What I wish I knew when I was diagnosed with Multiple Sclerosis


When I was diagnosed with Multiple Sclerosis I was only 24 years old. Nearing the end of graduate school, about to set out and find a “real job”, MS didn’t quite fit into that life picture I had envisioned for myself. But I guess that’s how that works, right? You’re never expecting anything that blindsides you.

When I was diagnosed, I didn’t know anything about the disease. When my neurologist talked about what I could potentially have on my initial visit, I had to go home and do some googling. Sure, I had heard about it, but I didn’t know about it.

After I was diagnosed, I was still in the dark. I read a lot of factual articles. Symptoms to look out for, things that could potentially be in my future. But I didn’t know what would make a difference or not. All I got from my neurologist was “choose a medication, and get started”. Naturally, I thought that’s all that mattered. However, I couldn’t have been more wrong.

Someone else’s symptoms don’t apply to you

MS is an individual disease, as we all eventually find out. When I researched MS, I found stories of disability, pain and struggle. I also found stories of triumph. The dichotomy left me somewhat confused. But I should have known that it didn’t matter what I read, it just mattered what I lived. My symptoms were mine, and no one else’s. Just as someone else’s symptoms were theirs, and not mine. What I read about someone else’s struggle might never come true for me. As hard as it is to not imagine the future, it didn’t do me any good. And still doesn’t.

Lifestyle counts

At one doctors appointment, I remember asking my neurologist if anything else besides medication mattered, like what I was eating (this was before I knew better). He said he didn’t think so, but a Mediterranean type Diet wouldn’t hurt. Now I know that diet, and lifestyle changes in general, make all the difference in the world. It’s hard to choose which have the biggest impact, since they all seem to intertwine together. Diet lowers inflammation, stress management lowers inflammation and can increase quality of life, sleep lowers inflammation (among other things). I can’t pick just one that is most impactful.

Mindset matters too

This is one I’m still learning about daily. Your brain is a powerful little organ. If you think something is going to suck, most likely, it’s going to suck. If you think something is going to be great, most likely, it’s going to be great. Funny how that works. My husband has actually helped me out with this a great deal. I remember being at the hospital in the middle of a relapse, waiting for steroid infusions, hurting, not being in the mood for anything, let alone fun, and he is trying to make up games to play. Anything to get my mindset shifted and away from what is actually going on. Weird, it worked. Your brain is the most powerful tool you have, use it wisely.

Life is going to be different, and not, at the same time

Right now, almost 10 years after my diagnosis (yikes!) I’m feeling the best I have in my life. (knocking on every single wood surface around me). Life has definitely unfolded differently than I thought it would have, but then again, isn’t that how life works? Yes, I do some things differently because of MS, I know where every public restroom is, take it slower on hot days and head to the hospital once a month. But I also am living life regardless of my MS diagnosis. I run my own online Holistic Nutrition Coaching Business, I’m a wife and furbaby mom, and I still do many of the activities I did years ago. Life may look different, but it kinda doesn’t, all at once.

Sometimes reality hits hard- and that’s ok

Some days are a-ok! Some days are totally not. Both are bound to happen, and both are ok. Even though I may feel ok at the moment, I still have those times where my imagination gets the best of me. Where I think about the future and envision the worst. The tears usually come, I let them flow through. They pass, my fear subsides, and I return to “normal”. Truth be told, this is a scary disease. Random symptoms pop up at the most random times, leaving me wondering “is that MS?” “is this a relapse?” “is this THAT TIME??”. That’s all scary to think about. But giving myself time and space for those emotional moments in between has been making a difference.

These things aren’t the only things I’d wish I’d have known.. just the biggies. I’m curious, what are somethings you wish you would have known when you were diagnosed? Let me know in the comments!


I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
...

21 5
✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!! 

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems

✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!!

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
...

8 2
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move 
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!

I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
...

18 8
And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis

And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis
...

19 4
Home stretch!!

Do what you need to do today to take care of yourself friends.

#Electionday #Govote #Vote

Home stretch!!

Do what you need to do today to take care of yourself friends.

#Electionday #Govote #Vote
...

9 1
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.

They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.

I know when so many feel the same way, you might too.
I know I feel this way too.

I’m working with them to put habits in place NOW that will support them through the winter months.

Here are 2 small shifts we talked about this week:

1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️

Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.

2. Move your body!! 💃🏃‍♀️

The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do. 

These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.

Let’s crowdsource… what else helps you in winter?? 
I know there are many other things that can!!

I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.

They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.

I know when so many feel the same way, you might too.
I know I feel this way too.

I’m working with them to put habits in place NOW that will support them through the winter months.

Here are 2 small shifts we talked about this week:

1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️

Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.

2. Move your body!! 💃🏃‍♀️

The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.

These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.

Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
...

10 4
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.

Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.

We start tomorrow at 5:30pm eastern, you coming?

All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.

Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.

We start tomorrow at 5:30pm eastern, you coming?
...

11 3

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