Having adequate support for multiple sclerosis is incredibly important. However, what ‘proper support’ looks like for each individual may be different. Some people require a support team of many doctors, friends and family to help them with managing their symptoms, appointments and daily tasks. While others need less around the clock support and just need a few close friends and family to help when the need arises. Others may do just fine managing their disease on their own.
One of the biggest things to consider when thinking about the idea of support is are you getting enough? And what type of support do you specifically need? The answer to the second question can certainly be fluid and change over time. What you may need one day, you may not need the next. This may be a question that is difficult to answer, it may be hard to tell exactly what you need, and that’s OK.
Something else to think about, is how you are expressing your needs to others, or if you are expressing them at all. I know for me, saying that I need help, or that I need support is something that is really hard for me to do. And from talking to other spoonies, I know I’m not alone.
So what is it that makes asking for help and support for multiple sclerosis hard? Is it that we are no longer invincible? Or no longer in control? Is it that we are afraid of the response that we will get? Or the lack of response?
For me, this has been a difficulty of mine long before I dealt with MS. I had trouble reaching out for support for years. I was always afraid of the response, of it not being “good enough”; of it not being helpful. But in reality, I didn’t give anyone a chance to be helpful. I was unfair to them from the start. Then, after my diagnosis, I was in a relationship where I received inconsistent support with my MS, which to me, was worse than no support at all. I didn’t feel like I could ask, but I didn’t really want to anyway. Now, I am in an amazing relationship where there is more support than I could ever ask for.
How do we bridge that gap between the all or nothing? How do we take that first step that seems so scary? My answer? It isn’t cool, or sexy, or groundbreaking. It’s something that’s been said by many mothers, and Nike, for years.
Just do it.
Now I know you’re thinking, ‘Really? That’s all you’ve got?’ But yes, that’s it. Nothing has to go from 0 to 60 overnight. You don’t have to go from nothing, to asking a friend to go to a neurologist appointment with you, or a tysabri infusion if those are your versions of 60. Just starting is the point.
As soon as you flex your help muscle, the magic starts to happen. Getting over the initial fear is the biggest piece of the puzzle. Once you’re able to successfully ask, it gets easier from there.
Start small if you have to. When someone volunteers and says ‘Can I pick anything up for you’, instead of saying no yet again, say yes. Many small yeses will add up. It will be uncomfortable at first, it certainly was for me. But overtime, getting support for multiple sclerosis it will get easier.
I didn’t say overnight, I said overtime. Think about these questions for a minute. What is something you need right now? Is there someone you can ask to help with what you need? What is stopping you from doing so? Whatever you come up with you may or may not decide to act on it, and that’s ok. What matters is you challenged your old thinking patterns, and considered new ones.
follow along on Instagram:
First, comment SLAP and I’ll send you my morning exercise that is great for waking you up and helping you feel better in your body.
Second.. The actually doing something day after day after day is the hardest part!
Most people think consistency means daily- but that’s not true! Don’t fall into that perfectionist trap.
Set an alarm on your phone a few times a day.
When the alarm goes off- don’t turn it off and ignore it- do the thing!
And you’re done!
How do you help yourself remember to be consistent?
#lissms #slapittomapit #multiplesclerosis #thisisms
First, comment SLAP and I’ll send you my morning exercise that is great for waking you up and helping you feel better in your body.
Second.. The actually doing something day after day after day is the hardest part!
Most people think consistency means daily- but that’s not true! Don’t fall into that perfectionist trap.
Set an alarm on your phone a few times a day.
When the alarm goes off- don’t turn it off and ignore it- do the thing!
And you’re done!
How do you help yourself remember to be consistent?
#lissms #slapittomapit #multiplesclerosis #thisisms
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.
There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.
The biggies that have helped me? 👇🏼
🥗Nutrition
🏋🏻♀️Movement
🧘🏻♀️Stress management
Want my most favorite, super short exercise that can help MS symptoms??
Comment: SLAP and I’ll send it to you!!
#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
Comment SLAP and I’ll send you the short how to video!
Your body functioning better so you feel better in 3 minutes?
It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?
Idk, I’ll let you be the final judge
#lissms #multiplesclerosis #slapittomapit #betterbrain
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.
Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻♀️
Your possibilities are endless!
Comment SLAP and I’ll send you the short video about how to do it!
#lissms #slapittomapit multiplesclerosis #thisisms
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
Take a time out for a literal minute.
It’s amazing what happens when you take the time to care for your body and nervous system.
#LissMS #multiplesclerosis #nervoussystemregulation
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??
#lissms #cutflowergarden
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
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