Having adequate support for multiple sclerosis is incredibly important. However, what ‘proper support’ looks like for each individual may be different. Some people require a support team of many doctors, friends and family to help them with managing their symptoms, appointments and daily tasks. While others need less around the clock support and just need a few close friends and family to help when the need arises. Others may do just fine managing their disease on their own.
One of the biggest things to consider when thinking about the idea of support is are you getting enough? And what type of support do you specifically need? The answer to the second question can certainly be fluid and change over time. What you may need one day, you may not need the next. This may be a question that is difficult to answer, it may be hard to tell exactly what you need, and that’s OK.
Something else to think about, is how you are expressing your needs to others, or if you are expressing them at all. I know for me, saying that I need help, or that I need support is something that is really hard for me to do. And from talking to other spoonies, I know I’m not alone.
So what is it that makes asking for help and support for multiple sclerosis hard? Is it that we are no longer invincible? Or no longer in control? Is it that we are afraid of the response that we will get? Or the lack of response?
For me, this has been a difficulty of mine long before I dealt with MS. I had trouble reaching out for support for years. I was always afraid of the response, of it not being “good enough”; of it not being helpful. But in reality, I didn’t give anyone a chance to be helpful. I was unfair to them from the start. Then, after my diagnosis, I was in a relationship where I received inconsistent support with my MS, which to me, was worse than no support at all. I didn’t feel like I could ask, but I didn’t really want to anyway. Now, I am in an amazing relationship where there is more support than I could ever ask for.
How do we bridge that gap between the all or nothing? How do we take that first step that seems so scary? My answer? It isn’t cool, or sexy, or groundbreaking. It’s something that’s been said by many mothers, and Nike, for years.
Just do it.
Now I know you’re thinking, ‘Really? That’s all you’ve got?’ But yes, that’s it. Nothing has to go from 0 to 60 overnight. You don’t have to go from nothing, to asking a friend to go to a neurologist appointment with you, or a tysabri infusion if those are your versions of 60. Just starting is the point.
As soon as you flex your help muscle, the magic starts to happen. Getting over the initial fear is the biggest piece of the puzzle. Once you’re able to successfully ask, it gets easier from there.
Start small if you have to. When someone volunteers and says ‘Can I pick anything up for you’, instead of saying no yet again, say yes. Many small yeses will add up. It will be uncomfortable at first, it certainly was for me. But overtime, getting support for multiple sclerosis it will get easier.
I didn’t say overnight, I said overtime. Think about these questions for a minute. What is something you need right now? Is there someone you can ask to help with what you need? What is stopping you from doing so? Whatever you come up with you may or may not decide to act on it, and that’s ok. What matters is you challenged your old thinking patterns, and considered new ones.
follow along on Instagram:
✨How to do this✨
First! Like + save this post so you can come back to it for reference
Now, set a few alarms on your phone- ideally in the morning, afternoon and bedtime.
These will serve as your reminders.
Then, when the alarm goes off:
✨Pause, take a few deep breaths
✨Check in with your mind and body- how are you in this moment?
✨What are you thinking?
✨How are you feeling emotionally?
✨Is there a thought that needs to be challenged/reframed?
✨Are you being present in the moment?
✨How are you feeing in my body?
✨How are you breathing?
Some of these questions might not apply to your current situation and that’s fine
This is the first step to interrupting the very unhelpful patterns we often live in that can increase symptoms via heightened stress
This is one of the big things we work on in Holistically Healing MS, which will be on sale this weekend for Black Friday!!
Comment SALE below and I’ll send you the link when it’s ready!!
✨How to do this✨
First! Like + save this post so you can come back to it for reference
Now, set a few alarms on your phone- ideally in the morning, afternoon and bedtime.
These will serve as your reminders.
Then, when the alarm goes off:
✨Pause, take a few deep breaths
✨Check in with your mind and body- how are you in this moment?
✨What are you thinking?
✨How are you feeling emotionally?
✨Is there a thought that needs to be challenged/reframed?
✨Are you being present in the moment?
✨How are you feeing in my body?
✨How are you breathing?
Some of these questions might not apply to your current situation and that’s fine
This is the first step to interrupting the very unhelpful patterns we often live in that can increase symptoms via heightened stress
This is one of the big things we work on in Holistically Healing MS, which will be on sale this weekend for Black Friday!!
Comment SALE below and I’ll send you the link when it’s ready!!
✨Moving your body✨
Notice I didn’t say exercise, although yes that also helps.
Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.
Making it super easy for us to carry stress around with us- which shows up often as:
Pain
Tension
Trouble breathing
Difficulty with balance
It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.
Being able to offload accumulated stress is key to being able to improve MS symptoms.
