Managing Heat Intolerance with MS


One of the most well known symptoms of Multiple Sclerosis, at least to us MSers, is heat intolerance. Being exposed to heat, whether it is from being outdoors, being in a hot shower or exercising, can make MS symptoms temporarily worse, which is called a pseudo-exacerbation. Once our bodies return to normal temperature, the symptoms dissipate and return back to their normal state. 

Heat Intolerance

During a pseudo-exacerbation there is no actual disease progression taking place, however, while the symptoms are being felt, they are very real! In fact, back in the day before MRI’s and modern medicine, doctors used to use the “hot bath test” to diagnose MS. In this test, individuals who were suspected of having MS were put in a hot bath to see if their symptoms increased. As unpleasant as an MRI is, I’m sure that would be much worse.

Doctors believe a pseudo-exacerbation occurs because heat causes the nerves, which are already are damaged, to perform their functions even less effectively. When body temperature increases, even by a quarter or half a degree, the electrical signals sent between demyelinated nerves are even further negatively impacted. Some of the most common symptoms that individuals experience when in the heat are:

  • Fatigue
  • Blurry Vision (Uhthoff’s Phenomenon)
  • Numbness/Tingling
  • Pain
  • Cognitive Difficulties

Strategies to Manage the Heat

Sometimes being in the heat is unavoidable, so being prepared is the best thing you can do! Here are some tips for beating the heat: 

  • One of the things that has helped me the most this year, is to be proactive about my strategies. Meaning, don’t wait until you’re overheated to act. Use one of these strategies before you feel like you’re about to catch on fire.
  • AC is your friend! Staying in the AC during times of high heat or humidity is sometimes a must. Or having a nicely air conditioned house or room to come back to is important. When I didn’t have central air my doctor gave me the hint to make one room an “AC oasis” that is cool 24/7, which should be your bedroom, so you can sleep comfortably too.
  • Have ice water, or popsicles on hand all the time. Ice water is one of the fastest ways to bring your core temp down asap.
  • Have a personal fan/personal water mister that you can bring with you EVERYWHERE.
  • When working out, be smart about your environment. Choose indoor areas that have AC. If you must workout outside, pick morning or evening times when it is cooler.
  • Try cooler/cold showers to bring down your body temp too. I really like this after a workout, this helps to bring my body back down to a normal temp quite quickly. If you have a hard time tolerating a cold shower, you can also dip your feet into a cold bathtub or run your arms under cold water or splash your face with cold water as well.
  • There are tons of personal cooling vests or articles of clothing that you can purchase that can help for longer term cooling as well. I just started using a Koldtec towel (review soon!) and many others do as well. You can learn more about them here.
  • Be smart about your clothing. If you’re at home and feel comfortable, don’t be afraid to ditch some clothes! Sometimes I’ll hang out in just a long t-shirt at home. It’s amazing what that does for your body temp. When I’m out, I’ll wear flowy shirts and loose shorts as well.
  • Get shady. When doing outdoor activities, try to find a spot where you can hide in the shade. It may not seem like it, but shade can feel like a huge temperature difference and can make being outside tolerable.

What I’ve found the most helpful for beating the heat is having a place to run back to that provides shade, whether that is an awesome beach tent or big tree, something that provides relief from the sun’s rays is key. I’ve found that sometimes in the shade it feels 10 degrees cooler than when in the sun. I also like to have a cooler with ice water with me. Yes, this means lugging a cooler to the beach, but in order to make my beach time fun, this is a necessity. My last thing that is key? Running in and out of the water. Obviously this isn’t always do-able if you’re not at the beach, so bringing some way to apply cold water, either a personal mister or cold towel or even having a mini AC handy is important. 

But most of all, make sure to advocate for yourself and your comfort. Thankfully, my husband knows me better than I know myself, and will be able to tell when I’ve had enough. But sometimes I’m not with him and I need to speak up on my own behalf. You deserve comfort as well as any other person. Please don’t let fear of “ruining” a summer day keep you from saying what you need.

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I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems

I get it..

It seems like it would be good.

Because others around you are taken care of..
Because others around you feel good..
Because others around you are happy..

But what about you??

In reality, that’s just making it harder for you to help yourself heal and probs making your MS symptoms worse.

I’ve worked with so many people with MS and autoimmune disease… 1 thing (among many) that they all have in common is a habit of putting others before themselves, saying yes way too much and forgetting about what they want themselves.

