“I need you to pinch me. But I need you to pinch me hard”
The sun was already reaching through the blinds when I opened my eyes. It seemed like a normal day, it felt like a normal day. I lingered in bed for a few more moments, wishing I didn’t have to leave it’s comfort. Begrudgingly I got up and went to brush my teeth. Standing there at the bathroom sink, I quickly realized something wasn’t quite right. My right arm felt a little weird, and as I thought about it, so did my right leg. I touched my upper arm with my fingertips, then tried to pinch myself. Nothing. I touched my calf in the same way. Nothing. I gasped and ran into the bedroom to wake my husband.
My husband was barely awake, and couldn’t quite comprehend my crazy request. I don’t blame him, it’s not every day that I’m asking him to pinch me, and hard at that. But I didn’t quite comprehend what was going on either, just a few minutes ago everything was fine, everything was normal. I was laying in bed, comfortable and sleeping, and the world was the same as it was when I went to bed. But now, everything had changed.
This was the start of my first relapse, my entire right side had gone completely numb. I had never experienced sensory symptoms before and boy was I in for a surprise. I’ve read articles that say sensory symptoms are uncomfortable, but not debilitating. I call BS on that. Those articles are obviously written by people who have never experienced such sensations. Because the numbness and subsequent feelings that followed were quite debilitating, in my opinion.
Numbness and tingling are just two of the sensory symptoms that can accompany MS. Others include feelings of itchiness, burning, buzzing or vibrating. (Pain is also common with MS, and sensory in nature, but that will be addressed in another MSMonday article, I think it deserves it’s own). The technical term for these sensory symptoms, or altered sensations are parenthesias. These sensations can affect any part of the body, arms, legs, face, nothing is immune. These feelings, or lack there of, are a direct result of lesions on the brain or spinal cord that have interrupted nerve signal transmission between the brain and body. Sensory symptoms can be constant or intermittent. They can also very in intensity, appear at different times during the day or come in waves. No two sensory symptoms are alike.
Sensory symptoms can be quite debilitating and cause other issues as well. For example, if you have numbness in your hands you might have difficulty writing, holding things or being able to tell the temperature of a hot stove that you just put your hand on by accident. If your feet or legs are affected, you might have trouble walking or fall. Sensory symptoms that affect the genital region might lead to sexual dysfunction and cause difficulty within relationships (another MSMonday topic to be discussed later).
The “MS hug” is also a common sensory symptom and is attaining feeling around your chest or abdomen. This sensation can be just annoying or extremely painful. It is caused by the intercostal muscles between each rib going into spasm, these muscles hold your ribs together and expand and contract as you breathe and move. When these muscles are in spasm, just like any other muscle being in spasm, it is difficult to move them and often very painful. The MS hug can last from a few seconds, to a few hours, and for some people a few days.
What can be done about these sometimes annoying sometimes debilitating sensory symptoms? Often times sensory symptoms begin as a relapse, and IV steroids are often recommended and used to treat the symptoms. If symptoms persist after the course of steroids, there are several medications available for tingling and neuropathic pain, Neurontin (gabapentin) or Lyrica are two commonly used. After acute treatment, if needed, one of the best things that can be done, cliché as it is, is to know your triggers to sensory symptoms. Pay close attention to your body and notice when they start. What were you doing when they began? What were you doing earlier in the day? I know for me, I can’t wear skinny pants for an extended period time, or else my legs will go crazy. Finding these specifics out, can be a lifesaver.
What are your symptoms and what are your triggers? Have you taken the time to find them out yet? Being aware of your body and it’s reactions are critical in making it through life with this disease. Head to my coaching page if you’re interested in learning more about how I can help you figure these, and other triggers out.
By that Saturday afternoon, that had started out as a lazy June day, I was in the hospital getting my first round of IV steroids. It was frightening, nerve-wracking and a million other emotions. But I was just beginning my sensory journey. I would soon experience extreme sensitivity, tingling, burning and pain. I still experience these to this day, but not nearly at the intensity that I did several years ago, (many thanks to Paleo and AIP).
Whoever said sensory symptoms are not debilitating, has never walked in a numb/tingling/burning persons shoes.
follow along on Instagram:
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
I think I’ve said this in every group I’ve run and with every client I meet with.
(A gross oversimplification disclaimer)
But this:
people pleasing, being all or nothing, perfectionist (I could go on)
Is (part of) why we got MS.
