What I wish I knew when I was diagnosed with Multiple Sclerosis


When I was diagnosed with Multiple Sclerosis I was only 24 years old. Nearing the end of graduate school, about to set out and find a “real job”, MS didn’t quite fit into that life picture I had envisioned for myself. But I guess that’s how that works, right? You’re never expecting anything that blindsides you.

When I was diagnosed, I didn’t know anything about the disease. When my neurologist talked about what I could potentially have on my initial visit, I had to go home and do some googling. Sure, I had heard about it, but I didn’t know about it.

After I was diagnosed, I was still in the dark. I read a lot of factual articles. Symptoms to look out for, things that could potentially be in my future. But I didn’t know what would make a difference or not. All I got from my neurologist was “choose a medication, and get started”. Naturally, I thought that’s all that mattered. However, I couldn’t have been more wrong.

Someone else’s symptoms don’t apply to you

MS is an individual disease, as we all eventually find out. When I researched MS, I found stories of disability, pain and struggle. I also found stories of triumph. The dichotomy left me somewhat confused. But I should have known that it didn’t matter what I read, it just mattered what I lived. My symptoms were mine, and no one else’s. Just as someone else’s symptoms were theirs, and not mine. What I read about someone else’s struggle might never come true for me. As hard as it is to not imagine the future, it didn’t do me any good. And still doesn’t.

Lifestyle counts

At one doctors appointment, I remember asking my neurologist if anything else besides medication mattered, like what I was eating (this was before I knew better). He said he didn’t think so, but a Mediterranean type Diet wouldn’t hurt. Now I know that diet, and lifestyle changes in general, make all the difference in the world. It’s hard to choose which have the biggest impact, since they all seem to intertwine together. Diet lowers inflammation, stress management lowers inflammation and can increase quality of life, sleep lowers inflammation (among other things). I can’t pick just one that is most impactful.

Mindset matters too

This is one I’m still learning about daily. Your brain is a powerful little organ. If you think something is going to suck, most likely, it’s going to suck. If you think something is going to be great, most likely, it’s going to be great. Funny how that works. My husband has actually helped me out with this a great deal. I remember being at the hospital in the middle of a relapse, waiting for steroid infusions, hurting, not being in the mood for anything, let alone fun, and he is trying to make up games to play. Anything to get my mindset shifted and away from what is actually going on. Weird, it worked. Your brain is the most powerful tool you have, use it wisely.

Life is going to be different, and not, at the same time

Right now, almost 10 years after my diagnosis (yikes!) I’m feeling the best I have in my life. (knocking on every single wood surface around me). Life has definitely unfolded differently than I thought it would have, but then again, isn’t that how life works? Yes, I do some things differently because of MS, I know where every public restroom is, take it slower on hot days and head to the hospital once a month. But I also am living life regardless of my MS diagnosis. I run my own online Holistic Nutrition Coaching Business, I’m a wife and furbaby mom, and I still do many of the activities I did years ago. Life may look different, but it kinda doesn’t, all at once.

Sometimes reality hits hard- and that’s ok

Some days are a-ok! Some days are totally not. Both are bound to happen, and both are ok. Even though I may feel ok at the moment, I still have those times where my imagination gets the best of me. Where I think about the future and envision the worst. The tears usually come, I let them flow through. They pass, my fear subsides, and I return to “normal”. Truth be told, this is a scary disease. Random symptoms pop up at the most random times, leaving me wondering “is that MS?” “is this a relapse?” “is this THAT TIME??”. That’s all scary to think about. But giving myself time and space for those emotional moments in between has been making a difference.

These things aren’t the only things I’d wish I’d have known.. just the biggies. I’m curious, what are somethings you wish you would have known when you were diagnosed? Let me know in the comments!


I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

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I think I’ve said this in every group I’ve run and with every client I meet with.

(A gross oversimplification disclaimer)
But this: 
people pleasing, being all or nothing, perfectionist (I could go on) 

Is (part of) why we got MS.

These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.

Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.

•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)

Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.

Comment HHMS below and I’ll send you the link.

I think I’ve said this in every group I’ve run and with every client I meet with.

