When you have Multiple Sclerosis, going for a yearly (or whatever your schedule is) MRI is one of the ways to keep tabs on your disease. It gives an almost full picture of your brain and spinal cord, and lets you, the radiologist and your doctor see what is going on in terms of progression and activity. But what do those terms mean really? Can you have disease progression without symptoms? Is disease progression seen on a MRI the same as activity?
When thinking about disease activity, I’m sure everyone gets a little freaked out, if not totally scared when this subject comes up or the thoughts cross your mind (even me).
And that’s ok. This is a scary disease after all!
But the more we can understand the types of activity, the better off we’ll be.
Visible disease activity, otherwise defined as relapses, is disease activity that is visible and impactful. This is the most thought of type of activity, and what medical professionals and medications, are always aiming to reduce.
Activity and progression from relapses can either clear fully or almost fully, or leave you with some degree of lasting disability.
Underlying disease activity can be a little more tricky. This is activity that shows up on an MRI, but doesn’t necessarily have corresponding symptoms accompanying it. Therefore, the only way you’ll know if you have this type of activity is to have regular MRIs. The disease activity can come from new lesions formed, or growth in lesions that are already there.
NEDA stands for No Evidence of Disease Activity, and is now the goal for treatment and what doctors are looking for. Previously, the goal of treatments were to lessen relapses. But since this is not the only way of disease progression, NEDA is now the standard for measuring disease activity. In NEDA, a few things are measured.
The goal of any treatment or complementary treatment should be to reduce inflammation in the body that could create lesions, either felt as visible disease activity or contribute to underlying activity.
Disease activity is a scary topic for MSers, whether it is visible activity or underlying. Using as many lifestyle techniques as you can to reduce inflammation in your body is the best way to help prevent further relapses.
Interested in learning more about how to reduce inflammation? Grab my Cheat Sheet about the 5 Best Foods for MS here!
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Being aware and consciously working on nervous system regulation has SO MANY benefits..
✨Waking up with less anxiety
✨Feeling less all/nothing thinking
✨Being able to physically breathe better
✨Reduction of your MS/autoimmune disease symptoms
I could go on and on.
We aren’t gonna be able to fully manage MS symptoms until we acknowledge our very disregulated nervous system.
Embodied Resilience starts you on that path.
And- you’re in luck- it’s on sale till Monday night.
Comment STABLE and I’ll send you the link!!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #thisisms #becausems
Being aware and consciously working on nervous system regulation has SO MANY benefits..
✨Waking up with less anxiety
✨Feeling less all/nothing thinking
✨Being able to physically breathe better
✨Reduction of your MS/autoimmune disease symptoms
I could go on and on.
We aren’t gonna be able to fully manage MS symptoms until we acknowledge our very disregulated nervous system.
Embodied Resilience starts you on that path.
And- you’re in luck- it’s on sale till Monday night.
Comment STABLE and I’ll send you the link!!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #thisisms #becausems
I get it..
It seems like it would be good.
Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..
But what about you??
In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.
I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.
Feel a little called out?
Then my course Embodied Resilience is for you.
This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses
And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!
#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
I get it..
It seems like it would be good.
Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..
But what about you??
In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.
I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.
Feel a little called out?
Then my course Embodied Resilience is for you.
This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses
And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!
#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
✨How to do this✨
First! Like + save this post so you can come back to it for reference
Now, set a few alarms on your phone- ideally in the morning, afternoon and bedtime.
These will serve as your reminders.
Then, when the alarm goes off:
✨Pause, take a few deep breaths
✨Check in with your mind and body- how are you in this moment?
✨What are you thinking?
✨How are you feeling emotionally?
✨Is there a thought that needs to be challenged/reframed?
✨Are you being present in the moment?
✨How are you feeing in my body?
✨How are you breathing?
Some of these questions might not apply to your current situation and that’s fine
This is the first step to interrupting the very unhelpful patterns we often live in that can increase symptoms via heightened stress
This is one of the big things we work on in Holistically Healing MS, which will be on sale this weekend for Black Friday!!
