Tysabri


Tysabri, also known as Natalizumab, is a once a month infusion for MS. It works differently than other MS meds by blocking white blood cells from entering the brain and spinal cord of individuals, or across the ‘blood brain barrier’. This is believed by many doctors to be a big factor in the damage caused by MS. Tysabri can cause many side effects, and for some they can be worse than for others. The common side effects are headache, fatigue, joint pain and depression. Often these can be mitigated by taking Tylenol prior to your infusion.
The history of Tysabri has been filled with controversy. After being approved for MS by the FDA, it had to be pulled due to patient deaths due to PML (progressive multifocal leukoencephalopathy ). PML is a very rare brain infection that usually leads to death or severe disability. Currently there is no treatment or cure for PML. PML has several risk factors including 1. Being positive for antibodies for the JC Virus 2. Prior use of immune-suppressants 3. Length of time taking Tysabri. The JC Virus is a common virus that many people have antibodies for (50-60% of people). But in individuals who have weakened immune systems, it can lead to PML. Many people still take Tysabri even if they are positive for JC Virus antibodies, that is a very individualized choice that each person has to make on their own. Due to the significant risk factor of PML, a database was created to follow every patient who is taking Tysabri called the TOUCH Program. Prior to a first infusion, an individual and their doctor must register with the program and will be contacted periodically to see how treatment is progressing. Because Tysabri has such a high risk, it was thought of for many years to be a drug that was used when others were not helpful, or as a last resort.
When I was presented with the idea of Tysabri several years ago, it initially scared the crap out of me. The idea that I had progressed to the next ‘level’ of meds, that my MS had become no longer able to be managed on other meds, that my doctor was calling it ‘aggressive’. But in reality it was aggressive. I had 3 relapses in a year and a half. When my doctor described the lesions of the last one he said they ‘aren’t subtle’. That really shook my husband and I. First, before any thoughts about the drug itself, I wanted to know if it was JC positive. That would direct my thoughts. Turns out I wasn’t, (but I keep getting tested every 6 months or so). What was I to do? I researched. A TON. And I found a very interesting trend. In the patient stories I found, they were literally back and forth, good to bad. One person said it was the worst experience of their life, then the next person said it saved their life. I discovered that it would be just like everything else, individualized. There would be no way of telling how I would react. My doctor was strongly recommending that I take it, he went so far as saying if it was his family, he’d feel comfortable telling them to take it.
In September of 2014 I started Tysabri. I can say it has been the best medication for MS I’ve done. The side effect I had most was fatigue. For the first 6-8 months, after the infusion I was EXHAUSTED. Just junk. But eventually that subsided. Now, I am able to have the infusion and go about my day. It is nice not having to think about medication daily. In terms of MS symptom management, I think it helped about 70-80%. I still was feeling pain, numbness and burning. But once I went strict AIP, everything went away 100%. I think Tysabri gave me a boost, then AIP took me the rest of the way.
Obviously there are many risks involved with Tysabri, that I still think about. I still continue to monitor my JC virus status, and if that changes someday then I’ll have to re-evaluate my status with Tysabri. I’m not sure if I’d continue with it if I was ever positive. I know many people do, but I don’t know if I would be comfortable with that. I guess I’ll have to cross that bridge if I ever get there.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

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follow along on Instagram:

My reality has changed a whole bunch over the years.

I started out with only a few symptoms. But I could get through the day.

Until all of a sudden I couldn’t.

All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”

This was not ok with me.

Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.

So I did.

I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.

This is just the tip of the iceberg.

If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks. 

This is the course you need to get started on this path for yourself.

Only the waitlist is gonna get the pre sale price… 
Comment WAITLIST below and I’ll add you to it!!

My reality has changed a whole bunch over the years.

I started out with only a few symptoms. But I could get through the day.

Until all of a sudden I couldn’t.

All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”

This was not ok with me.

Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.

So I did.

I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.

This is just the tip of the iceberg.

If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.

This is the course you need to get started on this path for yourself.

Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
...

43 8
This is the reality I lived, I want you to experience it too.

No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.

BUT-

Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.

My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time. 

Yes it took a few months, but what it gave me back was my life- and that’s priceless. 

I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet. 

Comment CLASS below and I’ll send you the link to sign up!!

This is the reality I lived, I want you to experience it too.

No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.

BUT-

Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.

My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.

Yes it took a few months, but what it gave me back was my life- and that’s priceless.

I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.

Comment CLASS below and I’ll send you the link to sign up!!
...

13 5
This is my vision for the masterclass I’m hosting next Monday.

I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.

Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong 
- saying no again to going out to eat with friends 

Find the freedom and confidence you’ve been looking for.

Comment CLASS below and I’ll send you the link to sign up!!

This is my vision for the masterclass I’m hosting next Monday.

I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.

Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends

Find the freedom and confidence you’ve been looking for.

Comment CLASS below and I’ll send you the link to sign up!!
...

11 3
Do any of those hit home? 
 If yes… comment MASTERCLASS below.. I got you

Do any of those hit home?
If yes… comment MASTERCLASS below.. I got you
...

14 3
I get asked this question about different foods at least once a week.

Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?

It’s all gonna get the same answer from me….

Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.

I’m hosting a Masterclass next week all about this.

⭐️5 Steps to Creating Your Own MS Diet⭐️

You’ll walk away with:

✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you. 

No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..

Come join me to learn the balanced way out of all or nothing food land.

Comment MASTERCLASS below and I’ll send you the link to sign up!!

I get asked this question about different foods at least once a week.

Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?

It’s all gonna get the same answer from me….

Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.

I’m hosting a Masterclass next week all about this.

⭐️5 Steps to Creating Your Own MS Diet⭐️

You’ll walk away with:

✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you.

No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..

Come join me to learn the balanced way out of all or nothing food land.

Comment MASTERCLASS below and I’ll send you the link to sign up!!
...

14 2
My mom will confirm, this was me HARD as a kid.

I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.

Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.

But I also understand that process is hard!! 
Sometimes getting support can help you move forward.

If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet

My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!

Comment MASTERCLASS below and I’ll send you the link to sign up!!

My mom will confirm, this was me HARD as a kid.

I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.

Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.

But I also understand that process is hard!!
Sometimes getting support can help you move forward.

If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet

My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!

Comment MASTERCLASS below and I’ll send you the link to sign up!!
...

15 1
It’s been a week for me… maybe you too?

Use this short video for a moment of peace and regulation.

What do you notice in your body and about your emotions when you exhale and drop your shoulders?

Or when you hear bird songs?

Notice what makes you feel more calm, relaxed and at peace. 
Do more of that..

It’s been a week for me… maybe you too?

Use this short video for a moment of peace and regulation.

What do you notice in your body and about your emotions when you exhale and drop your shoulders?

Or when you hear bird songs?

Notice what makes you feel more calm, relaxed and at peace.
Do more of that..
...

12 4
I get it… I was once in paralysis by analysis for years!!

I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS. 

BUT!! I need your help to narrow down what we’ll be talking about.

Which of these options sounds most helpful?
Comment the number below!!

Workshop ideas: 

1. Simple Nutrition for MS: what you need to know about eating for healing 

2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms

3. Education into Action: How to put the knowledge you have into action steps that make progress

4. Blend of it All: Education, steps to finding your own MS diet and how to get started

Want something else?? Tell me 👇🏼👇🏼

I get it… I was once in paralysis by analysis for years!!

I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS.

BUT!! I need your help to narrow down what we’ll be talking about.

Which of these options sounds most helpful?
Comment the number below!!

Workshop ideas:

1. Simple Nutrition for MS: what you need to know about eating for healing

2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms

3. Education into Action: How to put the knowledge you have into action steps that make progress

4. Blend of it All: Education, steps to finding your own MS diet and how to get started

Want something else?? Tell me 👇🏼👇🏼
...

7 3
FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.

Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.

It took me being at rock bottom, symptoms out of control and knowing I needed something else.

So I didn’t really “do anything” to be ready. 
I just was when I was.

If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you! 

Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!

Comment GUIDE below and I’ll send you the link to download!

FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.

Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.

It took me being at rock bottom, symptoms out of control and knowing I needed something else.

So I didn’t really “do anything” to be ready.
I just was when I was.

If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you!

Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!

Comment GUIDE below and I’ll send you the link to download!
...

15 7
I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.

But that is NOT my wish for you.

Hi 👋🏼 my name is Alissa and we do things differently around here.

My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.

This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.

I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.

If you’ve been wanting: 
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..

My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!

I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.

But that is NOT my wish for you.

Hi 👋🏼 my name is Alissa and we do things differently around here.

My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.

This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.

I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.

If you’ve been wanting:
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..

My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!
...

7 2
Or for when you’re trying to talk yourself out of being sick.. 🙋🏻‍♀️🙋🏻‍♀️😂😂

Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.

Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.

I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.

So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall. 
🧡🧡🧡

Or for when you’re trying to talk yourself out of being sick.. 🙋🏻‍♀️🙋🏻‍♀️😂😂

Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.

Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.

I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.

So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall.
🧡🧡🧡
...

39 4

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