.

That hasn’t meant that all my anxiety or depression magically vanished.

It just means that when I do find myself feeling like an anxious mess or a depressed puddle, I know how to attend to and care for myself.

Not in the goal of “fixing” per se, more honoring and accepting.

This is one of the ways I help my clients improve their MS symptoms, but attending to their nervous systems and improving their stress response and resilience.

I have so many ways to work with me.. from 1:1 support to my free community.. comment below “interested” and we’ll chat about what would be right for you!
...

18 2

As Featured In:

© LISSMS 2024 | Powered By TheDevQ

0
Your Cart
Your cart is emptyReturn to Shop
Calculate Shipping
Apply Coupon