My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.
Comment ME below and I’ll send you the sale link when it’s ready!!
#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
✨Moving your body✨
Notice I didn’t say exercise, although yes that also helps.
Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.
Making it super easy for us to carry stress around with us- which shows up often as:
Pain
Tension
Trouble breathing
Difficulty with balance
It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.
Being able to offload accumulated stress is key to being able to improve MS symptoms.
My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.
Comment ME below and I’ll send you the sale link when it’s ready!!
#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.
There are SO MANY things that can help us.
But the one I’ve seen move the needle the most?
Working on your mindset and stress management tools.
We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..
But if we’re still in the high stress state that most of us are in.. all those will only go so far.
Stress is my biggest symptom trigger, and 99% of my clients feel the same.
My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.
My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.
There are SO MANY things that can help us.
But the one I’ve seen move the needle the most?
Working on your mindset and stress management tools.
We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..
But if we’re still in the high stress state that most of us are in.. all those will only go so far.
Stress is my biggest symptom trigger, and 99% of my clients feel the same.
My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.
My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
Changing my diet changed the course of my life.
I want that for you too.
It feels hard, but doesn’t have to be.
PS- keep your eye out for Black Friday.. all my courses will be on sale, your healing journey awaits!
Changing my diet changed the course of my life.
I want that for you too.
It feels hard, but doesn’t have to be.
PS- keep your eye out for Black Friday.. all my courses will be on sale, your healing journey awaits!
And my period started to add to the joy 🙃🙃
We can do hard things y’all,
breathe in, breathe out,
all will be well.
#Electionstress #seasonaldepression #anxiety #multiplesclerosis
And my period started to add to the joy 🙃🙃
We can do hard things y’all,
breathe in, breathe out,
all will be well.
#Electionstress #seasonaldepression #anxiety #multiplesclerosis
Home stretch!!
Do what you need to do today to take care of yourself friends.
#Electionday #Govote #Vote
Home stretch!!
Do what you need to do today to take care of yourself friends.
#Electionday #Govote #Vote
Do you do any form of meal planning?
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.
They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.
I know when so many feel the same way, you might too.
I know I feel this way too.
I’m working with them to put habits in place NOW that will support them through the winter months.
Here are 2 small shifts we talked about this week:
1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️
Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.
2. Move your body!! 💃🏃♀️
The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.
These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.
Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.
They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.
I know when so many feel the same way, you might too.
I know I feel this way too.
I’m working with them to put habits in place NOW that will support them through the winter months.
Here are 2 small shifts we talked about this week:
1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️
Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.
2. Move your body!! 💃🏃♀️
The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.
These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.
Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.
Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.
We start tomorrow at 5:30pm eastern, you coming?
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.
Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.
We start tomorrow at 5:30pm eastern, you coming?
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
I don’t want you to spend the years I did in pain, feeling numb and tingly, being exhausted- and having to do all the research.
Let me make it easier for you.
Comment HHMS below and I’ll send you details.
We start next week!!
I think I’ve said this in every group I’ve run and with every client I meet with.
(A gross oversimplification disclaimer)
But this:
people pleasing, being all or nothing, perfectionist (I could go on)
Is (part of) why we got MS.
These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.
Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.
•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)
Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.
Comment HHMS below and I’ll send you the link.
I think I’ve said this in every group I’ve run and with every client I meet with.
(A gross oversimplification disclaimer)
But this:
people pleasing, being all or nothing, perfectionist (I could go on)
Is (part of) why we got MS.
These patterns we play out each day are the hardest thing to change- and they also keep us with high stress, high MS symptoms and feeling like crap in our bodies.
Changing these patterns takes awareness, focus and support- all of which you get in Holistically Healing MS.
•If you want the ability to say NO when you’d usually just say yes.. (stop overriding yourself)
•If you want to be ok with putting your needs first (cause I know you’re not lol)
•If you want to finally feel like you’re good enough and doing enough (cause you are)
Join us in HHMS. Along with lifestyle strategies, we go process the emotional burden all those patterns have- which helps to move through them.
Comment HHMS below and I’ll send you the link.
Everything I say is without judgment, cause I used to do all of this too.
Only sticking with something new for a week, getting so excited for it helping, then changing it up cause “it didn’t work” by the end of the week.
But in reality I never gave it a chance.
This roller coaster has to stop!!
Join me in HHMS to hop off the coaster 🎢
Everything I say is without judgment, cause I used to do all of this too.
Only sticking with something new for a week, getting so excited for it helping, then changing it up cause “it didn’t work” by the end of the week.
But in reality I never gave it a chance.
This roller coaster has to stop!!
Join me in HHMS to hop off the coaster 🎢
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