Feel a little called out?
Then my course Embodied Resilience is for you.

This is a course all about managing + improving your stress tolerance- since stress is the number 1 trigger of symptom flares and relapses

And- it’s on sale for Black Friday!!
Comment SALE below and I’ll send you the link!!

#lissms #multiplesclerosis #healingmultiplesclerosis #thisisms #becausems
...

18 3
✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!! 

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems

✨Moving your body✨

Notice I didn’t say exercise, although yes that also helps.

Stress hormones can get stuck in our bodies, our cells, our muscle tissue for various reasons.

Making it super easy for us to carry stress around with us- which shows up often as:

Pain
Tension
Trouble breathing
Difficulty with balance

It’s no coincidence that these are often prominent MS symptoms too. Sometimes it’s hard to tell where effects of MS end and effects of stress begin.

Being able to offload accumulated stress is key to being able to improve MS symptoms.

My course Embodied Resilience shows you exactly how to do this, and it’s gonna be on sale for Black Friday.

Comment ME below and I’ll send you the sale link when it’s ready!!

#lissms #multiplesclerosis #nervoussystemhealing #nervoussystemregulation #stressmanagement #thisisms #becausems
...

8 2
I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move 
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!

I’ve seen myself and tons of clients through behavior change to help improve their MS + autoimmune disease symptoms.

There are SO MANY things that can help us.

But the one I’ve seen move the needle the most?

Working on your mindset and stress management tools.

We can change our diet
Change how we move
Change the products we’re using
Change the supplements we take..

But if we’re still in the high stress state that most of us are in.. all those will only go so far.

Stress is my biggest symptom trigger, and 99% of my clients feel the same.

My biggest course sale is coming Black Friday, included is my course Embodied Resilience, all about learning how to actually manage stress- so you’re not constantly battling MS flares too.

My email list is gonna get first dibs..
Comment LIST below and I’ll add you so you’re notified first!!
...

18 8
And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis

And my period started to add to the joy 🙃🙃

We can do hard things y’all,
breathe in, breathe out,
all will be well.

#Electionstress #seasonaldepression #anxiety #multiplesclerosis
...

19 4
Home stretch!!

Do what you need to do today to take care of yourself friends.

#Electionday #Govote #Vote

Home stretch!!

Do what you need to do today to take care of yourself friends.

#Electionday #Govote #Vote
...

9 1
I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.

They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.

I know when so many feel the same way, you might too.
I know I feel this way too.

I’m working with them to put habits in place NOW that will support them through the winter months.

Here are 2 small shifts we talked about this week:

1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️

Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.

2. Move your body!! 💃🏃‍♀️

The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do. 

These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.

Let’s crowdsource… what else helps you in winter?? 
I know there are many other things that can!!

I think 90% of my clients have talked about already feeling the shift to Fall and Winter hardddd.

They are worried about seasonal depression coming back with a vengeance, feeling sad summer is gone and so many other things.

I know when so many feel the same way, you might too.
I know I feel this way too.

I’m working with them to put habits in place NOW that will support them through the winter months.

Here are 2 small shifts we talked about this week:

1. Get sunlight into your eyeballs as soon as you can in the morning.☀️☀️

Ideally this is outside, there will be many science bro’s out there telling you that anything else “doesn’t count” but I say that’s BS.
Yes, the sunlight will have a greater impact if you’re viewing outside, but even if you’re behind a window it will do something.

2. Move your body!! 💃🏃‍♀️

The change in seasons to colder weather makes it super easy to hibernate and move wayyy less than we were in the summer.
I know I’ve been guilty of that this week and it’s showing in my sleep.
But moving our bodies can be so helpful for regulating so many things in our bodies.
Ideally you’re moving in the morning, but again- any time of day will do.

These are 2 small shifts that can make it easier for your body to transition to, and live with the Winter months.

Let’s crowdsource… what else helps you in winter??
I know there are many other things that can!!
...

10 4
All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.

Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.

We start tomorrow at 5:30pm eastern, you coming?

All the tools that are inside Holistically Healing MS I’ve used myself to decrease my MS symptoms and significantly feel better in my body.

Over the next 8 weeks, let me be your guide on how to make this a reality for yourself.

We start tomorrow at 5:30pm eastern, you coming?
...

11 3

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