“I Need You to Pinch Me” (Sensory Symptoms)


“I need you to pinch me. But I need you to pinch me hard”

The sun was already reaching through the blinds when I opened my eyes. It seemed like a normal day, it felt like a normal day. I lingered in bed for a few more moments, wishing I didn’t have to leave it’s comfort. Begrudgingly I got up and went to brush my teeth. Standing there at the bathroom sink, I quickly realized something wasn’t quite right. My right arm felt a little weird, and as I thought about it, so did my right leg. I touched my upper arm with my fingertips, then tried to pinch myself. Nothing. I touched my calf in the same way. Nothing. I gasped and ran into the bedroom to wake my husband.

My husband was barely awake, and couldn’t quite comprehend my crazy request. I don’t blame him, it’s not every day that I’m asking him to pinch me, and hard at that. But I didn’t quite comprehend what was going on either, just a few minutes ago everything was fine, everything was normal. I was laying in bed, comfortable and sleeping, and the world was the same as it was when I went to bed. But now, everything had changed.

This was the start of my first relapse, my entire right side had gone completely numb. I had never experienced sensory symptoms before and boy was I in for a surprise. I’ve read articles that say sensory symptoms are uncomfortable, but not debilitating. I call BS on that. Those articles are obviously written by people who have never experienced such sensations. Because the numbness and subsequent feelings that followed were quite debilitating, in my opinion.

Numbness and tingling are just two of the sensory symptoms that can accompany MS. Others include feelings of itchiness, burning, buzzing or vibrating. (Pain is also common with MS, and sensory in nature, but that will be addressed in another MSMonday article, I think it deserves it’s own). The technical term for these sensory symptoms, or altered sensations are parenthesias. These sensations can affect any part of the body, arms, legs, face, nothing is immune. These feelings, or lack there of, are a direct result of lesions on the brain or spinal cord that have interrupted nerve signal transmission between the brain and body. Sensory symptoms can be constant or intermittent. They can also very in intensity, appear at different times during the day or come in waves. No two sensory symptoms are alike.

Sensory symptoms can be quite debilitating and cause other issues as well. For example, if you have numbness in your hands you might have difficulty writing, holding things or being able to tell the temperature of a hot stove that you just put your hand on by accident. If your feet or legs are affected, you might have trouble walking or fall. Sensory symptoms that affect the genital region might lead to sexual dysfunction and cause difficulty within relationships (another MSMonday topic to be discussed later).

The “MS hug” is also a common sensory symptom and is attaining feeling around your chest or abdomen. This sensation can be just annoying or extremely painful. It is caused by the intercostal muscles between each rib going into spasm, these muscles hold your ribs together and expand and contract as you breathe and move. When these muscles are in spasm, just like any other muscle being in spasm, it is difficult to move them and often very painful. The MS hug can last from a few seconds, to a few hours, and for some people a few days.

What can be done about these sometimes annoying sometimes debilitating sensory symptoms? Often times sensory symptoms begin as a relapse, and IV steroids are often recommended and used to treat the symptoms. If symptoms persist after the course of steroids, there are several medications available for tingling and neuropathic pain, Neurontin (gabapentin) or Lyrica are two commonly used. After acute treatment, if needed, one of the best things  that can be done, cliché as it is, is to know your triggers to sensory symptoms. Pay close attention to your body and notice when they start. What were you doing when they began? What were you doing earlier in the day? I know for me, I can’t wear skinny pants for an extended period time, or else my legs will go crazy. Finding these specifics out, can be a lifesaver.

What are your symptoms and what are your triggers? Have you taken the time to find them out yet? Being aware of your body and it’s reactions are critical in making it through life with this disease. Head to my coaching page if you’re interested in learning more about how I can help you figure these, and other triggers out.

By that Saturday afternoon, that had started out as a lazy June day, I was in the hospital getting my first round of IV steroids. It was frightening, nerve-wracking and a million other emotions. But I was just beginning my sensory journey. I would soon experience extreme sensitivity, tingling, burning and pain. I still experience these to this day, but not nearly at the intensity that I did several years ago, (many thanks to Paleo and AIP).

Whoever said sensory symptoms are not debilitating, has never walked in a numb/tingling/burning persons shoes.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

Growing your own fruit or veggie is a great way to eat more of them!!

It may seem daunting, but it’s actually pretty easy.