These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.
Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.
•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)
Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.
Comment HHMS below and I’ll send you the link.
I think I’ve said this in every group I’ve run and with every client I meet with.
(A gross oversimplification disclaimer)
But this:
people pleasing, being all or nothing, perfectionist (I could go on)
Is (part of) why we got MS.
These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.
Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.
•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)
Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.
Comment HHMS below and I’ll send you the link.
Everything I say is without judgment, cause I used to do all of this too.
Only sticking with something new for a week, getting so excited for it helping, then changing it up cause “it didn’t work” by the end of the week.
But in reality I never gave it a chance.
This roller coaster has to stop!!
Join me in HHMS to hop off the coaster 🎢
Everything I say is without judgment, cause I used to do all of this too.
Only sticking with something new for a week, getting so excited for it helping, then changing it up cause “it didn’t work” by the end of the week.
But in reality I never gave it a chance.
This roller coaster has to stop!!
Join me in HHMS to hop off the coaster 🎢
At some point you have to start trusting the things you’re doing will help and stop jumping to a new thing each week.
Giving up gluten one week?
Then dairy the next?
Maybe jumping into an exercise class a week later?
At some point you gotta pick 1-3 things and stick with them long enough to give them time to make changes in your body!!
Not just a day or week either.
Yes change can happen fast, but usually not that fast. You need to stick with things for long enough to see if they’ll help.
Often you give up before it has a chance to shift anything.
If you’ve been bouncing from thing to thing, throwing random things at the wall and hoping they stick, hoping something will move the needle an inch so you feel even a little bit better..
My course Holistically Healing MS is for you.
This is the place to find what works for you, to decrease your MS symptoms.
Comment HHMS below and I’ll send you details.
At some point you have to start trusting the things you’re doing will help and stop jumping to a new thing each week.
Giving up gluten one week?
Then dairy the next?
Maybe jumping into an exercise class a week later?
At some point you gotta pick 1-3 things and stick with them long enough to give them time to make changes in your body!!
Not just a day or week either.
Yes change can happen fast, but usually not that fast. You need to stick with things for long enough to see if they’ll help.
Often you give up before it has a chance to shift anything.
If you’ve been bouncing from thing to thing, throwing random things at the wall and hoping they stick, hoping something will move the needle an inch so you feel even a little bit better..
My course Holistically Healing MS is for you.
This is the place to find what works for you, to decrease your MS symptoms.
Comment HHMS below and I’ll send you details.
Don’t get me wrong, there are def days where I feel like a MS trash pile, but those days don’t outnumber my good days anymore.
This is what is possible for you, I know it.
Because I’ve been there too:
- feeling exhausted, in pain, brain foggy and all tingly
- feeling like I was stuck like this forever
- feeling completely out of control and lost
But now:
- my daily symptoms aren’t really daily anymore
- I know that sometimes I won’t feel great or even might have a relapse- but I know I have tools to care for myself so it’s not my forever
- feeling trust in myself and the future
It took me years to get here.
And I’ve put what I learned in those years into Holistically Healing MS.
This is an 8 week course to start your MS healing journey.
Join me and get your life back.
Comment HHMS below and I’ll send you a link to learn more
Don’t get me wrong, there are def days where I feel like a MS trash pile, but those days don’t outnumber my good days anymore.
This is what is possible for you, I know it.
Because I’ve been there too:
- feeling exhausted, in pain, brain foggy and all tingly
- feeling like I was stuck like this forever
- feeling completely out of control and lost
But now:
- my daily symptoms aren’t really daily anymore
- I know that sometimes I won’t feel great or even might have a relapse- but I know I have tools to care for myself so it’s not my forever
- feeling trust in myself and the future
It took me years to get here.
And I’ve put what I learned in those years into Holistically Healing MS.
This is an 8 week course to start your MS healing journey.
Join me and get your life back.
Comment HHMS below and I’ll send you a link to learn more
At one point I wanted:
•To be able to comfortably go on a walk again with my boyfriend (now husband)
•To not feel like an anxious mess every time I thought about the future (and potential disability)
• To not have waves of pain coursing throughout my body
I don’t want those things anymore,
because I have them all.
No, I’m not totally cured of feeling anxious about the future, and I still have days (like today tbh) where I feel like a load of 💩
The difference is:
I can manage all the symptoms
and anxiety
and feeling like 💩
better and differently than I did before, using all the tools I have accumulated over the 15(!!) years I’ve lived with MS as a patient and practitioner.
