“It got hot, real quick” Heat and MS.


It was a beautiful day by anyone’s standards, except a runner.
72, mostly sunny, perfect early summer day in June. But to me, it felt 90 degrees and scorching. It was 2013 and I was running the B.A.A 10K. I was in the middle of my running “career” and onto my 2nd or 3rd 10k. Everything started out just fine, music was pumping in my ears, adrenaline flowing through my legs,
“I got this” I thought. 
Until I hit Commonwealth Ave. 
For those of you unfamiliar with Boston, Commonwealth Ave is a fairly straight, uncovered, stretch of pavement. And this was where the majority of the 6.2 miles were ran. 
It got hot. It got hot, real quick. 
Heat and MS
One of the most well known symptoms of Multiple Sclerosis, at least to us MSers, is heat intolerance. Being exposed to heat, whether it is from being outdoors, being in a hot shower or exercising, can make MS symptoms temporarily worse, which is called a pseudo-exacerbation. Once our bodies return to normal temperature, the symptoms dissipate and return back to their normal state. During a pseudo-exacerbation there is no disease progression happening either, however, while the symptoms are being felt, they feel very real! In fact, back in the day before MRI’s and modern medicine, doctors used to use the “hot bath test” to diagnose MS! In this test, individuals who were suspected of having MS were put in a hot bath to see if their symptoms increased. As unpleasant as an MRI is, I’m sure that would be much worse!
Doctors believe this occurs because heat causes the nerves, who already are damaged, to preform their functions even less effectively. When body temperature increases, even by a quarter or half a degree, the electrical signals sent between demyelinated nerves are even further negatively impacted.
Some of the most common symptoms that individuals experience when in the heat are:
  • Fatigue
  • Blurry Vision (Uhthoffs  Phenomenon)
  • Pain
  • Cognitive Difficulties
Strategies to Manage the Heat
Sometimes being in the heat is unavoidable, so being prepared is the best thing you can do! Here are some tips for beating the heat!
  • AC is your friend! Staying in the AC during times of high heat or humidity is sometimes a must. Or having a nicely air conditioned house or room to come back to is important. When I didn’t have central air my doctor gave me the hint to make one room an “AC oasis” that is cool 24/7, which should be your bedroom, so you can sleep comfortably too.
  • Have ice water, or Popsicles  on hand all the time! Ice water will bring your core temp down asap.
  • Have a personal fan/personal water mister that you can bring with you EVERYWHERE.
  • When working out, be smart about your environment. Chose indoor areas that have AC. If you must workout outside, pick morning or evening times when it is cooler.
  • Try cooler/cold showers to bring down your body temp too. I really like this after a workout, this helps to bring my body back down to a normal temp quite quickly!
  • There are tons of personal cooling vests or articles of clothing that you can purchase that can help for longer term cooling as well.
My Experience
My hubby and I like to go to the beach all the time. Like one summer, we went on a beach tour and went to a new beach each weekend. So to say I’m “used” to the heat is an understatement, but it still get’s to me!
What I’ve found the most helpful for beating the heat is having a place to run back to that provides shade, whether that is an awesome beach tent or big tree, something that provides relief from the sun’s rays is key. I’ve found that sometimes in the shade it feels 10 degrees cooler than when in the sun. I also like to have a cooler with ice water with me. Yes, this means lugging a cooler to the beach, but in order to make my beach time fun, this is a necessity. My last thing that is key? Running in and out of the water. Obviously this isn’t always do-able if you’re not at the beach, so bringing some way to apply cold water, either a personal mister or cold towel or even having AC handy is important.
By the time I hit the turn around point, I felt like I was going to pass out. Looking back on it, I had no business finishing this race. But, I’m stubborn. And I was even more stubborn back then. 
Thankfully, my sister ran 99.9% of my races with me, and she was right there by my side. She didn’t know it, but she gave me the strength to keep going and in my mind, was there in case I passed out. 
By the time we hit the home stretch, I told her to go on ahead (she was great at sprinting to the finish) and I came behind about a minute later. My hubby (boyfriend at the time) was also there, at the finish line. He took one look at me, yelled at the medics, “GRAB HER”. 
I was stumbling to the finish, barely able to see, my legs were numb and tingling (at the same time, totally weird feeling) and I couldn’t feel most of my body.
Against my overheated, belligerent will, I was thrown in a wheel chair and carted off to the medical tent. I fought the entire time, stating I was “fine” and I just needed to “walk it off” (ha!).
My core temperature was 106 degrees, I was dizzy, confused and fighting the nurses. They tossed me in an ice bath for what seemed like an eternity (to me, as well as my then boyfriend and sister) and I thankfully didn’t have to go to the hospital. I think I told them I had MS, and that everything was much worse because of the heat, but I don’t really remember too much else of the conversation. 
Obviously both the act of running and the heat got to me that day. But I think the heat was the most impacting factor. I was a well conditioned runner at the time and the distance had previously given me no issues on 50 degree days.
The only things gained from the experience was a new shirt and a healthy respect for rising temperatures. 

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress, 
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment 
- How that moment is impacting your body 

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience 

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
...

5 1
Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement

Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
...

11 4
Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis

Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
...

5 0
It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs, 

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register! 

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms

It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs,

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register!

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms
...

9 1
This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc.. 

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!! 

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety

This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc..

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!!

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety
...

16 5
I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
...

25 7
✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!! 

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems

✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!!

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
...

9 2
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move 
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!

I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
...

18 8
And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis

And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis
...

19 4

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