Some easy things to grow if you’re just starting out:

🥬Leafy greens (I’m harvesting my kale here!)
🫛Peas
🍅Tomatoes
🍓Strawberries 
🫑Peppers
🥒Squash & zucchini 
🫘Beans

I’ve grown some type of veggie for years now, usually squash, peas and tomatoes (for Scott lol).

Do you have a garden? That can be in ground, raised or even containers like me.

What do you like to grow?? Tell me below!!

PS- need something to do with the veggies you grow?? 

I just dropped my new Eating for MS Guide, where I talk all about what foods are best for MS and give you some recipe ideas so it’s super simple for you to find symptom relief through food too.

Comment GUIDE below and I’ll send you the link to download!! (And it’s free!!)

Growing your own fruit or veggie is a great way to eat more of them!!

It may seem daunting, but it’s actually pretty easy.

Some easy things to grow if you’re just starting out:

🥬Leafy greens (I’m harvesting my kale here!)
🫛Peas
🍅Tomatoes
🍓Strawberries
🫑Peppers
🥒Squash & zucchini
🫘Beans

I’ve grown some type of veggie for years now, usually squash, peas and tomatoes (for Scott lol).

Do you have a garden? That can be in ground, raised or even containers like me.

What do you like to grow?? Tell me below!!

PS- need something to do with the veggies you grow??

I just dropped my new Eating for MS Guide, where I talk all about what foods are best for MS and give you some recipe ideas so it’s super simple for you to find symptom relief through food too.

Comment GUIDE below and I’ll send you the link to download!! (And it’s free!!)
...

13 6
⭐️Changing my diet!!⭐️

First, like and save this post so you can come back to it if you need.

It took me years to finally be ready to consider changing my diet to help MS symptoms.

It actually took a pretty bad rock bottom moment, but that’s a story for another day.

I get it if you feel like this process is hard and daunting.

Start here:
⭐️YOU DONT HAVE TO CHANGE EVERYTHING AT ONCE
⭐️Pick a meal to switch up, include a few different foods a week or increase protein.
⭐️Get curious about how the foods you’re currently eating are making you feel

Those are just 3 suggestions to get you started.

Want more information about Eating for MS?

Like what (imo) you should include in your diet, how to eliminate foods, and meal ideas??
So that you too can feel so much better in your body and get your life back?

I just dropped a new Eating for MS Guide, full of all the info you need to get started on your own food journey.

Comment GUIDE below and I’ll send you the link! 
🧡🧡🧡

⭐️Changing my diet!!⭐️

First, like and save this post so you can come back to it if you need.

It took me years to finally be ready to consider changing my diet to help MS symptoms.

It actually took a pretty bad rock bottom moment, but that’s a story for another day.

I get it if you feel like this process is hard and daunting.

Start here:
⭐️YOU DONT HAVE TO CHANGE EVERYTHING AT ONCE
⭐️Pick a meal to switch up, include a few different foods a week or increase protein.
⭐️Get curious about how the foods you’re currently eating are making you feel

Those are just 3 suggestions to get you started.

Want more information about Eating for MS?

Like what (imo) you should include in your diet, how to eliminate foods, and meal ideas??
So that you too can feel so much better in your body and get your life back?

I just dropped a new Eating for MS Guide, full of all the info you need to get started on your own food journey.

Comment GUIDE below and I’ll send you the link!
🧡🧡🧡
...

33 23
Or, comment WAITLIST to be notified when it’s ready!!

I’ve been talking to many of you about your questions regarding eating for MS.

There’s lots of confusion about what is “right” and “wrong”. 

Lemme tell you, I’ll answer this in the guide for sure- and it prob won’t be the answer you’re expecting?

Drop any other questions below and I’ll answer them!!

Or, comment WAITLIST to be notified when it’s ready!!

I’ve been talking to many of you about your questions regarding eating for MS.

There’s lots of confusion about what is “right” and “wrong”.

Lemme tell you, I’ll answer this in the guide for sure- and it prob won’t be the answer you’re expecting?

Drop any other questions below and I’ll answer them!!
...

18 7
:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::

When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.

It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.

It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.

And even then, my neuros answer was 🤷🏻‍♂️.

If you also haven’t considered it, let me be the first to tell you:

✨IT’S ABSOLUTELY POSSIBLE✨ 
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.

What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.

I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.

I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!

:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::

When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.

It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.

It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.

And even then, my neuros answer was 🤷🏻‍♂️.

If you also haven’t considered it, let me be the first to tell you:

✨IT’S ABSOLUTELY POSSIBLE✨ 
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.

