Vision Issues and Treatments


Problems with vision are a common first symptom of MS and can appear quite suddenly. Thankfully, vision issues will usually resolve with proper treatment and time. Proper treatment will often consist of a round of IV steroids, and possibly oral steroids as well. Optic Neuritis is the most well known vision issue in the MS community, however there are several others that can show up as well, which we will dive into! What first brought me to the doctor, was a case of Optic Neuritis, so I am also lumped into this category: “vision issue as first symptom” .

When I was thinking about this topic, I wanted to know why vision issues are usually the first sign our bodies are in distress. Why is that such a common thread? There must be something there. Currently, the only thing I can find is that is a “definable” symptom. It’s not vague like numbness or tingling. There is actually data that can be collected when vision fails, a doctor can see the nerve that is angry and hurting. But there has to be more, the hunt for information will go on.

OPTIC NEURITIS

Optic Neuritis is caused by inflammation of the optic nerve, which connects the eye to the brain. The inflammation causes the symptoms which include eye pain, changes in color perception, graying of vision or loss of peripheral vision. It usually affects one eye at a time, but can affect both eyes, however, that is rare. Optic Neuritis can happen once, or multiple times during a persons life, as with everything else, it’s all individualized.

Treatment for Optic Neuritis is usually done with IV steroids, and occasionally a taper with oral steroids. As with most symptoms, steroids will calm inflammation, but will not speed the return to “normalcy” or change how well you’ll see after the episode of Optic Neuritis has cleared. Most individuals will find they eventually return to 20-20 vision in high contrast situations, so bright daylight they see fine. However, many individuals find that in low contrast situations, like dawn or dusk, their visual acuity/sharpness is still impaired. Some individuals find that their vision issues linger long after the inflammation has cleared, and this can lead to becoming legally blind.

DIPLOPIA

Diplopia is “Double Vision” that can be caused by a variety of things, but mostly caused by the eye muscles being weak or imbalanced, which causes the two images created by the eyes to not be fused together properly. It can also be caused by lesions in the brain stem or cerebellum. Diplopia can come and go, especially if fatigued or if straining your eyes (working on your computer too much?) and will often improve with rest.

Diplopia will usually resolve itself without treatment, but for some acute cases, IV steroids might be needed. Often times patching an eye for a short periods throughout the day (like for driving) might be helpful, but isn’t used in long term treatments as the eye will become weaker and accustomed to the non-use. There are special eye glasses that can be used in treatment as well, and also surgery, but that should be considered as a last resort, as resolving Diplopia can take a year or more in some cases.

NYSTAGMUS

Nystagmus is when the eyes will make uncontrolled, rapid, vertical or horizontal movements and is caused by damage to nerves and parts of the brain that control eye movement. Often times this occurs during a relapse, but may continue afterwards as well. These movements may be mild and unnoticed by the individual (only noticed by those worried individuals around them) or they may be more severe and interfere with vision. If severe enough to be noticed by the individual, Nystagmus may cause issues with depth perception and balance. Someone with severe Nystagmus may perceive their world as always moving and can contribute to feeling sick or unbalanced. Medication and special eyeglasses are the common treatments for this issue.

MY VISION JOURNEY

As I alluded to earlier, I started out my MS journey with Optic Neuritis, this is what first prompted me to head to the doctor. After several weeks of blurry vision in my left eye, I figured I should get it checked out. A few eye exams, some MRI’s, and a spinal tap later, I had an MS diagnosis. However, I never got direct treatment for the Optic Neuritis. Once we finally figured out what it was, it had been about a month since it began, a bit late to start IV steroids, so said the doc. So I just let it run it’s course, which ended up being fine. I don’t remember how long I dealt with the symptoms of it for, I just know it eventually went away. Now, when I get overheated, my eyesight starts to fade, and when it is low light, I have trouble seeing. But overall, I have my vision back.

Regardless of the vision issue that you may be experiencing, there are treatments available and a positive prognosis ahead. The vast majority of individuals will regain their vision, it may just take some time. But that seems to be the case with everything else in the MS world, right? I feel a new saying coming on.. “Time heals all…relapses?”

As always, let me know your thoughts in the comments! I love hearing from you!

And sign up here—> bit.ly/LissMS to get the latest and greatest about the LissMS Community!

 

 

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa. 
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis. 

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition 
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management 

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
...

1 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge
...

0 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain
...

10 5
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel. 

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️ 

Your possibilities are endless! 

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms

It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️

Your possibilities are endless!

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms
...

16 4
Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system. 

#LissMS #multiplesclerosis #nervoussystemregulation

Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system.

#LissMS #multiplesclerosis #nervoussystemregulation
...

13 1
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden

First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden
...

17 0
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all. 

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so. 

#lissms #multiplesclerosis #thisisms #lifewithms

Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so.

#lissms #multiplesclerosis #thisisms #lifewithms
...

35 4
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer… 
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior

I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
...

53 3
When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name 

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing

When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
...

16 2
But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24. 
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst. 

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do. 

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids. 

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list 

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity

But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
...

17 2
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.. 

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in 

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport

I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
...

14 3

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