That word. Those words. Multiple Sclerosis. Diagnosis. I can’t understand what is happening, or why it’s happening. “But I’m so young. But it’s not fair”. I guess it’s too late for those now.
“What will I do? Will I be able to walk next year?” That is what floods my mind, as I walk down the hall from the office after I rose slowly from the chair. Sitting in the hospital, getting steroids again, I can’t help but think about how annoyed I am. I had a life, I had things to do, I don’t have time for this. I guess it’s too late for that now.
I haven’t said very much lately, I guess I haven’t had very much to say. I haven’t seen very many people lately, I guess there aren’t very many people to see. I haven’t smiled that often recently, I guess I don’t have anything to smile about. I guess it’s too late for all of that now.
Not only does Multiple Sclerosis have an affect physically, it takes a toll emotionally as well. As soon as you’re diagnosed or the idea of being diagnosed is brought up in discussions with doctors, there are very real and powerful feelings that are usually brought to the surface. Also, throughout the course of the disease there are many emotional changes that can occur due to damage in the central nervous system.
Everyone will react to their diagnosis, or thought of diagnosis, differently. Some common feelings that individuals might feel upon diagnosis are shock, denial, confusion, anger, anxiety, or relief. Being in a state of shock is a common and understandable first reaction to being diagnosed with MS. It is also common for people to be in denial and to try to avoid the feelings associated with being diagnosed. It’s OK to have these feelings. It’s normal to have these feelings. Confusion and anger seem to go hand-in-hand, they both come from a place of not knowing. Not knowing why this happened to you. Unfortunately, no one is really going to ever figure that out. Anxiety comes when you start thinking about what’s next, what’s in store for your future. And to feel relief when diagnosed? I know some that have. Often after years of experiencing symptoms and not being able to put a name to it, finally it has a name, and now with the name a course of treatment.
But what about the emotional changes that happen after diagnosis? Once we have reconciled with ourselves that this is our ‘new normal’, what can happen then? Unfortunately, as it is with many symptoms, emotional changes are very common. These changes can include anxiety, mood swings, stress, depression and pseudo-bulbar affect, to name a few.
The emotions that an individual is experiencing will dictate the treatment needed. Usually lifestyle modifications and therapy are the most helpful interventions.
I have certainly struggled with my fair share of stressors and negative feelings stemming from MS. When I was first diagnosed I struggled considerably with anger. I was frustrated and mad that this happened to me. Anything that reminded me of having MS would put me in a negative mood. It took me many years to come to terms with my diagnosis, and creating LissMS was one of the things that help me to shift my perspective on my disease. Creating positive things from a negative one is a powerful way to shift our perspective and outlook. What is something that you can do that will shift your thought process about your diagnosis?
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This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..
Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day
Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.
Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?
I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!
This is how I slowly helped myself the most:
Making small changes to my life,
* Intentional awareness to my morning
* Noticing when I’m being mean to myself
* Noticing when I’m reactive or in a state of fight or flight..
Some “small” ideas for you too:
* don’t grab your phone first thing in the morning, take some deep breaths, think about how you want your day to go
* drink an extra glass of water (bonus if it’s in the morning too)
* get up and move every hour
* say something nice to yourself when you catch yourself being mean
* step outside for a few minutes a few times a day
Small changes add up to big steps forward,
don’t get fooled by these not being “enough”,
they absolutely are.
Wanna hear more about how Ive helped myself and my clients to lessen our MS symptoms so we feel better in our bodies?
I detail it in my chapter in Resilience Redefined.. comment “Book” and I’ll send you the link!!
You don’t always have to love the hard action you’re taking to reach your goals.
You just have to show up.
You can do this… keep going 🧡🧡
*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.
You don’t always have to love the hard action you’re taking to reach your goals.
You just have to show up.
You can do this… keep going 🧡🧡
*after discerning there’s no *actual* issue (pain, injury, illness etc) preventing me from working out, only that I’m a toddler and don’t wanna.
Have you pre ordered your copy of Resilience Redefined yet??
This is a chronicling of 7 individuals who have autoimmune disease (5 of which have MS too!!) and how they take care of themselves in the best ways they can.
Pre orders are open until October 24th!!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Comment Book below and I’ll send you the link!!
Have you pre ordered your copy of Resilience Redefined yet??
This is a chronicling of 7 individuals who have autoimmune disease (5 of which have MS too!!) and how they take care of themselves in the best ways they can.
Pre orders are open until October 24th!!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Comment Book below and I’ll send you the link!!