What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.

I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.

I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
...

28 22
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!

Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!

Who knows, this may bomb, but the idea is fun!!

Ask away!

I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!

Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!

Who knows, this may bomb, but the idea is fun!!

Ask away!
...

40 41
Last week I wanted 0 to do with working out. 

I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set. 

However.. I have some goals and abilities I want to maintain.

Strength training is one way of the consistent ways I help myself to feel good despite living with MS. 

So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went. 

I gave myself permission to go lighter and slower, which helped me be successful in doing it at all. 

I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for. 

I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving. 

✨Following through with my daily habits is a form of self care.✨

If you’re done with thinking: 
“I know what to do, I just can’t seem to do it” 
DM me ACTION and we’ll chat

Last week I wanted 0 to do with working out.

I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.

However.. I have some goals and abilities I want to maintain.

Strength training is one way of the consistent ways I help myself to feel good despite living with MS.

So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.

I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.

I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.

I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.

✨Following through with my daily habits is a form of self care.✨

If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
...

17 4
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband 
Or walk 8 miles around NYC with my sister 
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day 

This is possible because: 
✨Yes, the medication I’m on helps for sure 

But truthfully my life has improved so much because of:

✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)

✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)

✨This is a mindset that doesn’t require perfection✨

This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)

Which THEN gives me the motivation and desire to keep doing what I’m doing.

✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going. 

It’s not quick or sexy, its actually rather boring.
But boring is actually way better!! 

If you want a life where you:
Feel good in your body, 
Have energy to spend on your friends and family, 
Don’t think about what the MS symptom of the day will be..

I help you create that life for yourself in my signature program, Holistically Healing MS. 

Today is the last day it’s on FLASH SALE… 
Comment MOUNTAIN below and I’ll send you the details!!

Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day

This is possible because:
✨Yes, the medication I’m on helps for sure

But truthfully my life has improved so much because of:

✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)

✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)

✨This is a mindset that doesn’t require perfection✨

This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)

Which THEN gives me the motivation and desire to keep doing what I’m doing.

✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.

It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!

If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..

I help you create that life for yourself in my signature program, Holistically Healing MS.

Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
...

39 2
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness. 

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc. 

But where did this get US? The women behind the behaviors? 
Sick, anxious and depressed- that’s where. 

Healing MS or any autoimmune disease can’t happen until you put yourself first. 

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others. 

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself. 

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and 
discarded for voicing her needs. 

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent? 

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors. 

This is the “stress management” you’ve been looking for and what will change your life. 

My program Embodied Resilience is your road map to how. 

Drop a 🌀🌀 in the comments and I’ll send you details

If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.

We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.

But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.

Healing MS or any autoimmune disease can’t happen until you put yourself first.

That doesn’t mean all of a sudden become a b*tch and ignore the world.

It means considering yourself as much as you consider others.

One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.

She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.

No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?

Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.

This is the “stress management” you’ve been looking for and what will change your life.

My program Embodied Resilience is your road map to how.

Drop a 🌀🌀 in the comments and I’ll send you details
...

52 10
It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life. 

And it’s ok if that process takes longer than you “think it should” or want it too. 

You know what *won’t* help you when this happens? 
Being mean and judgemental to yourself. 

You’re not lazy and nothing is wrong with you, so stop saying that to yourself. 

You know what *will* help you when this happens?
Taking action. 
Action is the antidote to the fear and overwhelm you’re feeling. 

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable. 

Sustainable means “able to be maintained or held”- which is the goal for habits right? 

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again. 
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡

It’s ok if it takes time from learning about something to implementing it into your lifestyle.

There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.

And it’s ok if that process takes longer than you “think it should” or want it too.

You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.

You’re not lazy and nothing is wrong with you, so stop saying that to yourself.

You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.

But- in a whole different way than you have been trying.

The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.

Sustainable means “able to be maintained or held”- which is the goal for habits right?

Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)

We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)

If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.

And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
...

12 0
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression. 

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status 
- Education 
- Health care access
- Your community 
- Economic stability 

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters. 

What are your thoughts on this? I know it’s a highly charged topic for some!

One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.

The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.

Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability

I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.

What are your thoughts on this? I know it’s a highly charged topic for some!
...

35 5
Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡

Living with MS is hard.
Some days are harder, some easier.

If you’re in a season where it feels hard, I see you.

I believe in you.
🧡🧡🧡
...

22 2

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