“I Never Cry” Pain


All I could do was stand and cry. I never cry. Or at least I try the hardest not to, especially in public. But this time it was in public, and I was crying, hard. Because I was hurting.

The pain had been coming off and on for days, but this day in particular was different. On this day it started a little stronger and earlier than normal. On this day, the pain was incredible and more intense. On this day, the pain was unbearable as it flowed around my body. It felt like waves rolling up and down my arms, leaving me totally unable and unwilling to move. I couldn’t concentrate on my work, I couldn’t make sense of any thoughts in my mind. I walked from my office up and down the hallway, trying to get the pain out of my body. Nothing made it go away.

 

Pain in Multiple Sclerosis is real. At one point in time, “medical professionals” thought that pain didn’t impact people with MS. That couldn’t be more wrong. It is estimated that 30-50% of individuals with MS will experience pain at some point during the course of their illness. However, I believe the rate of pain to be much higher than just 50%, I think it can be as high as 80%.

Pain is classified as either primary or secondary pain. Primary pain is caused by disease progression and demyelinization. Primary pain is usually the intense feelings of burning, shooting or gnawing pain. Secondary pain is usually musculoskeletal pain either caused by poor balance and posture, spasticity, unbalanced use of muscles or joints because of weakness etc. Pain in MS can also be classified as acute or chronic pain.

There are many different types of pain in MS. Often times pain and sensory symptoms can go hand-in-hand (as I mentioned last week) and sensory symptoms can sometimes increase and turn painful.

Acute pain:

  • Trigeminal Neuralgia. This is a real pain in the..face. This is often experienced as a stabbing or shooting pain usually felt on one side of the face in the jaw area or cheek. It can be very severe, and last only a few seconds. I can be triggered by a breeze going across your face, touching your face or even chewing. It can be confused with dental pain, but is caused by damage to the trigeminal nerve. Treatment usually includes medication to alter a nerve function, and sometimes surgical procedures if medication does not prove to be useful.
  • Lhermitte’s sign. This is a type of pain that if the neck is moved enough, pain will start at the neck and move quickly down the spine, feeling like an electric shock. This is caused by damage nerves that no longer transmit proper signals. There are several medications available to treat this, also several lifestyle treatments as well. There are postural adjustments that can be done and relaxation techniques that could improve Lhermitte’s sign too.
  • Burning, aching, girdling pain. I discussed these feeling last week when I was talking about sensory symptoms, but there is a large overlap between these feelings on a sensory level then pain level. Burning can quickly become painful, and usually starts out that way. Burning usually affect the legs but can affect the arms as well. Most of these feelings are often worse at night. Sometimes The affected limb is sensitive to touch and can often feel cold. The “MS Hug” is a feeling of constriction felt around the abdomen or chest, and can become quite painful as well. These types of feelings are caused by demyelination and there are medications available to treat them.

Chronic pain:

  • Burning, aching, pins and needles. This type of pain can be both acute and chronic, unfortunately. The treatment for this type of pain when it’s chronic is the same as acute pain.
  • Pain from spasticity. Spasticity can cause many types of issues and pain. Muscle spasms, cramps, tightness in joints are all manifestations of spasticity and can create significant musculoskeletal pain. Medications are available to treat this type of pain and the cause, often anti-inflammatory in nature. Regular stretching and exercise can also be very helpful with managing musculoskeletal pain.
  • Other muscle pain. General muscle pain can occur for various reasons. Whether it is altered gate, compensation for lack of mobility/weakness/pain or any other reason, pain can present itself at any time. Common treatments are medications, massage, acupuncture, ultrasound, physical therapy or heat.

Emotional stress

One of the most under appreciated aspects of pain in MS is the emotional toll it takes. Being in constant pain can hurt physically, but it can also hurt emotionally. Individuals who are in pain are at risk of depression, are more likely to isolate and have difficulty coping.

 

I’ve been in pain in numerous ways with MS. I’ve had Lhermitte’s sign (technically my first symptom), burning pain in my legs, severe pain in my arms and I believe I have had Trigeminal Neuralgia several times recently. I think pain has been one of my most prominent symptoms, unfortunately. I have been on Neurontin and am currently on Cymbalta to manage my pain. AIP has also helped my pain levels immensely as well.

Getting creative with treatments can be helpful when managing pain. Regular exercise and stretching can be helpful when managing musculoskeletal pain, also making sure to maintain a balance of sodium and potassium to deter cramps. Alternative therapies can be helpful as well, acupuncture, cognitive-behavioral therapy, biofeedback, relaxation training and hypnosis can be useful.

 

I found myself in the conference room, staring out the window when my best friend noticed I was there as she walked by. I didn’t realize at first I had been silently crying, but once she inquired about what was wrong, the flood gates opened.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress, 
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment 
- How that moment is impacting your body 

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience 

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms

First, save this for later!

Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards

You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.

It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body

Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.

👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.

Awareness is always the first step babe.

Wanna know more?

Come to my Masterclass all about stress + MS, Cultivating Resilience

Comment ATTEND below and I’ll send you the link to save your seat!

#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
...

5 1
Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement

Yes I had been moving consistently
Yes I had been eating my veggies

But, the big thing that has helped over the last few years is regulating my nervous system.

You wouldn’t necessarily think so right away but let me explain..

You see, working on your nervous system means improving the amount of stress your body can handle.

And when your body can handle more stress, you can do more things (like walk miles and miles)

Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.

ESPECIALLY when you’ve “done everything” and “nothing works”

I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution

Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.

Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
...

11 4
Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis

Get in MS girlie, we have stress to manage 💅

But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.

You see- STRESS is where our autoimmune diseases alllll started.

Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.

And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.

Totally lost on how to do that? I got you!

I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.

Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!

#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
...

5 0
It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs, 

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register! 

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms

It’s amazing what taking a few minutes to breathe and reassure yourself can do, ya know??

If you have MS and this gives you an immediate uncomfy feeling in your gut because you never advocate for yourself and your needs,

You need to come to my next Masterclass:
Managing Stress to Manage MS

We’ll be talking about:
* How Stress Works: Discover how your body’s stress response system operates and why it plays such a big role in your overall health.
* Stress and MS: Understand how stress impacts MS symptoms and why it can sometimes make symptom flares worse.
* Building Your Resilience: Get simple, effective strategies to boost your stress resilience and help ease MS symptoms for a healthier, more balanced life.

Happening February 10th at 6pm EST!
Comment NEEDS below and I’ll send you the link to register!

#multiplesclerosis #lissms #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #thisisms
...

9 1
This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc.. 

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!! 

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety

This is hard!!

We feel like “we should be able to” still do the cleaning, chores, putting things away etc etc etc..

But in reality- our bodies need and crave rest and recovery first.

If we don’t give our bodies what they need voluntarily, they’ll find a way to make us.

Really struggle with this idea of listening to and caring for your body?
(I get it- it’s not a skill we’re taught)

I’m hosting a (free) masterclass on this and “managing stress” in January, comment CLASS and I’ll send you the link to sign up!!

#multiplesclerosis #nervoussystemregulation #nervoussystemhealing #stressmanagement #lissms #thisisms #becausems #seasonaldepression #anxiety
...

16 5
I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
...

25 7
✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!! 

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems

✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!!

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
...

9 2
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move 
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!

I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
...

18 8
And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis

And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis
...

19 4

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