I’ve heard too many times lately about doctors not listening, explaining their reasonings for actions or acting in ways that are intimidating. Hearing stories like this makes me so upset and sad, for many reasons. One of the biggest is that situations and relationships like this, can lead to you not getting the proper care that you need and deserve. Which isn’t cool in my book.
One of the best ways to prevent negative doctor situations and interactions is to create a partnership right from the beginning. Not only will this set the tone for your doctor-patient relationship, it will express to your doctor that you are an active participant in your medical treatment, and should be treated as part of the team.
There are many doctor rating sites out there these days. When looking for a new doc, take some time, get a list of names from your insurance company and see if they have any reviews. This will give you a good indication of how they practice, how organized they are and how they interact with patients. Sometimes it will take meeting with a doctor and asking them questions like “do you welcome suggestions from your patients” or “how do you handle communication with your patients”. Answers to these questions will be very informational about how they practice.
A doctor who supports you, will welcome your suggestions and ask for them. A doctor that gets frustrated or impatient with your suggestions, isn’t open to hearing them at all.
During the first appointment, communicate clearly that you are an active participant in your own health care. Make sure they are aware that you wish to have an active role in decision making and understand what is going on in treatment. Communicate how much, or how little, you want to know about any new diagnoses, and if you want to be involved in the diagnostic process. Sometimes not having a diagnosis can be scarier than hearing what your doctor is thinking. Make sure they know you’re ok with hearing their thought process and how much, if that is something you want.
Come to each appointment as prepared as possible. Think ahead of time if you have any questions, have experienced new symptoms or need any new medications or refills. The more direct and concise you can be about what’s going on, the better your doc will understand you. Similar situation applies for when you’re recounting your story and past history. There is so much in our stories, it’s easy for us to get off track sometimes. But the more you can be clear and direct about what happened, the easier it will be for your doc.
When a new treatment is offered or a new test suggested, make sure you know why you are getting that recommendation. Asking clarifying questions can be helpful. For example, if you don’t understand why a test is suggested, “I don’t understand why you want this test, can you explain it again?”. This approach can be used with any other part of your treatment as well. This also applies to any language you may not understand. Often when docs are talking with us, they use medical jargon that may be difficult to understand. Asking the same clarifying question can be helpful in this situation as well.
Being your own biggest advocate is the best step you can make in your health journey. This means speaking up when you feel the need to or saying if you agree or disagree with the trajectory of your treatment. Speaking up to a doc (or anyone) can feel uncomfortable sometimes. But having one tough conversation can save a lot of hassle and potentially more uncomfortable conversations down the road.
Another part of being your own advocate is being on top of your health information, like insurance information, billing and records. Keeping your own file of information can be really helpful as well.
Creating these partnerships with your doctor at the start can be beneficial, for both you and your doctor. The more satisfied you are with your doctor and healthcare team, the easier your autoimmune journey will be.
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I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”
Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.
Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.
This is also why I believe that having a community of others who get it is invaluable.
I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.
They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄
You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.
If you wanna talk to the right people, I’m creating something for you..
Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..
BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in
#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
As I type this post, we’re on the way to 100 degrees today and we’re in the middle of a heat wave.
🥵 is an understatement lol.
If you’re an MSer.. you know an increase in temperature can cause our already compromised neurons to work even less effectively than normal.
There’s a few things I have found helpful for managing the heat:
BE PROACTIVE: Instead of waiting until you’re about to melt, use cooling strategies before you really need them.
CREATE AN OASIS: If you don’t have central AC in your house, make (at least) one room in your house a cool oasis to hide in.
ACCESSORIZE: Get alllll the cooling products. @koldtec @releafpack and a cooling vest are a must!
HYDRATE: Drink plenty of water and add electrolytes! Trace Minerals is my fav, but there is Buoy, LMNT or Liquid IV too!
But most of all, make sure to advocate for yourself and your comfort.
You deserve comfort as well as any other person.
Please don’t let anxiety and fear of “ruining” a summer day keep you from asking/stating what you need.
What are your top ways to stay cool?? Tell us below!
PS!!
I’m deep in the trenches creating a one stop shop for anything and everything MS healing. A place where you can plug into and get ideas for recipes, workouts, stress management and living life with MS.
As well as support and understanding from people who get what it means to live with an autoimmune disease.
Only the waitlist will get an invite- comment WAITLIST below and I’ll add you!!
#lissms #multiplesclerosis #thisisms #becausems #heatintolerance #healingmultiplesclerosis
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
What she also didn’t know?
The MS diagnosis would be the best thing to happen to her
Ok maybe not best lol, but I now can see what a gift it was.
You see, the MS diagnosis I got eventually gave me a reckoning moment with my health.
Change something, or else this is gonna go downhill fast.
This being my body, my ability to move, to live doing the things I want to do.
And man did it help.
I went from “aggressive MS” to not even thinking about MS on some days.
This process I went through? That’s exactly what I help others with now.
I currently have 2 Individual Client spots open!! (1 might be gone soon though..)
We can work on..
✨How you’re feeling mentally & emotionally about your MS diagnosis.
✨Strategies to mitigate your symptoms, that include nutrition, movement and cognitive/emotional methods
✨Anything else your body needs
Interested in what this would look like for you?
Comment 🧡🧡 below and I’ll send you details!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #multiplesclerosiswarrior #multiplesclerosissupport
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
First..
Save this reel so you can come back to it and send it to a bestie so they can feel better too!!
Now.. how do you feel after taking that breath?
A little more calm, centered and focused?
Probably.
How we breathe is such a huge piece of the nervous system regulation puzzle, this well def help in your efforts.
Give it a try a few times a day, and let me know what you notice!!
If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in MS.
I use all the tools I’ve comprised over my 10+ year career (and 15+ years with MS) to help my clients decrease their symptoms, improve their overall health and get back to living life on their terms, not MS’ terms.
I currently have 2 Individual Coaching spots open!! (if you live in MA I take some insurance!!)
Comment 🧡 below to learn more!!
#lissms #multiplesclerosis #nervoussystemregulation #becausems #thisisms #multiplesclerosiswarrior #healingmultiplesclerosis
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Habits to Help MS Symptoms
In no particular order:
• Food/ our diet
• Movement
• Breathing
• Tracking/Review
• Joy! Fun! Presence!
Want my free Eating for MS Guide? Comment FOOD and I’ll send it to you!
Want my 3 minute morning routine that helps your brain, body and mind?
Comment MOVE and I’ll send it to you!
Let me know if you like these lives and want to hear about more topics!
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 Underrated Supplements to help MS symptoms
In no particular order:
• ALA- Alpha Lipoic Acid
• NAC N-Acetylcystine
• Lions Mane Mushroom
• NADH/NAD+
• Pre/Probiotics
Have you tried any of these before??
What has been your experience?
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
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