“I Never Cry” Pain


All I could do was stand and cry. I never cry. Or at least I try the hardest not to, especially in public. But this time it was in public, and I was crying, hard. Because I was hurting.

The pain had been coming off and on for days, but this day in particular was different. On this day it started a little stronger and earlier than normal. On this day, the pain was incredible and more intense. On this day, the pain was unbearable as it flowed around my body. It felt like waves rolling up and down my arms, leaving me totally unable and unwilling to move. I couldn’t concentrate on my work, I couldn’t make sense of any thoughts in my mind. I walked from my office up and down the hallway, trying to get the pain out of my body. Nothing made it go away.

 

Pain in Multiple Sclerosis is real. At one point in time, “medical professionals” thought that pain didn’t impact people with MS. That couldn’t be more wrong. It is estimated that 30-50% of individuals with MS will experience pain at some point during the course of their illness. However, I believe the rate of pain to be much higher than just 50%, I think it can be as high as 80%.

Pain is classified as either primary or secondary pain. Primary pain is caused by disease progression and demyelinization. Primary pain is usually the intense feelings of burning, shooting or gnawing pain. Secondary pain is usually musculoskeletal pain either caused by poor balance and posture, spasticity, unbalanced use of muscles or joints because of weakness etc. Pain in MS can also be classified as acute or chronic pain.

There are many different types of pain in MS. Often times pain and sensory symptoms can go hand-in-hand (as I mentioned last week) and sensory symptoms can sometimes increase and turn painful.

Acute pain:

  • Trigeminal Neuralgia. This is a real pain in the..face. This is often experienced as a stabbing or shooting pain usually felt on one side of the face in the jaw area or cheek. It can be very severe, and last only a few seconds. I can be triggered by a breeze going across your face, touching your face or even chewing. It can be confused with dental pain, but is caused by damage to the trigeminal nerve. Treatment usually includes medication to alter a nerve function, and sometimes surgical procedures if medication does not prove to be useful.
  • Lhermitte’s sign. This is a type of pain that if the neck is moved enough, pain will start at the neck and move quickly down the spine, feeling like an electric shock. This is caused by damage nerves that no longer transmit proper signals. There are several medications available to treat this, also several lifestyle treatments as well. There are postural adjustments that can be done and relaxation techniques that could improve Lhermitte’s sign too.
  • Burning, aching, girdling pain. I discussed these feeling last week when I was talking about sensory symptoms, but there is a large overlap between these feelings on a sensory level then pain level. Burning can quickly become painful, and usually starts out that way. Burning usually affect the legs but can affect the arms as well. Most of these feelings are often worse at night. Sometimes The affected limb is sensitive to touch and can often feel cold. The “MS Hug” is a feeling of constriction felt around the abdomen or chest, and can become quite painful as well. These types of feelings are caused by demyelination and there are medications available to treat them.

Chronic pain:

  • Burning, aching, pins and needles. This type of pain can be both acute and chronic, unfortunately. The treatment for this type of pain when it’s chronic is the same as acute pain.
  • Pain from spasticity. Spasticity can cause many types of issues and pain. Muscle spasms, cramps, tightness in joints are all manifestations of spasticity and can create significant musculoskeletal pain. Medications are available to treat this type of pain and the cause, often anti-inflammatory in nature. Regular stretching and exercise can also be very helpful with managing musculoskeletal pain.
  • Other muscle pain. General muscle pain can occur for various reasons. Whether it is altered gate, compensation for lack of mobility/weakness/pain or any other reason, pain can present itself at any time. Common treatments are medications, massage, acupuncture, ultrasound, physical therapy or heat.

Emotional stress

One of the most under appreciated aspects of pain in MS is the emotional toll it takes. Being in constant pain can hurt physically, but it can also hurt emotionally. Individuals who are in pain are at risk of depression, are more likely to isolate and have difficulty coping.

