Managing Heat Intolerance with MS


One of the most well known symptoms of Multiple Sclerosis, at least to us MSers, is heat intolerance. Being exposed to heat, whether it is from being outdoors, being in a hot shower or exercising, can make MS symptoms temporarily worse, which is called a pseudo-exacerbation. Once our bodies return to normal temperature, the symptoms dissipate and return back to their normal state. 

Heat Intolerance

During a pseudo-exacerbation there is no actual disease progression taking place, however, while the symptoms are being felt, they are very real! In fact, back in the day before MRI’s and modern medicine, doctors used to use the “hot bath test” to diagnose MS. In this test, individuals who were suspected of having MS were put in a hot bath to see if their symptoms increased. As unpleasant as an MRI is, I’m sure that would be much worse.

Doctors believe a pseudo-exacerbation occurs because heat causes the nerves, which are already are damaged, to perform their functions even less effectively. When body temperature increases, even by a quarter or half a degree, the electrical signals sent between demyelinated nerves are even further negatively impacted. Some of the most common symptoms that individuals experience when in the heat are:

  • Fatigue
  • Blurry Vision (Uhthoff’s Phenomenon)
  • Numbness/Tingling
  • Pain
  • Cognitive Difficulties

Strategies to Manage the Heat

Sometimes being in the heat is unavoidable, so being prepared is the best thing you can do! Here are some tips for beating the heat: 

  • One of the things that has helped me the most this year, is to be proactive about my strategies. Meaning, don’t wait until you’re overheated to act. Use one of these strategies before you feel like you’re about to catch on fire.
  • AC is your friend! Staying in the AC during times of high heat or humidity is sometimes a must. Or having a nicely air conditioned house or room to come back to is important. When I didn’t have central air my doctor gave me the hint to make one room an “AC oasis” that is cool 24/7, which should be your bedroom, so you can sleep comfortably too.
  • Have ice water, or popsicles on hand all the time. Ice water is one of the fastest ways to bring your core temp down asap.
  • Have a personal fan/personal water mister that you can bring with you EVERYWHERE.
  • When working out, be smart about your environment. Choose indoor areas that have AC. If you must workout outside, pick morning or evening times when it is cooler.
  • Try cooler/cold showers to bring down your body temp too. I really like this after a workout, this helps to bring my body back down to a normal temp quite quickly. If you have a hard time tolerating a cold shower, you can also dip your feet into a cold bathtub or run your arms under cold water or splash your face with cold water as well.
  • There are tons of personal cooling vests or articles of clothing that you can purchase that can help for longer term cooling as well. I just started using a Koldtec towel (review soon!) and many others do as well. You can learn more about them here.
  • Be smart about your clothing. If you’re at home and feel comfortable, don’t be afraid to ditch some clothes! Sometimes I’ll hang out in just a long t-shirt at home. It’s amazing what that does for your body temp. When I’m out, I’ll wear flowy shirts and loose shorts as well.
  • Get shady. When doing outdoor activities, try to find a spot where you can hide in the shade. It may not seem like it, but shade can feel like a huge temperature difference and can make being outside tolerable.

What I’ve found the most helpful for beating the heat is having a place to run back to that provides shade, whether that is an awesome beach tent or big tree, something that provides relief from the sun’s rays is key. I’ve found that sometimes in the shade it feels 10 degrees cooler than when in the sun. I also like to have a cooler with ice water with me. Yes, this means lugging a cooler to the beach, but in order to make my beach time fun, this is a necessity. My last thing that is key? Running in and out of the water. Obviously this isn’t always do-able if you’re not at the beach, so bringing some way to apply cold water, either a personal mister or cold towel or even having a mini AC handy is important. 

But most of all, make sure to advocate for yourself and your comfort. Thankfully, my husband knows me better than I know myself, and will be able to tell when I’ve had enough. But sometimes I’m not with him and I need to speak up on my own behalf. You deserve comfort as well as any other person. Please don’t let fear of “ruining” a summer day keep you from saying what you need.

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I’M ALISSA!

I help women who have also been diagnosed with Multiple Sclerosis make specific and personalized diet, lifestyle & subconscious changes so that they can begin to heal their body, reduce disease symptoms, and return to a life they love.hey there,

follow along on Instagram:

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa. 
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis. 

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition 
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management 

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems

If we haven’t met yet, Hi! 👋🏼👋🏼 I’m Alissa.
I’m a Holistic Practitioner & Therapist specializing in Multiple Sclerosis.

There are SO many tools that we can use to help improve our bodies functioning- which can in turn improve our MS symptoms.

The biggies that have helped me? 👇🏼

🥗Nutrition
🏋🏻‍♀️Movement
🧘🏻‍♀️Stress management

Want my most favorite, super short exercise that can help MS symptoms??

Comment: SLAP and I’ll send it to you!!

#lissms #SlapittoMapit #multiplesclerosis #thisisms #becausems
...

1 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge
...

0 0
Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes? 

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true? 

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain

Comment SLAP and I’ll send you the short how to video!

Your body functioning better so you feel better in 3 minutes?

