It was a beautiful day by anyone’s standards, except a runner. 72, mostly sunny, perfect early summer day in June. But to me, it felt like 90 degrees and scorching hot. It was 2013 and I was running the B.A.A 10K. I was in the middle of my running “career” and in the middle of my 2nd or 3rd 10k. Everything started out just fine, music was pumping in my ears, adrenaline flowing through my legs, “I got this” I thought. Until I hit Commonwealth Ave. For those of you unfamiliar with Boston, Commonwealth Ave is a fairly straight, uncovered, stretch of pavement. And this was where the majority of the 6.2 miles were ran.
It got hot. It got hot, real quick.
One of the most well known symptoms of Multiple Sclerosis, at least to us MSers, is heat intolerance. Being exposed to heat, whether it is from being outdoors, being in a hot shower or exercising, can make MS symptoms temporarily worse, which is called a pseudo-exacerbation. Once our bodies return to normal temperature, the symptoms dissipate and return back to their normal state.
During a pseudo-exacerbation there is no actual disease progression taking place, however, while the symptoms are being felt, they are very real! In fact, back in the day before MRI’s and modern medicine, doctors used to use the “hot bath test” to diagnose MS. In this test, individuals who were suspected of having MS were put in a hot bath to see if their symptoms increased. As unpleasant as an MRI is, I’m sure that would be much worse.
Doctors believe a pseudo-exacerbation occurs because heat causes the nerves, which are already are damaged, to perform their functions even less effectively. When body temperature increases, even by a quarter or half a degree, the electrical signals sent between demyelinated nerves are even further negatively impacted. Some of the most common symptoms that individuals experience when in the heat are:
Sometimes being in the heat is unavoidable, so being prepared is the best thing you can do! Here are some tips for beating the heat:
My hubby and I like to go to the beach all the time. One summer, we went on a beach tour and went to a new beach each weekend. So to say I’m “used” to the heat is an understatement, but it still gets to me. What I’ve found the most helpful for beating the heat is having a place to run back to that provides shade, whether that is an awesome beach tent or big tree, something that provides relief from the sun’s rays is key. I’ve found that sometimes in the shade it feels 10 degrees cooler than when in the sun. I also like to have a cooler with ice water with me. Yes, this means lugging a cooler to the beach, but in order to make my beach time fun, this is a necessity. My last thing that is key? Running in and out of the water. Obviously this isn’t always do-able if you’re not at the beach, so bringing some way to apply cold water, either a personal mister or cold towel or even having a mini AC handy is important.
But most of all, make sure to advocate for yourself and your comfort. Thankfully, my husband knows me better than I know myself, and will be able to tell when I’ve had enough. But sometimes I’m not with him and I need to speak up on my own behalf. You deserve comfort as well as any other person. Please don’t let fear of “ruining” a summer day keep you from saying what you need.
By the time I hit the race turn around point, I felt like I was going to pass out. Looking back on it, I had no business finishing this race. But, I’m stubborn. And I was even more stubborn back then. Thankfully, my sister ran 99.9% of my races with me, and she was right there by my side. She didn’t know it, but she gave me the strength to keep going and in my mind, was there in case I passed out. By the time we hit the home stretch, I told her to go on ahead (she was great at sprinting to the finish) and I came behind about a minute later. My hubby (boyfriend at the time) was also there, at the finish line. He took one look at me, yelled at the medics, “GRAB HER”. I was stumbling to the finish, barely able to see, my legs were numb and tingling (at the same time, totally weird feeling) and I couldn’t feel most of my body. Against my overheated, belligerent will, I was thrown in a wheelchair and carted off to the medical tent. I fought the entire time, stating I was “fine” and I just needed to “walk it off” (ha!). My core temperature was 106 degrees, I was dizzy, confused and fighting the nurses. They tossed me in an ice bath for what seemed like an eternity (to me, as well as my then boyfriend and sister) and I thankfully didn’t have to go to the hospital. I think I told them I had MS, and that everything was much worse because of the heat, but I don’t really remember too much else of the conversation. Obviously both the act of running and the heat got to me that day. But I think the heat was the most impacting factor. I was a well conditioned runner at the time and the distance had previously given me no issues on 50 degree days.The only things gained from the experience was a new shirt and a healthy respect for rising temperatures.
