The Hug We Don’t Want, The “MS Hug”


When you think of the word “hug”, usually warm fuzzy feelings come to mind. However, when is MSers think of the word hug, we think of something very different. We think of a squeezing, crushing or burning sensation that is felt in the middle of our body. Not very warm and fuzzy, now is it?

What is, The “Hug”?

So what really is the dreaded “MS hug”? It is a type of pain felt by individuals with MS that can be located in various areas of the body. It can be felts as low as around the waist to as high as the neck and can be felt all around the body or on one side or the other. As many other symptoms, it can be felt in a variety of ways including as pressure, a crushing feeling, constricting feeling, tingling, burning, a dull ache or sharp pain. This pain can last for seconds or minutes or hours or it can last for days at a time.
Often times this pain is brought on by stress, heat or fatigue (what’s new). If this sounds pretty awful, you’re right, it is. I can be pretty uncomfortable and pretty scary at the same time. It can lead to difficulty breathing and feeling like you’re about to have a heart attack.

The Cause

So why is this happening? Is this just another “just because” thing that we have to deal with? Not really. We do have to deal with it, but thankfully we know what causes it. The MS Hug and it’s wonderful array of feelings are caused by spasms in the intercostal muscles, which are located between your ribs. If higher muscles are spasming, then you will feel the sensations higher in your chest, and if lower muscles are spasming then you will feel the sensations more towards your waist. And of course, these muscle spasms are caused by lesions on the spinal cord.

The Treatment

First, any chest pain that you’re experiencing should be taken seriously. If you think it’s a heart attack, go get medical attention. Please. Thank you. 
Second, once you’ve determined that it is in fact, MS related pain there are several things you can do to help. Wearing loose clothing, deep breathing, using a heating pad can all be beneficial. If you experience your MS hug as acute pain or burning, you can try this: laying flat, applying pressure to the area that hurts with your hands or even wrapping your body with an ace bandage. This may seem counter intuitive, but it helps your brain change the sensations from pain into pain-free pressure. Remember when you would hurt your knee, and you would put a brace on it and it would feel better? Same thing.
If these lifestyle suggestions don’t work, there are medications you can try. However, this type of pain is still pretty tricky to treat. Although it seems like this pain is the result of a muscle spasm and would be easy to treat, the actual cause of this pain is neurological (remember the lesions?). Treating neurological pain is still pretty tough, (I think we all know that by now). But some medications that are used to treat this pain are anti-spasticity (diazepam) medications, anticonvulsant (gabapentin) medications and antidepressant (amitriptyline) medications.
Most of us MSers have had to deal with some sort of pain during our time with this disease. One of the most helpful things that I have found to help manage my pain has been connection. Talking about how my pain affects my day-to-day life seems to take the burden off just a little bit, just enough to make it bearable.
What helps you when the pain gets to you?
Please join the LissMS community here! I share more tips, insights and recipes (almost) weekly 😉

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

This is what came through during my meditation this morning.

I’ve been feeling so BEHIND lately..
That I’m not doing enough..
That progress isn’t happening fast enough..

But that’s a lie.
I’m right where I should be.

I needed this message today… maybe you do too?

This is what came through during my meditation this morning.

I’ve been feeling so BEHIND lately..
That I’m not doing enough..
That progress isn’t happening fast enough..

But that’s a lie.
I’m right where I should be.

I needed this message today… maybe you do too?
...

14 4
This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself 
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are. 

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!

This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!
...

21 5
You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.

You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.
...

27 4
“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year. 
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: 

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!!

“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here:

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!!
...

14 0
Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!!

Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!!
...

31 3
It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/ 

Or comment “book” below and I’ll send you the link!!

It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment “book” below and I’ll send you the link!!
...

33 15
If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!!

If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!!
...

32 2
This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing!

This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing!
...

22 0
This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2!

This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2!
...

38 2
We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!!

We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!!
...

16 1
There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️

There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️
...

32 9

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