It sounds like a stupid infomercial BS claim I know and I roll my eyes every time I type it, but.. it’s kinda true?

Idk, I’ll let you be the final judge

#lissms #multiplesclerosis #slapittomapit #betterbrain
...

10 5
It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel. 

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️ 

Your possibilities are endless! 

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms

It’s an easy exercise with a silly name, but it actually packs a punch and can really change how you feel.

Imagine measurably more energy and feeling more stable and balanced- and even improving a few MS symptoms here and there too?🤷🏻‍♀️

Your possibilities are endless!

Comment SLAP and I’ll send you the short video about how to do it!

#lissms #slapittomapit multiplesclerosis #thisisms
...

16 4
Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system. 

#LissMS #multiplesclerosis #nervoussystemregulation

Take a time out for a literal minute.

It’s amazing what happens when you take the time to care for your body and nervous system.

#LissMS #multiplesclerosis #nervoussystemregulation
...

13 1
First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden

First year flower garden needed a post. Already looking forward to next summer, maybe a little less yellow? Can’t wait for the zinnias to bloom!
😂🌼💛
What are you growing??

#lissms #cutflowergarden
...

17 0
Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all. 

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so. 

#lissms #multiplesclerosis #thisisms #lifewithms

Thankfully I haven’t heard any of these in a while.. maybe that means I’m getting my point across 🤷🏻‍♀️

But if you’re new here, I value holistic lifestyle medicine (snake oil 😂) but ALSO conventional medicine, I utilize it all after all.

Yes, what we do as an individual matters for our health.
But so does the health systems we as individuals operate in.

Tomorrow is my MS-aversary, 16 years of having this disease. my newly diagnosed 24 year old self would be pretty shocked that I’m 40 (like in general lol) and also not in a wheelchair.

Here’s to many more years defying what I initially thought to be true about MS.

Comin with me? Hope so.

#lissms #multiplesclerosis #thisisms #lifewithms
...

35 4
I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer… 
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior

I’ve tripped a few times in the last few weeks.. nothing crazy, but I noticed.

And I noticed my thoughts… is this a “THING”??

Oh the constant wonderings of an MSer…
is this a regular life occurrence?
Or is this a new symptom? 😂😂

When was the last time you had this thought process??

#lissms #multiplesclerosis #thisisms #becausems #multiplesclerosiswarrior
...

53 3
When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name 

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing

When you’re living with MS, it’s not that you don’t want to feel better…

It’s just that life keeps interrupting the plan.
Stress, symptoms, fatigue — they throw you off track.

That’s where support, structure, and accountability change everything.

That’s exactly what my membership is for.
✔️ Evidence-based strategies for MS
✔️ Real community and support
✔️ Gentle consistency that actually works

Only the waitlist is getting access as a Founding Member.

Comment WAITLIST and I’ll send you the link to add your name

#lissms #MultipleSclerosis #MSwarrior #MSsupport #ChronicIllnessHealing #MScommunity #HolisticHealing #NervousSystemHealing
...

16 2
But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24. 
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst. 

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do. 

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids. 

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list 

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity

But seriously.. this isn’t too far off 😂

Life handed me a lemon that was a MS diagnosis at 24.
Life handed me a lemon that was multiple relapses and MS progression by 30.

Then I snatched those lemons, made some healing lemonade, and feel night and day different than I did 10 years ago when my symptoms were at their worst.

I could do it, my clients are doing it, I know you can too.

That’s why I’m so passionate about doing what I do. I know it’s possible for you to feel better in your body and be able to do the things you want to do.

Like go for a walk or hike with your spouse, say yes to a spontaneous night out with friends or get up and down off the floor playing with your kids.

That’s why I want to invite you to the waitlist for what I have coming.

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.

Comment WAITLIST below and ill send you the link to join the list

#lissms #multiplesclerosis #multiplesclerosiswarrior #becausems #thisisms #communityheals #mscommunity
...

17 2
I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things.. 

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in 

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport

I have a saying about dealing with MS (and any other autoimmune/chronic illnesses) that inevitably comes up in my work with clients:
“You don’t get it, until you get it”

Meaning, you don’t understand living life with MS (or any of the above), until you live in a body that has it.

Which is why living with MS can be so tough and lonely, because its hard to find people that truly understand what you mean when you say you’re exhausted, or brain foggy or “fine”.

This is also why I believe that having a community of others who get it is invaluable.

I’ve seen countless times over where someone new to one of my groups is able to feel fully seen and heard for the first time, and that is priceless for them and their healing.

They walk away feeling validated, understood and at home, which are hard to come by at the doctors office 😂🙄

You’re not too much
You’re not alone
You’re not lazy
You’re just talking to the wrong people.

If you wanna talk to the right people, I’m creating something for you..

Think, somewhere to go online, where you can: connect with others who have MS, get questions about MS answered, get tools that can help your symptoms, support & accountability to help with actually doing those things..

BUT- only the waitlist is going to hear about it. So- if you want to be notified and involved in creating whats coming, comment WAITLIST and you’re in

#lissms #multiplesclerosis #multiplesclerosiscommunity #thisisms #becausems #multiplesclerosissupport
...

14 3

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