Oral Medications


In terms of healthcare and medicine, oral medications for MS are still considered to be in their infancy. Coming onto the market just five years ago, oral medications for MS were saviors for many. They provided relief from the injections I talked about last week and they provided hope for research of the future. When I was first diagnosed, oral treatments seemed like they were still just a thought, a figment of medical imagination. But a few years later they hit the market, to the cheers and sighs of relief of many patients.

The first on the scene was Gilenya in 2010. Gilenya is believed to work by preventing certain types of white blood cells from crossing the blood-brain barrier. By doing so, it is believed that this reduces inflammation and damage to nerve cells. Gilenya seemed to be an answer to many MSers prayers, no more shots! But soon after many began taking it, the reports of side effects came out. This is not unusual, as with any drug there are often side effects. But with such a high profile drug, the side effects were high profile as well. One of the main side effects reported was heart issues within the first 24 hours of taking the first dose. And sadly in 2011 an individual experienced the worst side effect possible when they passed away within 24 hours of taking their first dose. This led to regulation changes including having an EEG prior to starting the medication and being monitored for 6 hours in the hospital after receiving a first dosage. Gilenya has also been known to cause vision, breathing or liver problems in some individuals which has prompted some groups to urge the FDA to use more restrictions on the medication. There’s always two sides to every coin though, and some people report wonderful relief from their symptoms and are able to do things they haven’t done in years.
Next to emerge was Aubagio in 2012. Aubagio is believed to work by inhibiting the function of specific immune cells that are believed to be present in MS. Patients were happy to have another oral option besides Gilenya, and it proved research was still marching forward. When taking Aubagio, one of the requirements is to have liver enzymes checked regularly as Aubagio could damage the liver. There are also other side effects as well; flushing, hair loss or hair thinning among others.
I was on Aubagio for about a year after Copaxone. I experienced major hair loss (at least I thought it was major) and I had a relapse while taking it as well. Clearly my body was telling me it was time to switch!
The last oral medication to make its way into the world was Tecfidera in 2013. Tecfidera was formally known as BG-12, it was formulated specifically for people with MS and has been used in Germany at higher doses to treat acute flare ups of psoriasis for years. It is thought to inhibit immune cells and may have specific antioxidant properties that might protect against damage in the brain and spinal cord. The main side effect reported by many individuals when taking Tecfidera is flushing. In 2014 an individual sadly passed away from PML, which prompted more stringent warning labels and JC Virus testing for patients taking Tecfidera.
As I mentioned, the only one of these medications I was on (so far) was Aubagio. I experienced what I would consider extreme hair loss (having to clean up the shower and floor every day) and a major relapse while taking it. As for the other possible side effects, I didn’t notice anything else. I loved the idea of being able to take an oral medication for MS instead of an injection, but my body had different plans for me. If I need to transition off of Tysabri in the future, I will definitely look to one of the other oral options before anything else.
Like all medications, these come with plenty of side effects. What is important to remember is to always weigh the risk versus benefit. What are tolerable side effects to you? To put it plainly, if the medication is working for you, what are you willing to put up with in order to get that benefit? If your medication makes you feel hot and makes your skin look like a tomato for an hour (flushing), but you’ve been relapse free for a year, which is more important? Or you’ve tested positive for the JC virus, what level of risk is ok with you? Those are definitely tough questions to answer, but with a little honesty and getting real with yourself, it can be done.
Husband’s 2 Cents
The one oral medication she tried, Aubagio, didn’t work. Her hair fell out and she had a relapse while taking it, which included ‘not subtle’ lesions in her brain. It may be an awesome thing for some people, but unfortunately not for her. I personally never noticed any difference in her hair, but I know she did. It was frustrating to watch her be frustrated.
If you like what you’re reading and want to stay connected, join the LissMS Community here!

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

5 Underrated Supplements to help MS symptoms 

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?

5 Underrated Supplements to help MS symptoms

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?
...

8 0
5 things to keep in mind about nutrition and MS

1. Addition before subtraction 
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!

5 things to keep in mind about nutrition and MS

1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
...

10 1
Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style.. 
But unable to say no when asked to do anything.. 

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth

Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
...

22 2
Stress & MS!!

• How our nervous system should function 
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response

Stress & MS!!

• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
...

13 0
First, comment SAFE below and I’ll send you details on my course Embodied Resilience- 
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse. 

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t. 
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so. 

If you don’t feel safe in your body, meditation won’t “work”. 

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead: 
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud. 
- How did that feel to your mind and body? 

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience. 

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse. 

We’re still in pre-sale, so to get the best price grab your spot now!! 

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior

First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse.

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.

If you don’t feel safe in your body, meditation won’t “work”.

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.

We’re still in pre-sale, so to get the best price grab your spot now!!

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
...

5 3
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
 I’ll tell you about the rest of the process too. 

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems

This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
...

18 5
More ways my life has changed 
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things 
- conflicts are shorter with the hubby
- I’m able to ask for what I need 
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs 
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too” 
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness

More ways my life has changed
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
...

19 3
Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress? 

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving

Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
...

18 3
First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress, 
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment 
- How that moment is impacting your body 

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience 

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
...

7 1
Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement

Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
...

11 6

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