(A gross oversimplification disclaimer)
But this:
people pleasing, being all or nothing, perfectionist (I could go on)

Is (part of) why we got MS.

These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.

Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.

•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)

Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.

Comment HHMS below and I’ll send you the link.
...

18 8
At some point you have to start trusting the things you’re doing will help and stop jumping to a new thing each week.

Giving up gluten one week?
Then dairy the next?
Maybe jumping into an exercise class a week later?

At some point you gotta pick 1-3 things and stick with them long enough to give them time to make changes in your body!!

Not just a day or week either.

Yes change can happen fast, but usually not that fast. You need to stick with things for long enough to see if they’ll help.

Often you give up before it has a chance to shift anything.

If you’ve been bouncing from thing to thing, throwing random things at the wall and hoping they stick, hoping something will move the needle an inch so you feel even a little bit better.. 

My course Holistically Healing MS is for you.

This is the place to find what works for you, to decrease your MS symptoms.

Comment HHMS below and I’ll send you details.

At some point you have to start trusting the things you’re doing will help and stop jumping to a new thing each week.

Giving up gluten one week?
Then dairy the next?
Maybe jumping into an exercise class a week later?

At some point you gotta pick 1-3 things and stick with them long enough to give them time to make changes in your body!!

Not just a day or week either.

Yes change can happen fast, but usually not that fast. You need to stick with things for long enough to see if they’ll help.

Often you give up before it has a chance to shift anything.

If you’ve been bouncing from thing to thing, throwing random things at the wall and hoping they stick, hoping something will move the needle an inch so you feel even a little bit better..

My course Holistically Healing MS is for you.

This is the place to find what works for you, to decrease your MS symptoms.

Comment HHMS below and I’ll send you details.
...

6 2
At one point I wanted:

•To be able to comfortably go on a walk again with my boyfriend (now husband)

•To not feel like an anxious mess every time I thought about the future (and potential disability)

• To not have waves of pain coursing throughout my body 

I don’t want those things anymore,
because I have them all.

No, I’m not totally cured of feeling anxious about the future, and I still have days (like today tbh) where I feel like a load of 💩

The difference is: 
I can manage all the symptoms
and anxiety
and feeling like 💩
better and differently than I did before, using all the tools I have accumulated over the 15(!!) years I’ve lived with MS as a patient and practitioner.

And these are the tools I share with my clients.

And the tools I share with you inside my Holistically Healing MS course.

This course is an 8 week journey into supporting your MS body so that it can begin to heal.

I know you have the same dreams as I did, 
I know because you’ve told me we’ve talked about them 🤩

I want you to have those things too.

Holistically Healing MS waitlist is closing tomorrow, comment HEALING and I’ll add you to the list.

At one point I wanted:

•To be able to comfortably go on a walk again with my boyfriend (now husband)

•To not feel like an anxious mess every time I thought about the future (and potential disability)

• To not have waves of pain coursing throughout my body

I don’t want those things anymore,
because I have them all.

No, I’m not totally cured of feeling anxious about the future, and I still have days (like today tbh) where I feel like a load of 💩

The difference is:
I can manage all the symptoms
and anxiety
and feeling like 💩
better and differently than I did before, using all the tools I have accumulated over the 15(!!) years I’ve lived with MS as a patient and practitioner.

And these are the tools I share with my clients.

And the tools I share with you inside my Holistically Healing MS course.

This course is an 8 week journey into supporting your MS body so that it can begin to heal.

I know you have the same dreams as I did,
I know because you’ve told me we’ve talked about them 🤩

I want you to have those things too.

Holistically Healing MS waitlist is closing tomorrow, comment HEALING and I’ll add you to the list.
...

14 6
I was talking to a client this week and she talked about how mad she was that she has a chronic illness.

How frustrated she was that she has to “manage this dumb disease” and “has to pay attention to everything she does”.

She also went onto say that she really wants to do all the helpful things, but just can’t get out of these stuck and frustrated feelings.

I get it- I definitely remember feeling similar feelings years ago. And I’m sure you’ve been here as well and might still be there at times.

I wanted to share the reframe that really helped her:

I told her, instead of focusing on “managing your disease”,
what if you thought about how you can set your future self up for feeling better/success/health.

