It was a beautiful day by anyone’s standards, except a runner. 72, mostly sunny, perfect early summer day in June. But to me, it felt like 90 degrees and scorching hot. It was 2013 and I was running the B.A.A 10K. I was in the middle of my running “career” and in the middle of my 2nd or 3rd 10k. Everything started out just fine, music was pumping in my ears, adrenaline flowing through my legs, “I got this” I thought. Until I hit Commonwealth Ave. For those of you unfamiliar with Boston, Commonwealth Ave is a fairly straight, uncovered, stretch of pavement. And this was where the majority of the 6.2 miles were ran.
It got hot. It got hot, real quick.
One of the most well known symptoms of Multiple Sclerosis, at least to us MSers, is heat intolerance. Being exposed to heat, whether it is from being outdoors, being in a hot shower or exercising, can make MS symptoms temporarily worse, which is called a pseudo-exacerbation. Once our bodies return to normal temperature, the symptoms dissipate and return back to their normal state.
During a pseudo-exacerbation there is no actual disease progression taking place, however, while the symptoms are being felt, they are very real! In fact, back in the day before MRI’s and modern medicine, doctors used to use the “hot bath test” to diagnose MS. In this test, individuals who were suspected of having MS were put in a hot bath to see if their symptoms increased. As unpleasant as an MRI is, I’m sure that would be much worse.
Doctors believe a pseudo-exacerbation occurs because heat causes the nerves, which are already are damaged, to perform their functions even less effectively. When body temperature increases, even by a quarter or half a degree, the electrical signals sent between demyelinated nerves are even further negatively impacted. Some of the most common symptoms that individuals experience when in the heat are:
Sometimes being in the heat is unavoidable, so being prepared is the best thing you can do! Here are some tips for beating the heat:
My hubby and I like to go to the beach all the time. One summer, we went on a beach tour and went to a new beach each weekend. So to say I’m “used” to the heat is an understatement, but it still gets to me. What I’ve found the most helpful for beating the heat is having a place to run back to that provides shade, whether that is an awesome beach tent or big tree, something that provides relief from the sun’s rays is key. I’ve found that sometimes in the shade it feels 10 degrees cooler than when in the sun. I also like to have a cooler with ice water with me. Yes, this means lugging a cooler to the beach, but in order to make my beach time fun, this is a necessity. My last thing that is key? Running in and out of the water. Obviously this isn’t always do-able if you’re not at the beach, so bringing some way to apply cold water, either a personal mister or cold towel or even having a mini AC handy is important.
But most of all, make sure to advocate for yourself and your comfort. Thankfully, my husband knows me better than I know myself, and will be able to tell when I’ve had enough. But sometimes I’m not with him and I need to speak up on my own behalf. You deserve comfort as well as any other person. Please don’t let fear of “ruining” a summer day keep you from saying what you need.
By the time I hit the race turn around point, I felt like I was going to pass out. Looking back on it, I had no business finishing this race. But, I’m stubborn. And I was even more stubborn back then. Thankfully, my sister ran 99.9% of my races with me, and she was right there by my side. She didn’t know it, but she gave me the strength to keep going and in my mind, was there in case I passed out. By the time we hit the home stretch, I told her to go on ahead (she was great at sprinting to the finish) and I came behind about a minute later. My hubby (boyfriend at the time) was also there, at the finish line. He took one look at me, yelled at the medics, “GRAB HER”. I was stumbling to the finish, barely able to see, my legs were numb and tingling (at the same time, totally weird feeling) and I couldn’t feel most of my body. Against my overheated, belligerent will, I was thrown in a wheelchair and carted off to the medical tent. I fought the entire time, stating I was “fine” and I just needed to “walk it off” (ha!). My core temperature was 106 degrees, I was dizzy, confused and fighting the nurses. They tossed me in an ice bath for what seemed like an eternity (to me, as well as my then boyfriend and sister) and I thankfully didn’t have to go to the hospital. I think I told them I had MS, and that everything was much worse because of the heat, but I don’t really remember too much else of the conversation. Obviously both the act of running and the heat got to me that day. But I think the heat was the most impacting factor. I was a well conditioned runner at the time and the distance had previously given me no issues on 50 degree days.The only things gained from the experience was a new shirt and a healthy respect for rising temperatures.
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Making the Most of your Beach Dayfollow along on Instagram:
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
I’d love to support you over the 8 weeks together!!