Comment SALE below and I’ll send you the link when it’s ready!!
✨How to do this✨
First! Like + save this post so you can come back to it for reference
Now, set a few alarms on your phone- ideally in the morning, afternoon and bedtime.
These will serve as your reminders.
Then, when the alarm goes off:
✨Pause, take a few deep breaths
✨Check in with your mind and body- how are you in this moment?
✨What are you thinking?
✨How are you feeling emotionally?
✨Is there a thought that needs to be challenged/reframed?
✨Are you being present in the moment?
✨How are you feeing in my body?
✨How are you breathing?
Some of these questions might not apply to your current situation and that’s fine
This is the first step to interrupting the very unhelpful patterns we often live in that can increase symptoms via heightened stress
This is one of the big things we work on in Holistically Healing MS, which will be on sale this weekend for Black Friday!!
Comment SALE below and I’ll send you the link when it’s ready!!
✨Moving your body✨
Notice I didn’t say exercise, although yes that also helps.
Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.
Making it super easy for us to carry stress around with us- which shows up often as:
Pain
Tension
Trouble breathing
Difficulty with balance
It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.
Being able to offload accumulated stress is key to being able to improve MS symptoms.
My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.
Comment ME below and I’ll send you the sale link when it’s ready!!
#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
✨Moving your body✨
Notice I didn’t say exercise, although yes that also helps.
Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.
Making it super easy for us to carry stress around with us- which shows up often as:
Pain
Tension
Trouble breathing
Difficulty with balance
It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.
Being able to offload accumulated stress is key to being able to improve MS symptoms.
My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.
Comment ME below and I’ll send you the sale link when it’s ready!!
#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.
There are SO MANY things that can help us.
But the one I’ve seen move the needle the most?
Working on your mindset and stress management tools.
We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..
But if we’re still in the high stress state that most of us are in.. all those will only go so far.
Stress is my biggest symptom trigger, and 99% of my clients feel the same.
My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.
My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.
There are SO MANY things that can help us.
But the one I’ve seen move the needle the most?
Working on your mindset and stress management tools.
We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..
But if we’re still in the high stress state that most of us are in.. all those will only go so far.
Stress is my biggest symptom trigger, and 99% of my clients feel the same.
My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.
My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
Changing my diet changed the course of my life.
I want that for you too.
It feels hard, but doesn’t have to be.
PS- keep your eye out for Black Friday.. all my courses will be on sale, your healing journey awaits!
Changing my diet changed the course of my life.
I want that for you too.
It feels hard, but doesn’t have to be.
PS- keep your eye out for Black Friday.. all my courses will be on sale, your healing journey awaits!
And my period started to add to the joy 🙃🙃
We can do hard things y’all,
breathe in, breathe out,
all will be well.
#Electionstress #seasonaldepression #anxiety #multiplesclerosis
And my period started to add to the joy 🙃🙃
We can do hard things y’all,
breathe in, breathe out,
all will be well.
#Electionstress #seasonaldepression #anxiety #multiplesclerosis
Home stretch!!
Do what you need to do today to take care of yourself friends.
#Electionday #Govote #Vote
Home stretch!!
Do what you need to do today to take care of yourself friends.
#Electionday #Govote #Vote
Do you do any form of meal planning?
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.
They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.
I know when so many feel the same way, you might too.
I know I feel this way too.
I’m working with them to put habits in place NOW that will support them through the winter months.
Here are 2 small shifts we talked about this week:
1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️
Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.
2. Move your body!! 💃🏃♀️
The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.
These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.
Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.
They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.
I know when so many feel the same way, you might too.
I know I feel this way too.
I’m working with them to put habits in place NOW that will support them through the winter months.
Here are 2 small shifts we talked about this week:
1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️
Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.
2. Move your body!! 💃🏃♀️
The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.
These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.
Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.
Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.
We start tomorrow at 5:30pm eastern, you coming?
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.
Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.
We start tomorrow at 5:30pm eastern, you coming?
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
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