Traveling can bring a mix of emotions to anyone. Usually a mix of excitement and anxiety, getting ready for the unknown adventure ahead can be fun. But it can also be challenging. Long days, little sleep, being away from home, it can seem like a recipe for disaster. But add in the complexities of Multiple Sclerosis, and you’ve got yourself a tricky situation! Today I am sharing with you our multiple sclerosis travel guide!
Before I had MS, I never thought twice about picking up and going for a day trip, or longer adventure. I never thought about what I might need beyond clothes and a few other things. But now, I need to think about where I’m staying, what is available for food, the weather, etc. It’s definitely different than what it used to be.
Now, my husband and I love still to travel. It’s one of the things we choose to spend our money on and find joy out of. But MS makes it hard at times for sure. Here is our multiple sclerosis travel guide, for all kinds of travel.
Before traveling anywhere, you need to do a little pre-planning. If you’re going away for several days, make sure you have all your necessary medications and supplements. I like to pre package them into their own containers to make them easier to transport, as well as easier to fit into my suitcase.
I also like to scope out what the food situation will be like. Most often, we stay at an AirBnB, where we have our own kitchen set up. That allows us the freedom to cook our own food or go out if we choose. Eating AIP makes eating out tough, so having this option is invaluable.
When packing, make sure you have enough of everything, then add 2 more. I like to make sure I have extra undies (yup, just in case), extra doses of supplements/meds just in case we’re stuck somewhere and plenty of snackssss, cause finding food on the road or in the airport is hard. #thatAIPlife
If you’re booking a hotel room, make sure to call ahead. Especially if you need accommodations. Accessible rooms vary from hotel to hotel and mean different things. One might just have a shower bar in the bathroom, while another is completely accessible. Make sure to call ahead before booking to know the hotel provides.
One of the nice things about traveling on a road trip is that you can usually bring more things that can help. Like, bringing a body pillow on an airplane probably isn’t the best idea. But in a car, good to go. However, one of the drawbacks, is that you’re sitting for a longer period of time, usually. So there’s pros and cons to both types of travel.
One of the biggest things I suggest with our multiple sclerosis travel guide and that my husband and I do when driving anywhere is stop often. It doesn’t really add that much to the length of the drive, but it adds SO much to the enjoyment. Getting out often to stretch, walk around and take bathroom breaks is one of the best things we do. On our many road trips to Ohio, my husband and I often stop every few hours, if not more.
Bringing our own food is key as well. Even if you’re not following a special diet like AIP or Wahls, bringing food that you enjoy can make the trip that much more enjoyable.
Like I mentioned above, bringing whatever you need to feel more comfortable is going to make your trip that much more enjoyable. If you need special pillows, cooling towels, travel pillows, etc. bring them. Yes, it can feel like a lot when you pile it into the car, but when it’s your comfort you’re talking about, don’t compromise.
My husband and I were lucky to be gifted TSA Pre Check. It has been one of the best things for our air travel ever. Not only does it save time in the security line, we don’t have to take everything out of our bags, take jackets or shoes off. I didn’t realize how much of a pain this was until I didn’t have to do it anymore! Seriously, if you travel even once a year, it’s worth it.
Try to book your flight yourself, not through a 3rd party site like kayak or booking.com. I know they sometimes have good deals, but if something goes wrong, you can’t talk to the airline about changes. You have to talk to the website you booked the flight on. And if things are moving fast, like a missed flight and you need to change things asap, that could leave you in a pinch.
Make sure the airline knows who you are and that you’ll need assistance. They should be more than willing to help you out. If you’re in the back of the plane for seats, you should be able to be moved up front. If you need any airport assistance, like a wheel chair, make sure to let them know that as well.
Leave plenty of time both before your flight as well as between any connections. The last thing I ever want is for my first flight to be late, and we have to sprint across the airport to the connecting flight. Worst nightmare. Usually at least an hour in between is my standard, and even that can get messy sometimes.
Once you get to where you’re going, enjoy yourself! Trust that you have done all the preparation you need.
Locals or a concierge can make finding activities much easier. They’ll know what is adaptable and what isn’t. Oftentimes, reviews of attractions don’t really have us in mind.
If you do need something, make sure to ask. Others who know the area better can often be your best resource. Apps like “Around Me” can be helpful in a pinch as well (it can tell you the nearest gas station, hospital etc). I like the app “Flush”, like the name sounds, it tells you the nearest public bathroom. Saved me on more than a few occasions so far.
Getting prepped and on your way can be daunting, for sure. But once you’re at your destination, try to slow down, and enjoy your time. The experiences we have make the lasting memories, or something cliche like that. I hope you found this multiple sclerosis travel guide helpful!
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Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻♀️
But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.
Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.
Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.
Here’s to many more years defying what I initially thought to be true about MS.
Comin with me? Hope so.
#lissms #multiplesclerosis #thisisms #lifewithms
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.
And I noticed my thoughts… is this a “THING”??
Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂
When was the last time you had this thought process??
#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
When you’re living with MS, it’s not that you don’t want to feel better…
It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.
That’s where support, structure, and accountability change everything.
That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works
Only the waitlist is getting access as a Founding Member.
Comment WAITLIST and I’ll send you the link to add your name
#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
But seriously.. this isn’t too far off 😂
Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.
Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.
I could do it, my clients are doing it, I know you can too.
That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.
Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.
That’s why I want to invite you to the waitlist for what I have coming.
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.
Comment WAITLIST below and ill send you the link to join the list
#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
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