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Making the Most of your Beach Dayfollow along on Instagram:
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
More ways my life has changed
👇🏼👇🏼
- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!
These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!
I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.
The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
More ways my life has changed
👇🏼👇🏼
- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!
These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!
I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.
The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
Is people pleasing or perfectionism signs of stress?
You betcha.
Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..
Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.
When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.
Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush
The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.
Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?
I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.
Comment STRESS below and I’ll send you the link to register!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
Is people pleasing or perfectionism signs of stress?
You betcha.
Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..
Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.
When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.
Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush
The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.
Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?
I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.
Comment STRESS below and I’ll send you the link to register!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
It’s a bold statement, but I stick by it.
Countless times I’ve seen my clients improve their symptoms when they change their diet, add supplements etc.
But nothing changes you, your MS symptoms & progression more for the better than working on your mindset, stress management and how your body tolerates stress (all parts of the same coin)
THAT is how you’ll find that one day you aren’t:
• An anxious mess in the morning..
• Having trouble saying NO when you really mean it
• Doing all the things to help everyone else BUT yourself
(Which I know you struggle with- and that’s keeping you sick still babe)
You can do hard things..
#lissms #stressmanagement #multiplesclerosis #multiplesclerosiswarrior #thisisms #becausems #nervoussystemregulation #nervoussystemhealing
It’s a bold statement, but I stick by it.
Countless times I’ve seen my clients improve their symptoms when they change their diet, add supplements etc.
But nothing changes you, your MS symptoms & progression more for the better than working on your mindset, stress management and how your body tolerates stress (all parts of the same coin)
THAT is how you’ll find that one day you aren’t:
• An anxious mess in the morning..
• Having trouble saying NO when you really mean it
• Doing all the things to help everyone else BUT yourself
(Which I know you struggle with- and that’s keeping you sick still babe)
You can do hard things..
#lissms #stressmanagement #multiplesclerosis #multiplesclerosiswarrior #thisisms #becausems #nervoussystemregulation #nervoussystemhealing
First, save this for later!
Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards
You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.
It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body
Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.
👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.
Awareness is always the first step babe.
Wanna know more?
Come to my Masterclass all about stress + MS, Cultivating Resilience
Comment ATTEND below and I’ll send you the link to save your seat!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
First, save this for later!
Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards
You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.
It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body
Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.
👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.
Awareness is always the first step babe.
Wanna know more?
Come to my Masterclass all about stress + MS, Cultivating Resilience
Comment ATTEND below and I’ll send you the link to save your seat!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
Yes I had been moving consistently
Yes I had been eating my veggies
But, the big thing that has helped over the last few years is regulating my nervous system.
You wouldn’t necessarily think so right away but let me explain..
You see, working on your nervous system means improving the amount of stress your body can handle.
And when your body can handle more stress, you can do more things (like walk miles and miles)
Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.
ESPECIALLY when you’ve “done everything” and “nothing works”
I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution
Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
Yes I had been moving consistently
Yes I had been eating my veggies
But, the big thing that has helped over the last few years is regulating my nervous system.
You wouldn’t necessarily think so right away but let me explain..
You see, working on your nervous system means improving the amount of stress your body can handle.
And when your body can handle more stress, you can do more things (like walk miles and miles)
Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.
ESPECIALLY when you’ve “done everything” and “nothing works”
I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution
Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
Get in MS girlie, we have stress to manage 💅
But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.
You see- STRESS is where our autoimmune diseases alllll started.
Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.
And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.
Totally lost on how to do that? I got you!
I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.
Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
Get in MS girlie, we have stress to manage 💅
But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.
You see- STRESS is where our autoimmune diseases alllll started.
Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.
And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.
Totally lost on how to do that? I got you!
I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.
Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
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