Imagine how good you could feel by Thanksgiving.
Comment HEALING to join the waitlist
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
My reality has changed a whole bunch over the years.
I started out with only a few symptoms. But I could get through the day.
Until all of a sudden I couldn’t.
All within a few years I went from “fine” to:
Having horrible symptoms, had 3 relapses and found myself with “aggressive MS”
This was not ok with me.
Eventually, I took my life into my own hands and rethought how I did most things.
I realized I had to make some changes, or else idk what else was gonna happen to me.
So I did.
I changed my diet.
I changed how I worked out.
I changed my job in the name of stress management.
This is just the tip of the iceberg.
If you want this transformation for you too (I know it’s possible) I’m launching my signature course: Holistically Healing MS in a few weeks.
This is the course you need to get started on this path for yourself.
Only the waitlist is gonna get the pre sale price…
Comment WAITLIST below and I’ll add you to it!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is the reality I lived, I want you to experience it too.
No, this is not a quick fix.
No, these results wont happen overnight.
No, this won’t cure you.
BUT-
Yes, you can have your life back.
Yes, you can feel better than you do right now.
Yes, your current reality doesn’t have to be a forever reality.
My success years ago was all thanks to the diet changes and the work I put in to know exactly how to eat to support MY body and MS at the same time.
Yes it took a few months, but what it gave me back was my life- and that’s priceless.
I’m spilling all the beans on what this process looks like and how to do it in my upcoming Masterclass:
5 Secrets To Creating Your Own MS Diet.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
This is my vision for the masterclass I’m hosting next Monday.
I want this to be an interactive experience where you learn how to best take care of yourself and MS symptoms through the food you’re eating.
Instead of:
- feeling hesitation and confusion around what foods are best for MS
- not making changes because you’re afraid you’ll do it wrong
- saying no again to going out to eat with friends
Find the freedom and confidence you’ve been looking for.
Comment CLASS below and I’ll send you the link to sign up!!
Do any of those hit home?
If yes… comment MASTERCLASS below.. I got you
I get asked this question about different foods at least once a week.
Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?
It’s all gonna get the same answer from me….
Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.
I’m hosting a Masterclass next week all about this.
⭐️5 Steps to Creating Your Own MS Diet⭐️
You’ll walk away with:
✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you.
No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..
Come join me to learn the balanced way out of all or nothing food land.
Comment MASTERCLASS below and I’ll send you the link to sign up!!
I get asked this question about different foods at least once a week.
Are potatoes with olive oil ok?
Are tomatoes ok even though Tom Brady doesn’t eat them?
What about grains?
It’s all gonna get the same answer from me….
Sure there are foods with nutrient profiles that match the needs of MS, ✨BUT✨if you don’t tolerate them or feel good eating them, they’re not for you.
I’m hosting a Masterclass next week all about this.
⭐️5 Steps to Creating Your Own MS Diet⭐️
You’ll walk away with:
✨Confidence you’re moving in the right direction regarding changing your diet. You’ll know where to start, how to troubleshoot when you “fall off the wagon” and how to find what works for you.
No more feeling like:
- you have to start AGAIN on Monday..
- you can’t go out to eat with your friends..
- you’re at the mercy of the few foods you tolerate..
Come join me to learn the balanced way out of all or nothing food land.
Comment MASTERCLASS below and I’ll send you the link to sign up!!
My mom will confirm, this was me HARD as a kid.
I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.
Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.
But I also understand that process is hard!!
Sometimes getting support can help you move forward.
If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet
My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!
Comment MASTERCLASS below and I’ll send you the link to sign up!!
My mom will confirm, this was me HARD as a kid.
I used to hate all forms of vegetables, just cause they were vegetables. Whether or not I had tried them was irrelevant, I hated them all the same.
Now, I’m not saying this to blame myself for anything, I’m more saying this as a message of solidarity and that it’s never too late to change.
But I also understand that process is hard!!
Sometimes getting support can help you move forward.
If you:
- are wanting to change your diet to help MS symptoms but aren’t sure where and how to start
- feel frustrated when you do make changes because you can’t stick to them
- have already been eating super strict and can’t seem to add more foods back to your diet
My Masterclass the 5 Secrets to Creating your Own MS Diet is for you!!
Comment MASTERCLASS below and I’ll send you the link to sign up!!