 

I’ve been in pain in numerous ways with MS. I’ve had Lhermitte’s sign (technically my first symptom), burning pain in my legs, severe pain in my arms and I believe I have had Trigeminal Neuralgia several times recently. I think pain has been one of my most prominent symptoms, unfortunately. I have been on Neurontin and am currently on Cymbalta to manage my pain. AIP has also helped my pain levels immensely as well.

Getting creative with treatments can be helpful when managing pain. Regular exercise and stretching can be helpful when managing musculoskeletal pain, also making sure to maintain a balance of sodium and potassium to deter cramps. Alternative therapies can be helpful as well, acupuncture, cognitive-behavioral therapy, biofeedback, relaxation training and hypnosis can be useful.

 

I found myself in the conference room, staring out the window when my best friend noticed I was there as she walked by. I didn’t realize at first I had been silently crying, but once she inquired about what was wrong, the flood gates opened.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs 

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport

What she also didn’t know?
The MS diagnosis would be the best thing to happen to her

Ok maybe not best lol, but I now can see what a gift it was.

You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.

Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.

And man did it help.

I went from “aggressive MS” to not even thinking about MS on some days.

This process I went through? That’s exactly what I help others with now.

I currently have 2 Individual Client spots open!! (1 might be gone soon though..)

We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs

Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
...

22 2
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS. 
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis

First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!

Now.. how do you feel after taking that breath?

A little more calm, centered and focused?
Probably.

How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.

Give it a try a few times a day, and let me know what you notice!!

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.

I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.

I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!

#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
...

7 0
5 Habits to Help MS Symptoms 

In no particular order:
• Food/ our diet
• Movement 
• Breathing 
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!

5 Habits to Help MS Symptoms

In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!

Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!

Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!

Let me know if you like these lives and want to hear about more topics!
...

8 6
5 Underrated Supplements to help MS symptoms 

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?

5 Underrated Supplements to help MS symptoms

In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics

Have you tried any of these before??
What has been your experience?
...

10 0
5 things to keep in mind about nutrition and MS

1. Addition before subtraction 
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!

5 things to keep in mind about nutrition and MS

1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed

More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
...

12 1
Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style.. 
But unable to say no when asked to do anything.. 

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth

Just a guess…

Did I nail it? Almost? I bet.

I’ve seen the same patterns over and over within my clients (and tbh myself)

Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..

You think you’re just being helpful, or kind, or smart..

In reality you’re keeping yourself stuck and sick.

Babe lemme tell you, there is a way out.

Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life

Comment OUT below and I’ll send you details on the group.. we start next week!!

#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
...

22 2
Stress & MS!!

• How our nervous system should function 
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response

Stress & MS!!

• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
...

13 0
First, comment SAFE below and I’ll send you details on my course Embodied Resilience- 
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse. 

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t. 
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so. 

If you don’t feel safe in your body, meditation won’t “work”. 

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead: 
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud. 
- How did that feel to your mind and body? 

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience. 

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse. 

We’re still in pre-sale, so to get the best price grab your spot now!! 

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior

First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!

Years and years ago, someone really confused me when they said meditating made their anxiety worse.

My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???

While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)

You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.

If you don’t feel safe in your body, meditation won’t “work”.

I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..

then all of a sudden they sit down to try and meditate and- shocker- they “can’t”

You too? You’re not broken- promise 🧡🧡

Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?

If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.

This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.

We’re still in pre-sale, so to get the best price grab your spot now!!

#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
...

5 3
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
 I’ll tell you about the rest of the process too. 

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems

This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)

And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.

Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!

#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
...

18 5
More ways my life has changed 
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things 
- conflicts are shorter with the hubby
- I’m able to ask for what I need 
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs 
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too” 
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness

More ways my life has changed
👇🏼👇🏼

- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!

These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!

I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.

The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!

#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
...

19 3
Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress? 

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving

Is people pleasing or perfectionism signs of stress?

You betcha.

Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..

Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.

When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.

Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush

The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.

Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?

I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.

Comment STRESS below and I’ll send you the link to register!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
...

18 3

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