‘Isn’t this what nightmares are made of?
Approximately half of all people who have MS will have cognitive dysfunction, or possibly more, if it goes unreported. Cognitive dysfunction is felt differently by each individual, what one person finds as a mild impairment, might render another unable to work. Cognitive issues can include trouble with memory and recall, attention, concentration, information processing and word recall among others as well. It is often listed as a “mild” to “moderate” impairment, however it doesn’t feel that way. Lets look closer at some of these specifics.
Short Term Memory and Recall
This is one of the most frequently reported cognitive issues in the MS community. Issues with short term memory often looks like walking into a room and forgetting why you went in there in the first place. Not remembering if you took your morning pills or not (one I struggle with often). Some times you may even repeat stories, or sentences, thinking you haven’t mentioned it, but in reality, you told it several times (another personal struggle).
Recall of information can also be inhibited. There have been several studies that have suggested that individuals with MS are capable of learning and storing of information just fine but have trouble recalling the information when needed (like duh). However, one article I read gave another answer to this issue. This article states that individuals with MS need a longer time to learn the new information from the start. When given adequate time to learn the information, recall of the information is the same as individuals without MS. This suggests that the issue lies in learning, not recall. Perhaps instead of memory and recall being our number one cognitive issue, it is really attention and processing! A new area of study, for sure!
Attention and Concentration
As I noted above, attention is something that people with MS struggle with greatly, probably more than we think as well. Staying on task can be difficult at times for non-MSers, but for us, it is a struggle all the time for sure. Staying on task at work, during conversations or while trying to follow directions (cooking anyone?) can be tough. Add in background noise or multiple conversations going on at once, and forget about it! And multi-tasking? Yikes! That is something of days gone by. I used be able to carry on a conversation while I “mindlessly” did another task. Not anymore.
Slower Speed of Information Processing
This includes all of the symptoms I listed above, but it also means that our brains struggle to take in and prioritize the information that we are receiving. This can show up as issues with processing spoken language, sensory and spatial information or abstract ideas such as social cues. In one study I read about, individuals with MS were able to preform well on cognitive tests, they just did so at much slower speeds as compared to their non-MS peers.
Verbal Fluency- Word Recall
Verbal fluency, or otherwise called issues with word recall, in my opinion, are one of the most frustrating cognitive symptoms. This is defined as the “tip-of-your-tongue” phenomenon. When the word you’re trying to think of is in your vocabulary, but it has escaped you for a moment. It can happen at a moments notice and can bring a sentence to a dead halt. You can even be looking at the object you’re trying to say the name of! And still nothing.
Why does Cognitive Dysfunction Happen?
Cognitive issues are generally caused by damage in the brain. Studies have shown that lesions in the cerebral hemisphere and damage within the gray matter are most significant when measuring cognitive dysfunction. It also seems that cognitive dysfunction is more prevalent in primary progressive MS then relapsing remitting MS, however anyone at any time in their disease can experience cognitive symptoms. Cognitive symptoms can also be temporarily made worse during other times such as during a pseudo-exacerbation, when in the heat, when fatigued or during a depressive state.
Ways to Manage Cognitive Dysfunction
There are many ways to manage cognitive problems. First and foremost, give yourself some grace and compassion. Dealing with MS in general is not easy, then beating yourself up about forgetting something at the store, or forgetting a task around the house, is not going to help. Symptoms thrive on stress, so making sure we are being as kind to ourselves as possible is important.
Second, (I give this advice often) start to be aware of yourself and your symptoms. Learn what specifically makes your cognitive issues better or worse. Maybe working with music on once was doable, but now not so much? Or you were once an auditory learner, but now you need more support? Really take some time and figure it out for yourself, it’s worth it.
Third, there are ways to “exercise your brain” and improve your cognitive abilities and these include memory and attention games. There are also other things you can do including improving organizational systems, alarms, planning and taking the time to really learn subjects. Doing the most demanding tasks when you are most awake is also a good idea.
My Experience
I’ve struggled with cognitive issues for many years. Although I would categorize them as “mild”, I still think they have a rather large impact on my life, and my quality of life. The main things I struggle with are memory, recall and word recall. One of my biggest strategies to help myself are lists, I have lists everywhere! At this point, I need to write everything down. If I don’t write it down, it will be gone forever. I’ve found this is frustrating for others a lot of the time too. Someone will tell me something or ask me to do something, and literally 30 seconds later it has evaporated from my brain. Which leaves me feeling terrible! But I know that I can’t take that on. All I can do is apologize and try better next time. Word recall is another symptom that I struggle with on a daily basis. I can be looking at the kitchen table, but for the life of me can’t remember the word table! Frustrating to say the least. But I know that the more I work on my difficulties, the better they’ll get. I think of it as Physical Therapy for my brain.
