ECTRIMS 2018


MSMonday: ECTRIMS 2018

ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) is an annual international conference that is comprised of basic and clinical research on Multiple Sclerosis. It took place this year from October 10th-12th in Berlin, Germany. In February, ACTRIMS (American Committee for Treatment and Research in Multiple Sclerosis) will take place in Texas. Almost 1600 abstracts were submitted, over 1000 posters were on view and hundreds of presentations given. Obviously I can’t look at everything, that would take forever! And I think my brain would explode. But, I’ve picked a few to share with you. If you want to check it out for yourself, head here. Just create a free account, and you’re all set.

 

Vitamin D and Smoking

File this under, #duh. The study: “Vitamin D, smoking, EBV and long-term cognitive performance among CIS patients: 11-year follow-up of BENEFIT” showed that supplementing with higher doses of Vitamin D, or having high levels of vitamin D in CIS patients predicted better long term cognitive function. Shockingly, smoking predicted worse cognitive function. Cognitive function was positively correlated with vitamin D status as well. The higher the vitamin D levels, the higher the chance the patient had of scoring positively on the cognitive tests after 11 years. Similar results were found with smoking as well. The heavier the smoker, the worse the patient scored on the cognitive testing. Epstein Barr Virus was not found to be correlated with cognition.

An interesting side note about this wording used in this study. This study was looking at several “modifiable factors”, and if they have any impact on symptoms. Modifiable factors as you might guess, are things we have control over. They were listed out as environmental factors, like smoking, vitamin d status, sun exposure, obesity, viral/bacterial infections and geographical location. NOT listed was our food intake. One could argue this was listed under obesity, but I disagree. Our daily food intake is one of the BIGGEST “modifiable factors” that we have control over, and one that has the BIGGEST implications on our disease progression. Unfortunate it is not listed.

 

Sativex

Several trials were discussed about the efficacy of Sativex in relieving symptoms in patients. Sativex is an oral CBD spray with a 1:1 CBD THC ratio. In these trials, researchers were looking directly at the symptoms of spasticity and bladder urgency. In one of the trials, the largest of Sativex to date, 1650 patients were involved and 80% had progressive MS. After one month of use, most saw a 20% improvement in their symptoms and some even saw a 30% improvement in their symptoms. Although less patients were evaluated after 6 months, they continued to see improvements.

Similar conclusions were found when looking at bladder urgency. Although this study was significantly smaller (14 subjects) 50% of them had improvements in bladder urgency after one month of treatment, and 75% had improvements after two months of treatment.

Unfortunately, Sativex is only available in two dozen countries, mostly in Europe, Canada, Israel and Australia.

 

Resilience

This is also kind of a #duh. However, I did want to share it with you as a reminder. In the study “The impact of psychological resilience on cognitive and physical measures of disability in multiple sclerosis” resilience and its effect on disability were measured. Resilience was defined as “a dynamic process of positive adaptation to notable adversity” which the study states results in “psychophysical stability and higher quality of life”. I tend to wholeheartedly agree. As does this study. The results state that higher resilience were positively correlated with higher functioning in cognitive and motor tests, however not memory tests.

Obviously the study states they don’t know why and that further testing is needed. But I’ll take a stab at it. The more resilient you are, the more positive you are, and the more willing you are to keep trying when life kinda sucks. To me, that equals a highly resilient individual, and one that won’t stop when life hands you lemons. Which also means, someone who won’t give up on themselves.

The converse was also seen. Depression or Bipolar disorder was linked to faster disease progression in the study “The effect of depression and bipolar disorder on multiple sclerosis disability worsening”. In fact, it was more highly correlated with disease progression than resilience was correlated with positive improvements. Your mind is a powerful thing. 

 

What do you think about the studies I shared? Agree, disagree? Did you catch any others from ECTRIMS that you also thought were cool? Let me know in the comments below!

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

This is what came through during my meditation this morning.

I’ve been feeling so BEHIND lately..
That I’m not doing enough..
That progress isn’t happening fast enough..

But that’s a lie.
I’m right where I should be.

I needed this message today… maybe you do too?

This is what came through during my meditation this morning.

I’ve been feeling so BEHIND lately..
That I’m not doing enough..
That progress isn’t happening fast enough..

But that’s a lie.
I’m right where I should be.

I needed this message today… maybe you do too?
...

14 4
This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself 
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are. 

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!

This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..

Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day

Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.

Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?

I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!
...

21 5
You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.

You don’t always have to love the hard action you’re taking to reach your goals.

You just have to show up.

You can do this… keep going 🧡🧡

*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.
...

27 4
“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year. 
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: 

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!!

“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”

Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.

Did you see??

Pre Orders are open!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here:

https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment Book below and I’ll send you the link!!
...

14 0
Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!!

Struggling to start with exercise?

Try this tip!!

Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.

Because we’re trying to do something different after all.

This is gentle way of starting that identity shift process.

Become who you want to be in your mind first.

Does this help?
What other habits do you need help with? Let me know in the comments!!
...

31 3
It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/ 

Or comment “book” below and I’ll send you the link!!

It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.

This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.

““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”

So… drumroll please…
Pre orders are officially open!!

If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)

Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/

Or comment “book” below and I’ll send you the link!!
...

33 15
If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!!

If you like being outside, check out the America the Beautiful Access Pass!

This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!

You can get it online or at the entrance of a national park!

Share with anyone who also might like this!!
...

32 2
This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing!

This is obvs one option of many on how to help yourself through these moments.

But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!

This is rewiring your brain in action.

You notice you’re doing something you always did,
Then do something different.

And boom! A new pathway is born.

It needs some love and attention to grow,
so keep practicing!
...

22 0
This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2!

This isn’t a you problem, it’s your brain acting as it should.

Are you going through some change and upheaval right now too?

I see you.

Comment any questions on how to deal below and I’ll make a part 2!
...

38 2
We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!!

We have a new space for my (free) LissMS Healing Community!!

Come on in…

Let me show you around!

This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!

Wanna join us?

Comment “community” below and I’ll send you the link!!
...

16 1
There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️

There’s so much buzz about everything needing to feel good if it’s right for you.

Sure, there’s a time and a place for alignment.

But, growth often happens in the uncomfortable moments.

Just a reminder.
Keep going.
❤️
...

32 9

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