ECTRIMS 2018


MSMonday: ECTRIMS 2018

ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) is an annual international conference that is comprised of basic and clinical research on Multiple Sclerosis. It took place this year from October 10th-12th in Berlin, Germany. In February, ACTRIMS (American Committee for Treatment and Research in Multiple Sclerosis) will take place in Texas. Almost 1600 abstracts were submitted, over 1000 posters were on view and hundreds of presentations given. Obviously I can’t look at everything, that would take forever! And I think my brain would explode. But, I’ve picked a few to share with you. If you want to check it out for yourself, head here. Just create a free account, and you’re all set.

 

Vitamin D and Smoking

File this under, #duh. The study: “Vitamin D, smoking, EBV and long-term cognitive performance among CIS patients: 11-year follow-up of BENEFIT” showed that supplementing with higher doses of Vitamin D, or having high levels of vitamin D in CIS patients predicted better long term cognitive function. Shockingly, smoking predicted worse cognitive function. Cognitive function was positively correlated with vitamin D status as well. The higher the vitamin D levels, the higher the chance the patient had of scoring positively on the cognitive tests after 11 years. Similar results were found with smoking as well. The heavier the smoker, the worse the patient scored on the cognitive testing. Epstein Barr Virus was not found to be correlated with cognition.

An interesting side note about this wording used in this study. This study was looking at several “modifiable factors”, and if they have any impact on symptoms. Modifiable factors as you might guess, are things we have control over. They were listed out as environmental factors, like smoking, vitamin d status, sun exposure, obesity, viral/bacterial infections and geographical location. NOT listed was our food intake. One could argue this was listed under obesity, but I disagree. Our daily food intake is one of the BIGGEST “modifiable factors” that we have control over, and one that has the BIGGEST implications on our disease progression. Unfortunate it is not listed.

 

Sativex

Several trials were discussed about the efficacy of Sativex in relieving symptoms in patients. Sativex is an oral CBD spray with a 1:1 CBD THC ratio. In these trials, researchers were looking directly at the symptoms of spasticity and bladder urgency. In one of the trials, the largest of Sativex to date, 1650 patients were involved and 80% had progressive MS. After one month of use, most saw a 20% improvement in their symptoms and some even saw a 30% improvement in their symptoms. Although less patients were evaluated after 6 months, they continued to see improvements.

Similar conclusions were found when looking at bladder urgency. Although this study was significantly smaller (14 subjects) 50% of them had improvements in bladder urgency after one month of treatment, and 75% had improvements after two months of treatment.

Unfortunately, Sativex is only available in two dozen countries, mostly in Europe, Canada, Israel and Australia.

 

Resilience

This is also kind of a #duh. However, I did want to share it with you as a reminder. In the study “The impact of psychological resilience on cognitive and physical measures of disability in multiple sclerosis” resilience and its effect on disability were measured. Resilience was defined as “a dynamic process of positive adaptation to notable adversity” which the study states results in “psychophysical stability and higher quality of life”. I tend to wholeheartedly agree. As does this study. The results state that higher resilience were positively correlated with higher functioning in cognitive and motor tests, however not memory tests.

Obviously the study states they don’t know why and that further testing is needed. But I’ll take a stab at it. The more resilient you are, the more positive you are, and the more willing you are to keep trying when life kinda sucks. To me, that equals a highly resilient individual, and one that won’t stop when life hands you lemons. Which also means, someone who won’t give up on themselves.

The converse was also seen. Depression or Bipolar disorder was linked to faster disease progression in the study “The effect of depression and bipolar disorder on multiple sclerosis disability worsening”. In fact, it was more highly correlated with disease progression than resilience was correlated with positive improvements. Your mind is a powerful thing. 

 

What do you think about the studies I shared? Agree, disagree? Did you catch any others from ECTRIMS that you also thought were cool? Let me know in the comments below!

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress, 
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment 
- How that moment is impacting your body 

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience 

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
...

5 1
Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement

Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
...

11 4
Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis

Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
...

5 0
It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs, 

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register! 

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms

It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs,

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register!

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms
...

9 1
This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc.. 

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!! 

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety

This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc..

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!!

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety
...

16 5
I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
...

25 7
✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!! 

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems

✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!!

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
...

9 2
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move 
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!

I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
...

18 8
And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis

And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis
...

19 4

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