Grief


There are many emotions that come and go throughout life with Multiple Sclerosis and one of those is grief. Some people might not recognize their grief, as grief, and mistake it for depression (which often goes hand in hand) or just feeling down/angry/disbelief etc. But grief in chronic illness is real. Some professionals name our grief as “infinite loss” or “chronic sorrow”, as there are things to be grieved over and over again, as we lose different parts of ourselves throughout the disease.

I’m sure you’ve heard of the 5 Stages of Grief, as defined by Elisabeth Kubler-Ross, who did her work for these 5 stages with terminally ill patients. Now there are many other theories on grief as well. As no one person grieves the same way as someone else.

Grief at Diagnosis

Being diagnosed with a chronic illness, especially one as difficult as Multiple Sclerosis can be challenging, to say the least. There are many emotions that someone can experience between shock, anger, denial or numbness. One of the first questions that is sometimes asked, but often thought is: “what about my future?“. What we’re really asking: “what am I going to lose?

Grief is a reaction to loss. Since there is potential for many unplanned losses with MS, experiencing grief at diagnosis, even if you haven’t lost functioning yet, is common.

Grief Throughout the Years

As our disease course progresses, the losses start to accumulate. This can be in various forms too. Abilities, dreams, wishes, friends, jobs, it’s not only relegated to disease functioning, but to all other areas of life as well. Friends might become distant, a job might be harder to manage, future dreams might be difficult to see coming to fruition and many more.

Since MS is a chronic condition, the grief process isn’t limited to a one time event, which you learn to manage. Instead, it is cyclical. Happening over and over again, with each new loss. It might even happen from day to day, as symptoms are experienced differently.

Rising Above

Acceptance looks different on everybody. As I mentioned above, everyone grieves differently, so what acceptance looks like from person to person will be drastically different. However, there is a way to get there and cultivate resiliency.

  • Feel your Feelings. One of the worst things you can do is keep all these charged feelings bottled up inside you. They will come out eventually, and probably not under the circumstances you want them to. Trust me, I tried to keep mine under lock and key for years, didn’t work out so well. Journaling, talking with a friend/family member/therapist, crying, screaming, all can help.
  • Manage Stress. One of our biggest triggers to mild flares to relapses is stress. And life gives you plenty of it. So finding a way that works for you to manage it is going to be key. Exercise, going for walks, meeting a friend for coffee, yoga, meditation, creating art, talking (see above) are all great ways of managing daily stress.
  • Re-evaluate and Reframe. I get it. This one is hardddd. You’ve heard that saying “it’s not what happens to you, it’s how you deal with it”? This is what I’m talking about. At some point, we all have to get super honest with ourselves about the future, at least if we want any quality of life that is. Look at what is changing, what isn’t, and what potential good could come out of it. Forced to quit a job you hate anyway? Maybe you’ll find something that is more aligned with what you enjoy.

Doing all of the aboves steps won’t make grief (or anger, or depression) just suddenly vanish. What it will do, is help you feel more equipped to manage those feelings and situations when they do arise. This is a lifelong journey, your relationship to grief will ebb and flow as the years progress, as it does with other emotions as well. Just remember, you’re never alone in this.

I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa. 
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis. 

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition 
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management 

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
...

1 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge
...

0 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain
...

10 5
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel. 

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️ 

Your possibilities are endless! 

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms

It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️

Your possibilities are endless!

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms
...

16 6
Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system. 

#LissMS #multiplesclerosis #nervoussystemregulation

Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system.

#LissMS #multiplesclerosis #nervoussystemregulation
...

13 1
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden

First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden
...

17 0
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all. 

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so. 

#lissms #multiplesclerosis #thisisms #lifewithms

Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so.

#lissms #multiplesclerosis #thisisms #lifewithms
...

35 4
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer… 
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior

I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
...

53 3
When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name 

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing

When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
...

16 2
But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24. 
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst. 

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do. 

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids. 

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list 

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity

But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
...

17 2
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.. 

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in 

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport

I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
...

14 3

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