“I need you to pinch me. But I need you to pinch me hard”
The sun was already reaching through the blinds when I opened my eyes. It seemed like a normal day, it felt like a normal day. I lingered in bed for a few more moments, wishing I didn’t have to leave it’s comfort. Begrudgingly I got up and went to brush my teeth. Standing there at the bathroom sink, I quickly realized something wasn’t quite right. My right arm felt a little weird, and as I thought about it, so did my right leg. I touched my upper arm with my fingertips, then tried to pinch myself. Nothing. I touched my calf in the same way. Nothing. I gasped and ran into the bedroom to wake my husband.
My husband was barely awake, and couldn’t quite comprehend my crazy request. I don’t blame him, it’s not every day that I’m asking him to pinch me, and hard at that. But I didn’t quite comprehend what was going on either, just a few minutes ago everything was fine, everything was normal. I was laying in bed, comfortable and sleeping, and the world was the same as it was when I went to bed. But now, everything had changed.
This was the start of my first relapse, my entire right side had gone completely numb. I had never experienced sensory symptoms before and boy was I in for a surprise. I’ve read articles that say sensory symptoms are uncomfortable, but not debilitating. I call BS on that. Those articles are obviously written by people who have never experienced such sensations. Because the numbness and subsequent feelings that followed were quite debilitating, in my opinion.
Numbness and tingling are just two of the sensory symptoms that can accompany MS. Others include feelings of itchiness, burning, buzzing or vibrating. (Pain is also common with MS, and sensory in nature, but that will be addressed in another MSMonday article, I think it deserves it’s own). The technical term for these sensory symptoms, or altered sensations are parenthesias. These sensations can affect any part of the body, arms, legs, face, nothing is immune. These feelings, or lack there of, are a direct result of lesions on the brain or spinal cord that have interrupted nerve signal transmission between the brain and body. Sensory symptoms can be constant or intermittent. They can also very in intensity, appear at different times during the day or come in waves. No two sensory symptoms are alike.
Sensory symptoms can be quite debilitating and cause other issues as well. For example, if you have numbness in your hands you might have difficulty writing, holding things or being able to tell the temperature of a hot stove that you just put your hand on by accident. If your feet or legs are affected, you might have trouble walking or fall. Sensory symptoms that affect the genital region might lead to sexual dysfunction and cause difficulty within relationships (another MSMonday topic to be discussed later).
The “MS hug” is also a common sensory symptom and is attaining feeling around your chest or abdomen. This sensation can be just annoying or extremely painful. It is caused by the intercostal muscles between each rib going into spasm, these muscles hold your ribs together and expand and contract as you breathe and move. When these muscles are in spasm, just like any other muscle being in spasm, it is difficult to move them and often very painful. The MS hug can last from a few seconds, to a few hours, and for some people a few days.
What can be done about these sometimes annoying sometimes debilitating sensory symptoms? Often times sensory symptoms begin as a relapse, and IV steroids are often recommended and used to treat the symptoms. If symptoms persist after the course of steroids, there are several medications available for tingling and neuropathic pain, Neurontin (gabapentin) or Lyrica are two commonly used. After acute treatment, if needed, one of the best things that can be done, cliché as it is, is to know your triggers to sensory symptoms. Pay close attention to your body and notice when they start. What were you doing when they began? What were you doing earlier in the day? I know for me, I can’t wear skinny pants for an extended period time, or else my legs will go crazy. Finding these specifics out, can be a lifesaver.
What are your symptoms and what are your triggers? Have you taken the time to find them out yet? Being aware of your body and it’s reactions are critical in making it through life with this disease. Head to my coaching page if you’re interested in learning more about how I can help you figure these, and other triggers out.
By that Saturday afternoon, that had started out as a lazy June day, I was in the hospital getting my first round of IV steroids. It was frightening, nerve-wracking and a million other emotions. But I was just beginning my sensory journey. I would soon experience extreme sensitivity, tingling, burning and pain. I still experience these to this day, but not nearly at the intensity that I did several years ago, (many thanks to Paleo and AIP).
Whoever said sensory symptoms are not debilitating, has never walked in a numb/tingling/burning persons shoes.
follow along on Instagram:
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
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