A few weeks back, I put out a call for questions to answer on MSMonday. I got some really good ones and one of them was about leg weakness and what we can do about it. I wanted to tackle this one first, since it seems to be another topic similar to last week’s topic where the doc’s answer is just deal with it and/or there is nothing you can do, so just deal with it. I hate that answer, obvs. It takes our power away and insinuates that we can’t do anything about our disease or disease progression.
Nothing fires me up more than getting the word out that you can do more that just wait for progression to happen to you. In fact, that is my passion and drive behind my mission at LissMS. But that’s a story for another day. Onto today’s topic: leg weakness. What can we do about leg weakness? Exercise!
But Alissa, I heard that exercise doesn’t work, since my legs are already not working right because of demyelination, it won’t do anything.
That’s is the conventional wisdom floating around the interwebz these days, for sure. I even read it last week. However, yes, we can do something about weakness, even if it is caused by demyelination.
I’m not talking about exercise in the way that we usually think about exercise, like squats and deadlifts. I think that’s where most people get freaked out in the first place. The word “exercise” is synonymous with strenuous movements. But it doesn’t’ have to be at all. The exercise I’m talking about are exercises in the form of specific movement patterns, that help our neurons bypass the damaged areas so that the signal can still communicate with our muscles and joints to get the job done. #neurology
Leg weakness with MS can happen for a few reasons. Relapses, muscle atrophy and underuse of muscles are the big ones. Usually (not always, but usually) when you’re feeling unstable and weakness in your leg muscles, something is happening in your hip. Our hips are the main drivers of motion of our legs. Whether it is demyelination leading to hip instability/weakness or underuse, hip instability can lead to leg weakness. Hips are responsible for so many things in our bodies, alignment, strength and posture to name just a few.
One of the best exercises to begin with when having leg weakness is a pelvic tilt exercise. In the video you’ll see that I have a ball between my legs, this is to help with deeper muscle and core engagement. If you don’t have a ball, you can roll up a towel or use a foam roller if you have one.
You’ll want to get down on the ground and start in a neutral position- knees bent and hips/back relaxed. To begin the exercise:
5 reps may be too hard, and that’s totally ok. Start where you’re at and build up from there. This will give you a great building block for stability, strength and preventing or recovering from weakness.
If you have any questions/comments, drop them below! I’d love to hear how this goes for you!
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My MS Journey Over the Past 10 Yearsfollow along on Instagram:
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
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