I scanned the room, looking from face to face, none of them sympathetic, until I looked at my boss. She knew my story, she could tell what happened, she was sympathetic. My eyes must have conveyed sheer panic, she seamlessly picked up where I left off, and picked me up where I had fallen.
follow along on Instagram:
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
Do any of those hit home?
If yes… comment MASTERCLASS below.. I got you
I get asked this question about different foods at least once a week.
Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?
It’s all gonna get the same answer from me….
Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.
I’m hosting a Masterclass next week all about this.
⭐️5 Steps to Creating Your Own MS Diet⭐️
You’ll walk away with:
✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you.
No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..
Come join me to learn the balanced way out of all or nothing food land.
Comment MASTERCLASS below and I’ll send you the link to sign up!!
I get asked this question about different foods at least once a week.
Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?
It’s all gonna get the same answer from me….
Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.
I’m hosting a Masterclass next week all about this.
⭐️5 Steps to Creating Your Own MS Diet⭐️
You’ll walk away with:
✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you.
No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..
Come join me to learn the balanced way out of all or nothing food land.
Comment MASTERCLASS below and I’ll send you the link to sign up!!
My mom will confirm, this was me HARD as a kid.
I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.
Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.
But I also understand that process is hard!!
Sometimes getting support can help you move forward.
If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet
My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!
Comment MASTERCLASS below and I’ll send you the link to sign up!!
My mom will confirm, this was me HARD as a kid.
I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.
Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.
But I also understand that process is hard!!
Sometimes getting support can help you move forward.
If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet
My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!
Comment MASTERCLASS below and I’ll send you the link to sign up!!
It’s been a week for me… maybe you too?
Use this short video for a moment of peace and regulation.
What do you notice in your body and about your emotions when you exhale and drop your shoulders?
Or when you hear bird songs?
Notice what makes you feel more calm, relaxed and at peace.
Do more of that..
It’s been a week for me… maybe you too?
Use this short video for a moment of peace and regulation.
What do you notice in your body and about your emotions when you exhale and drop your shoulders?
Or when you hear bird songs?
Notice what makes you feel more calm, relaxed and at peace.
Do more of that..
I get it… I was once in paralysis by analysis for years!!
I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS.
BUT!! I need your help to narrow down what we’ll be talking about.
Which of these options sounds most helpful?
Comment the number below!!
Workshop ideas:
1. Simple Nutrition for MS: what you need to know about eating for healing
2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms
3. Education into Action: How to put the knowledge you have into action steps that make progress
4. Blend of it All: Education, steps to finding your own MS diet and how to get started
Want something else?? Tell me 👇🏼👇🏼
I get it… I was once in paralysis by analysis for years!!
I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS.
BUT!! I need your help to narrow down what we’ll be talking about.
Which of these options sounds most helpful?
Comment the number below!!
Workshop ideas:
1. Simple Nutrition for MS: what you need to know about eating for healing
2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms
3. Education into Action: How to put the knowledge you have into action steps that make progress
4. Blend of it All: Education, steps to finding your own MS diet and how to get started
Want something else?? Tell me 👇🏼👇🏼
FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.
Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.
It took me being at rock bottom, symptoms out of control and knowing I needed something else.
So I didn’t really “do anything” to be ready.
I just was when I was.
If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you!
Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!
Comment GUIDE below and I’ll send you the link to download!
FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.
Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.
It took me being at rock bottom, symptoms out of control and knowing I needed something else.
So I didn’t really “do anything” to be ready.
I just was when I was.
If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you!
Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!
Comment GUIDE below and I’ll send you the link to download!
I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.
But that is NOT my wish for you.
Hi 👋🏼 my name is Alissa and we do things differently around here.
My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.
This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.
I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.
If you’ve been wanting:
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..
My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!
I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.
But that is NOT my wish for you.
Hi 👋🏼 my name is Alissa and we do things differently around here.
My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.
This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.
I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.
If you’ve been wanting:
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..
My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!
Or for when you’re trying to talk yourself out of being sick.. 🙋🏻♀️🙋🏻♀️😂😂
Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.
Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.
I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.
So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall.
🧡🧡🧡
Or for when you’re trying to talk yourself out of being sick.. 🙋🏻♀️🙋🏻♀️😂😂
Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.
Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.
I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.
So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall.
🧡🧡🧡
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