Treating Relapses, To Treat or Not To Treat?

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Treating Relapses: To Treat or Not To Treat?

Last week we discussed what relapses look like, including those pesky pseudo-exacerbations. This week we will be covering how to treat a relapse. The opinion about such treatment, and more importantly, when treatment is necessary, seems to have changed since I was first diagnosed.

Should you Treat?

Last week I mentioned that at the root of all relapses is inflammation, so therefore the goal of treatment of relapses is to reduce inflammation. But what relapses require treatment? That’s a good question. It seems to come down to quality of life and level of impairment caused by the relapse. If you are experiencing mild* symptoms (sensory changes, mild fatigue), then treatment might not be necessary. But if you are experiencing severe symptoms (optic neuritis that impairs vision, severe weakness that interferes with walking), that interfere with your daily life and ability to go about your daily activities, then treatment might be warranted.
This is an interesting change. When I was first diagnosed, and going through my relapses years ago, it seemed like everything was treated, nothing was left to “take it’s course”, like it is today. If this mentality was around back then, or adopted by my doctor, I may not have treated several of my relapses like I did. 

Available Treatments

Once you’ve determined this is a severe relapse, and you do need treatment, there are several options available.
  • Steroid medications. Solu-Medrol (methylprednisolone) is the old standby. This is a 3 to 5 day course of IV steroids usually given in a hospital or infusion center. This medication is so effective because it works to relieve inflammation and it is able to close the blood brain barrier. There are several other types of corticosteroids used during an MS relapse including dexamethazone, prednisone, betamethasone and prednisolone. I’ve had Solu-Medrol three different times and my reaction to it was always the same, it totally wiped me out. I never got the crazy energy, or Hulk like emotions that some people experience. I got quite the opposite, which some people do feel, although not as common.
  • Acthar Gel. Acthar Gel is a treatment in injectable form that is a purified preparation of adrenocorticotropic hormone (ACTH). ACTH stimulates the adrenal cortex gland to secrete cortisol, corticosterone and aldosterone. With Acthar Gel, ACTH is delivered in a extended release formula. It is given once a day for 2 to 3 weeks and is injected into the muscle or under the skin. It is then absorbed slowly into the bloodstream. This works a little differently then steroid medication by helping the body to produce it’s on steroid hormones that reduce inflammation. This is an alternative option for people that have trouble tolerating corticosteroid medication and their side effects.
  • Plasmapheresis. In layman’s terms, plasma exchange. This is a treatment option for people whose relapse and symptoms do not respond to steroid treatment. It is a difficult process that includes several steps. 1. Blood is taken from the person. 2. Plasma is removed from the blood and replaced. 3. Blood is transfused back into the person. This is been a successful treatment for other autoimmune disease is because it removes antibodies from the blood, but is only considered as a last resort for treatment of MS relapse is at this time. It is also not approved by the FDA as a treatment specifically for an MS relapse.
  • Intervaneous Immunoglobulin (IVIG). This is another treatment that is only used in situations where other treatments have failed. This treatment uses human immunoglobulin, an antibody from healthy individuals, as an injection to help boost the immune response. This is also not an FDA approved treatment for MS relapses.

Long Term Effects

The jury seems to be still out on whether or not treating a relapse will 1, improve the relapse symptoms faster and 2, slow overall progression of the disease. In theory, you would think that treating a relapse with inflammation blasting steroids would improve both the length of the relapse and your overall disease progression. But it might not work like that (how unfortunate). So it’s up to us as patients to decide how we want to proceed when a relapse strikes.
How have you handled your relapses? Have you treated all of them, or have you left some to resolve on their own? Let me know!
*A quick note about mild symptoms. I really hate the term mild symptoms. In my opinion, and experience, even the “mild” symptoms they speak of are quick obnoxious and can interfere with quality of life. When my leg is burning or numb, it doesn’t feel mild, even though doctors consider it mild! 
 
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I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

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This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!

20 5
Open
This is how I slowly helped myself the most: Making small changes to my life, * Intentional awareness to my morning * Noticing when I’m being mean to myself * Noticing when I’m reactive or in a state of fight or flight.. Some “small” ideas for you too: * don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go * drink an extra glass of water (bonus if it’s in the morning too) * get up and move every hour * say something nice to yourself when you catch yourself being mean * step outside for a few minutes a few times a day Small changes add up to big steps forward, don’t get fooled by these not being “enough”, they absolutely are. Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies? I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!

This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!! ...

20 5

You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.

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Open
You don’t always have to love the hard action you’re taking to reach your goals. You just have to show up. You can do this… keep going 🧡🧡 *after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.

You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna. ...

26 4

“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here:

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!!

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Open
“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.” Resilience has become such a cornerstone word of the work I do this past year. It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title. Did you see?? Pre Orders are open! If you pre order your copy through me before October 24th you’ll also get: • Signed copy of Resilience Redefined • The MS Handbook E-book • Resilience Bookmark • LissMS Sticker Pack (first 10 pre orders) Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/ Or comment Book below and I’ll send you the link!!

“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here:

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!! ...

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Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!!

31 3
Open
Struggling to start with exercise? Try this tip!! Creating a new habit (any of them) necessitate us to become someone new, someone different than we were. Because we’re trying to do something different after all. This is gentle way of starting that identity shift process. Become who you want to be in your mind first. Does this help? What other habits do you need help with? Let me know in the comments!!

Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!! ...

31 3

It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment “book” below and I’ll send you the link!!

33 15
Open
It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS. This is a book that I would have loved to read early on in my journey. It’s about how we moved through our diagnosis and came out the other side for the better. ““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive” So… drumroll please… Pre orders are officially open!! If you pre order your copy through me before October 24th you’ll also get: • Signed copy of Resilience Redefined • The MS Handbook E-book • Resilience Bookmark • LissMS Sticker Pack (first 10 pre orders) Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/ Or comment “book” below and I’ll send you the link!!

It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment “book” below and I’ll send you the link!! ...

33 15

If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!!

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Open
If you like being outside, check out the America the Beautiful Access Pass! This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!! You can get it online or at the entrance of a national park! Share with anyone who also might like this!!

If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!! ...

32 2

This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing!

22 0
Open
This is obvs one option of many on how to help yourself through these moments. But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too! This is rewiring your brain in action. You notice you’re doing something you always did, Then do something different. And boom! A new pathway is born. It needs some love and attention to grow, so keep practicing!

This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing! ...

22 0

This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2!

38 2
Open
This isn’t a you problem, it’s your brain acting as it should. Are you going through some change and upheaval right now too? I see you. Comment any questions on how to deal below and I’ll make a part 2!

This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2! ...

38 2

We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!!

16 1
Open
We have a new space for my (free) LissMS Healing Community!! Come on in… Let me show you around! This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends! Wanna join us? Comment “community” below and I’ll send you the link!!

We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!! ...

16 1

There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️

32 9
Open
There’s so much buzz about everything needing to feel good if it’s right for you. Sure, there’s a time and a place for alignment. But, growth often happens in the uncomfortable moments. Just a reminder. Keep going. ❤️

There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️ ...

32 9

Boating! I forgot to add boating to the list 🛶

Regulation is found in the micro moments.

Which of these have you done lately?

60 8
Open
Boating! I forgot to add boating to the list 🛶 Regulation is found in the micro moments. Which of these have you done lately?

Boating! I forgot to add boating to the list 🛶

Regulation is found in the micro moments.

Which of these have you done lately? ...

60 8

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