“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”
Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.
Did you see??
Pre Orders are open!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Grab your copy here:
https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/
Or comment Book below and I’ll send you the link!!
“Resilience is the process and outcome of successfully adapting to difficult or challenging life experiences, especially through mental, emotional, and behavioral flexibility and adjustment to external and internal demands.”
Resilience has become such a cornerstone word of the work I do this past year.
It makes sense this book I collaborated on with 6 other awesome & resilient authors was destined to have resilience in the title.
Did you see??
Pre Orders are open!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Grab your copy here:
https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/
Or comment Book below and I’ll send you the link!!
Struggling to start with exercise?
Try this tip!!
Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.
Because we’re trying to do something different after all.
This is gentle way of starting that identity shift process.
Become who you want to be in your mind first.
Does this help?
What other habits do you need help with? Let me know in the comments!!
Struggling to start with exercise?
Try this tip!!
Creating a new habit (any of them) necessitate us to become someone new, someone different than we were.
Because we’re trying to do something different after all.
This is gentle way of starting that identity shift process.
Become who you want to be in your mind first.
Does this help?
What other habits do you need help with? Let me know in the comments!!
It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.
This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.
““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”
So… drumroll please…
Pre orders are officially open!!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/
Or comment “book” below and I’ll send you the link!!
It’s only fitting that I announce my 2nd book (along with 7 other authors) on my 14 year anniversary with MS.
This is a book that I would have loved to read early on in my journey.
It’s about how we moved through our diagnosis and came out the other side for the better.
““Resilience Redefined” is not just a collection of stories; it is a call to action. The authors challenge those living with an autoimmune disease to not only survive but to thrive”
So… drumroll please…
Pre orders are officially open!!
If you pre order your copy through me before October 24th you’ll also get:
• Signed copy of Resilience Redefined
• The MS Handbook E-book
• Resilience Bookmark
• LissMS Sticker Pack (first 10 pre orders)
Grab your copy here: https://liss-ms.com/product/resilience-redefined-thriving-with-autoimmune-disease/
Or comment “book” below and I’ll send you the link!!
If you like being outside, check out the America the Beautiful Access Pass!
This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!
You can get it online or at the entrance of a national park!
Share with anyone who also might like this!!
If you like being outside, check out the America the Beautiful Access Pass!
This is a pass for those with disabilities to get into National Parks, Monuments and more for FREE!!
You can get it online or at the entrance of a national park!
Share with anyone who also might like this!!
This is obvs one option of many on how to help yourself through these moments.
But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!
This is rewiring your brain in action.
You notice you’re doing something you always did,
Then do something different.
And boom! A new pathway is born.
It needs some love and attention to grow,
so keep practicing!
This is obvs one option of many on how to help yourself through these moments.
But when you’re stuck in negative worrying, don’t forget there can be a positive outcome too!
This is rewiring your brain in action.
You notice you’re doing something you always did,
Then do something different.
And boom! A new pathway is born.
It needs some love and attention to grow,
so keep practicing!
This isn’t a you problem, it’s your brain acting as it should.
Are you going through some change and upheaval right now too?
I see you.
Comment any questions on how to deal below and I’ll make a part 2!
This isn’t a you problem, it’s your brain acting as it should.
Are you going through some change and upheaval right now too?
I see you.
Comment any questions on how to deal below and I’ll make a part 2!
We have a new space for my (free) LissMS Healing Community!!
Come on in…
Let me show you around!
This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!
Wanna join us?
Comment “community” below and I’ll send you the link!!
We have a new space for my (free) LissMS Healing Community!!
Come on in…
Let me show you around!
This is a space created by an MSer (me), for other MSers (you) to be able to come together and support each other, learn new tools to help manage MS and maybe find a few new internet friends!
Wanna join us?
Comment “community” below and I’ll send you the link!!
There’s so much buzz about everything needing to feel good if it’s right for you.
Sure, there’s a time and a place for alignment.
But, growth often happens in the uncomfortable moments.
Just a reminder.
Keep going.
❤️
There’s so much buzz about everything needing to feel good if it’s right for you.
Sure, there’s a time and a place for alignment.
But, growth often happens in the uncomfortable moments.
Just a reminder.
Keep going.
❤️
Boating! I forgot to add boating to the list 🛶
Regulation is found in the micro moments.
Which of these have you done lately?
Boating! I forgot to add boating to the list 🛶
Regulation is found in the micro moments.
Which of these have you done lately?
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