And these are the tools I share with my clients.
And the tools I share with you inside my Holistically Healing MS course.
This course is an 8 week journey into supporting your MS body so that it can begin to heal.
I know you have the same dreams as I did,
I know because you’ve told me we’ve talked about them 🤩
I want you to have those things too.
Holistically Healing MS waitlist is closing tomorrow, comment HEALING and I’ll add you to the list.
At one point I wanted:
•To be able to comfortably go on a walk again with my boyfriend (now husband)
•To not feel like an anxious mess every time I thought about the future (and potential disability)
• To not have waves of pain coursing throughout my body
I don’t want those things anymore,
because I have them all.
No, I’m not totally cured of feeling anxious about the future, and I still have days (like today tbh) where I feel like a load of 💩
The difference is:
I can manage all the symptoms
and anxiety
and feeling like 💩
better and differently than I did before, using all the tools I have accumulated over the 15(!!) years I’ve lived with MS as a patient and practitioner.
And these are the tools I share with my clients.
And the tools I share with you inside my Holistically Healing MS course.
This course is an 8 week journey into supporting your MS body so that it can begin to heal.
I know you have the same dreams as I did,
I know because you’ve told me we’ve talked about them 🤩
I want you to have those things too.
Holistically Healing MS waitlist is closing tomorrow, comment HEALING and I’ll add you to the list.
I was talking to a client this week and she talked about how mad she was that she has a chronic illness.
How frustrated she was that she has to “manage this dumb disease” and “has to pay attention to everything she does”.
She also went onto say that she really wants to do all the helpful things, but just can’t get out of these stuck and frustrated feelings.
I get it- I definitely remember feeling similar feelings years ago. And I’m sure you’ve been here as well and might still be there at times.
I wanted to share the reframe that really helped her:
I told her, instead of focusing on “managing your disease”,
what if you thought about how you can set your future self up for feeling better/success/health.
Take the disease totally out of it.
What is 1 thing you can do to help your future self today?
She paused for a moment and I could almost see the light bulb go off in real time (one of my fav moments lol).
She said: that feels so much better and more doable.
If you’ve also been struggling with frustrated feelings about “managing your disease” these are the types of conversations we’ll have in Holistically Healing MS.
Yes I’ll be sharing about diet strategies, movement to help symptoms and stress management techniques, but we’ll also dive deeper into your feelings about it all.
Over the many years I’ve been working with clients, I’ve discovered that these thoughts, feelings and beliefs you have about yourself and your health are the biggest thing to stand in your way.
And when you have support to work through these feelings, you’re able to feel so much better faster.
Only those on the HHMS waitlist will get the presale price, and the opportunity to join the waitlist is dwindling (waitlist gets access next weekend!).
Comment WAITLIST below and I’ll add you to the list!!
I was talking to a client this week and she talked about how mad she was that she has a chronic illness.
How frustrated she was that she has to “manage this dumb disease” and “has to pay attention to everything she does”.
She also went onto say that she really wants to do all the helpful things, but just can’t get out of these stuck and frustrated feelings.
I get it- I definitely remember feeling similar feelings years ago. And I’m sure you’ve been here as well and might still be there at times.
I wanted to share the reframe that really helped her:
I told her, instead of focusing on “managing your disease”,
what if you thought about how you can set your future self up for feeling better/success/health.
Take the disease totally out of it.
What is 1 thing you can do to help your future self today?
She paused for a moment and I could almost see the light bulb go off in real time (one of my fav moments lol).
She said: that feels so much better and more doable.
If you’ve also been struggling with frustrated feelings about “managing your disease” these are the types of conversations we’ll have in Holistically Healing MS.
Yes I’ll be sharing about diet strategies, movement to help symptoms and stress management techniques, but we’ll also dive deeper into your feelings about it all.
Over the many years I’ve been working with clients, I’ve discovered that these thoughts, feelings and beliefs you have about yourself and your health are the biggest thing to stand in your way.
And when you have support to work through these feelings, you’re able to feel so much better faster.
Only those on the HHMS waitlist will get the presale price, and the opportunity to join the waitlist is dwindling (waitlist gets access next weekend!).
Comment WAITLIST below and I’ll add you to the list!!
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
Do any of those hit home?
If yes… comment MASTERCLASS below.. I got you
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