It’s been a week for me… maybe you too?
Use this short video for a moment of peace and regulation.
What do you notice in your body and about your emotions when you exhale and drop your shoulders?
Or when you hear bird songs?
Notice what makes you feel more calm, relaxed and at peace.
Do more of that..
It’s been a week for me… maybe you too?
Use this short video for a moment of peace and regulation.
What do you notice in your body and about your emotions when you exhale and drop your shoulders?
Or when you hear bird songs?
Notice what makes you feel more calm, relaxed and at peace.
Do more of that..
I get it… I was once in paralysis by analysis for years!!
I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS.
BUT!! I need your help to narrow down what we’ll be talking about.
Which of these options sounds most helpful?
Comment the number below!!
Workshop ideas:
1. Simple Nutrition for MS: what you need to know about eating for healing
2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms
3. Education into Action: How to put the knowledge you have into action steps that make progress
4. Blend of it All: Education, steps to finding your own MS diet and how to get started
Want something else?? Tell me 👇🏼👇🏼
I get it… I was once in paralysis by analysis for years!!
I’m creating a Masterclass/Workshop experience in August to cover this exact topic: what and how to eat for MS.
BUT!! I need your help to narrow down what we’ll be talking about.
Which of these options sounds most helpful?
Comment the number below!!
Workshop ideas:
1. Simple Nutrition for MS: what you need to know about eating for healing
2. Create Your Own MS Diet: How to know what is best for YOU, while also helping MS symptoms
3. Education into Action: How to put the knowledge you have into action steps that make progress
4. Blend of it All: Education, steps to finding your own MS diet and how to get started
Want something else?? Tell me 👇🏼👇🏼
FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.
Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.
It took me being at rock bottom, symptoms out of control and knowing I needed something else.
So I didn’t really “do anything” to be ready.
I just was when I was.
If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you!
Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!
Comment GUIDE below and I’ll send you the link to download!
FYI- This process took several YEARS for me . So please stop beating yourself up if you’re not here yet.
Tbh- I needed to go through the scared, intimidated, rebellious no way before I got to the heck yes.
It took me being at rock bottom, symptoms out of control and knowing I needed something else.
So I didn’t really “do anything” to be ready.
I just was when I was.
If you’re feeling ready to make diet changes to help your MS symptoms, I created an Eating for MS guide just for you!
Your guide includes:
- The best foods to be eating when you have MS
- Several ways to get started
- Fast and easy meal ideas
- And so much more!!
Comment GUIDE below and I’ll send you the link to download!
I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.
But that is NOT my wish for you.
Hi 👋🏼 my name is Alissa and we do things differently around here.
My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.
This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.
I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.
If you’ve been wanting:
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..
My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!
I get it- it’s really easy to shame yourself into changing something, especially your diet/the foods you eat. And especially when we feel there are other things we “should be doing” because we know “it’s better for us”.
But that is NOT my wish for you.
Hi 👋🏼 my name is Alissa and we do things differently around here.
My goal is to empower you with the knowledge and tools necessary to make informed decisions about your dietary choices, tailored to your unique MS needs and preferences.
This is why I wrote my Eating for MS Guide the way I did.
I did not give you foods to fear or messages of ONLY EAT THIS FOOD FOREVER OR ELSE.
I’m giving you the tools to be confident in the choices you’re making, because you know it works for YOU. Not because you “should” do it this or that way.
If you’ve been wanting:
- to eat in a way that supports your body with MS, but are confused about all the different messages online
- to feel empowered about your choices, not shamed
- to do it all in a gentle, slow way, not a crash diet..
My guide is for you!!
Comment GUIDE below and I’ll send you the link to download!!
Or for when you’re trying to talk yourself out of being sick.. 🙋🏻♀️🙋🏻♀️😂😂
Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.
Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.
I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.
So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall.
🧡🧡🧡
Or for when you’re trying to talk yourself out of being sick.. 🙋🏻♀️🙋🏻♀️😂😂
Even if you feel fine, try saying a few of these out loud. Feel what happens to your body when you do.
Do you feel an expansion or lightness in your chest?
Does breathing get a little easier?
Just notice the shifts in your body.
I’m not saying we can talk ourselves out of it (illness, flares etc) … but… our body and cells respond to our thoughts.
So how we think about ourselves is definitely in the conversation of how we can take care of ourselves overall.
🧡🧡🧡
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