Take the disease totally out of it.
What is 1 thing you can do to help your future self today?

She paused for a moment and I could almost see the light bulb go off in real time (one of my fav moments lol).

She said: that feels so much better and more doable.

If you’ve also been struggling with frustrated feelings about “managing your disease” these are the types of conversations we’ll have in Holistically Healing MS.

Yes I’ll be sharing about diet strategies, movement to help symptoms and stress management techniques, but we’ll also dive deeper into your feelings about it all.

Over the many years I’ve been working with clients, I’ve discovered that these thoughts, feelings and beliefs you have about yourself and your health are the biggest thing to stand in your way.

And when you have support to work through these feelings, you’re able to feel so much better faster.

Only those on the HHMS waitlist will get the presale price, and the opportunity to join the waitlist is dwindling (waitlist gets access next weekend!).

Comment WAITLIST below and I’ll add you to the list!!

I was talking to a client this week and she talked about how mad she was that she has a chronic illness.

How frustrated she was that she has to “manage this dumb disease” and “has to pay attention to everything she does”.

She also went onto say that she really wants to do all the helpful things, but just can’t get out of these stuck and frustrated feelings.

I get it- I definitely remember feeling similar feelings years ago. And I’m sure you’ve been here as well and might still be there at times.

I wanted to share the reframe that really helped her:

I told her, instead of focusing on “managing your disease”,
what if you thought about how you can set your future self up for feeling better/success/health.

Take the disease totally out of it.
What is 1 thing you can do to help your future self today?

She paused for a moment and I could almost see the light bulb go off in real time (one of my fav moments lol).

She said: that feels so much better and more doable.

If you’ve also been struggling with frustrated feelings about “managing your disease” these are the types of conversations we’ll have in Holistically Healing MS.

Yes I’ll be sharing about diet strategies, movement to help symptoms and stress management techniques, but we’ll also dive deeper into your feelings about it all.

Over the many years I’ve been working with clients, I’ve discovered that these thoughts, feelings and beliefs you have about yourself and your health are the biggest thing to stand in your way.

And when you have support to work through these feelings, you’re able to feel so much better faster.

Only those on the HHMS waitlist will get the presale price, and the opportunity to join the waitlist is dwindling (waitlist gets access next weekend!).

Comment WAITLIST below and I’ll add you to the list!!
...

11 2
My reality has changed a whole bunch over the years.

I started out with only a few symptoms. But I could get through the day.

Until all of a sudden I couldn’t.

All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”

This was not ok with me.

Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.

So I did.

I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.

This is just the tip of the iceberg.

If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks. 

This is the course you need to get started on this path for yourself.

Only the waitlist is gonna get the pre sale price… 
Comment WAITLIST below and I’ll add you to it!!

My reality has changed a whole bunch over the years.

I started out with only a few symptoms. But I could get through the day.

Until all of a sudden I couldn’t.

All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”

This was not ok with me.

Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.

So I did.

I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.

This is just the tip of the iceberg.

If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.

This is the course you need to get started on this path for yourself.

Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
...

49 9
This is the reality I lived, I want you to experience it too.

No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.

BUT-

Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.

My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time. 

Yes it took a few months, but what it gave me back was my life- and that’s priceless. 

I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet. 

Comment CLASS below and I’ll send you the link to sign up!!

This is the reality I lived, I want you to experience it too.

No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.

BUT-

Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.

My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.

Yes it took a few months, but what it gave me back was my life- and that’s priceless.

I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.

Comment CLASS below and I’ll send you the link to sign up!!
...

14 5
This is my vision for the masterclass I’m hosting next Monday.

I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.

Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong 
- saying no again to going out to eat with friends 

Find the freedom and confidence you’ve been looking for.

Comment CLASS below and I’ll send you the link to sign up!!

This is my vision for the masterclass I’m hosting next Monday.

I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.

Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends

Find the freedom and confidence you’ve been looking for.

Comment CLASS below and I’ll send you the link to sign up!!
...

11 3
Do any of those hit home? 
 If yes… comment MASTERCLASS below.. I got you

Do any of those hit home?
If yes… comment MASTERCLASS below.. I got you
...

14 3

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