Tysabri


Tysabri, also known as Natalizumab, is a once a month infusion for MS. It works differently than other MS meds by blocking white blood cells from entering the brain and spinal cord of individuals, or across the ‘blood brain barrier’. This is believed by many doctors to be a big factor in the damage caused by MS. Tysabri can cause many side effects, and for some they can be worse than for others. The common side effects are headache, fatigue, joint pain and depression. Often these can be mitigated by taking Tylenol prior to your infusion.
The history of Tysabri has been filled with controversy. After being approved for MS by the FDA, it had to be pulled due to patient deaths due to PML (progressive multifocal leukoencephalopathy ). PML is a very rare brain infection that usually leads to death or severe disability. Currently there is no treatment or cure for PML. PML has several risk factors including 1. Being positive for antibodies for the JC Virus 2. Prior use of immune-suppressants 3. Length of time taking Tysabri. The JC Virus is a common virus that many people have antibodies for (50-60% of people). But in individuals who have weakened immune systems, it can lead to PML. Many people still take Tysabri even if they are positive for JC Virus antibodies, that is a very individualized choice that each person has to make on their own. Due to the significant risk factor of PML, a database was created to follow every patient who is taking Tysabri called the TOUCH Program. Prior to a first infusion, an individual and their doctor must register with the program and will be contacted periodically to see how treatment is progressing. Because Tysabri has such a high risk, it was thought of for many years to be a drug that was used when others were not helpful, or as a last resort.
When I was presented with the idea of Tysabri several years ago, it initially scared the crap out of me. The idea that I had progressed to the next ‘level’ of meds, that my MS had become no longer able to be managed on other meds, that my doctor was calling it ‘aggressive’. But in reality it was aggressive. I had 3 relapses in a year and a half. When my doctor described the lesions of the last one he said they ‘aren’t subtle’. That really shook my husband and I. First, before any thoughts about the drug itself, I wanted to know if it was JC positive. That would direct my thoughts. Turns out I wasn’t, (but I keep getting tested every 6 months or so). What was I to do? I researched. A TON. And I found a very interesting trend. In the patient stories I found, they were literally back and forth, good to bad. One person said it was the worst experience of their life, then the next person said it saved their life. I discovered that it would be just like everything else, individualized. There would be no way of telling how I would react. My doctor was strongly recommending that I take it, he went so far as saying if it was his family, he’d feel comfortable telling them to take it.
In September of 2014 I started Tysabri. I can say it has been the best medication for MS I’ve done. The side effect I had most was fatigue. For the first 6-8 months, after the infusion I was EXHAUSTED. Just junk. But eventually that subsided. Now, I am able to have the infusion and go about my day. It is nice not having to think about medication daily. In terms of MS symptom management, I think it helped about 70-80%. I still was feeling pain, numbness and burning. But once I went strict AIP, everything went away 100%. I think Tysabri gave me a boost, then AIP took me the rest of the way.
Obviously there are many risks involved with Tysabri, that I still think about. I still continue to monitor my JC virus status, and if that changes someday then I’ll have to re-evaluate my status with Tysabri. I’m not sure if I’d continue with it if I was ever positive. I know many people do, but I don’t know if I would be comfortable with that. I guess I’ll have to cross that bridge if I ever get there.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

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What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs 

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport

What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
...

25 2
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS. 
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis

First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
...

10 0
5 Habits to Help MS Symptoms 

In no particular order:
• Food/ our diet
• Movement 
• Breathing 
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!

5 Habits to Help MS Symptoms

In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!
...

10 6
5 Underrated Supplements to help MS symptoms 

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?

5 Underrated Supplements to help MS symptoms

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?
...

10 0
5 things to keep in mind about nutrition and MS

1. Addition before subtraction 
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!

5 things to keep in mind about nutrition and MS

1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
...

12 1
Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style.. 
But unable to say no when asked to do anything.. 

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth

Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
...

22 2
Stress & MS!!

• How our nervous system should function 
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response

Stress & MS!!

• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
...

13 0
First, comment SAFE below and I’ll send you details on my course Embodied Resilience- 
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse. 

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t. 
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so. 

If you don’t feel safe in your body, meditation won’t “work”. 

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead: 
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud. 
- How did that feel to your mind and body? 

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience. 

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse. 

We’re still in pre-sale, so to get the best price grab your spot now!! 

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior

First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse.

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.

If you don’t feel safe in your body, meditation won’t “work”.

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.

We’re still in pre-sale, so to get the best price grab your spot now!!

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
...

5 3
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
 I’ll tell you about the rest of the process too. 

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems

This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
...

18 5
More ways my life has changed 
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things 
- conflicts are shorter with the hubby
- I’m able to ask for what I need 
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs 
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too” 
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness

More ways my life has changed
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
...

19 3
Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress? 

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving

Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
...

18 3

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