Sleep Issues

One of the lesser talked about symptoms of MS are the various sleep issues that can be present. Of course, we all know about the fatigue that may or may not be a result of said sleep issues. But the sleep issues that accompany the disease as well are lesser known. Fatigue can be caused by the sleep issues that …

Traveling with MS

Traveling can bring a mix of emotions to anyone. Usually a mix of excitement and anxiety, getting ready for the unknown adventure ahead can be fun. But it can also be challenging. Long days, little sleep, being away from home, it can seem like a recipe for disaster. But add in the complexities of Multiple Sclerosis, and you’ve got yourself …

Finding Your Supports by Asking for Help

Supports and Help Having adequate supports in place while dealing with MS is incredibly important. However, what ‘proper support’ looks like for each individual may be different. Some people require a support team of many doctors, friends and family to help them with managing their symptoms, appointments and daily tasks. While others need less around the clock support and just …

Medical Marijuana and CBD

Medical Marijuana and CBD What are the differences and benefits? Medical Marijuana has caused quite a stir in the past few years. From government regulations to amazing patient success stories, it seems like everyone has an opinion about it. But what is it when you get down to it? There are so many different terms thrown around, it’s certainly confusing. …

Regenerating Myelin and Remyelinating Nerve Cells

A few months ago, a study made waves in the MS community. It was about how scientists at OHSU discovered how to regenerate myelin using a specific compound called sobetirome, which is used in thyroid hormone therapy (which actually hasn’t been used in people due to the side effects). Researchers developed a new form of the compound that would get …

Making the Most of your Beach Day

Heading to the beach is one of the best summer activities. But what if your autoimmune disease has turned that fun beach trip into a nightmare? Don’t worry, I’ve got some tips and tricks for making that day of sunshine fun again! My autoimmune disease, Multiple Sclerosis, rears its ugly head in the heat and humidity, which makes for really …

Heat Intolerance and Managing Summer

It was a beautiful day by anyone’s standards, except a runner. 72, mostly sunny, perfect early summer day in June. But to me, it felt like 90 degrees and scorching hot. It was 2013 and I was running the B.A.A 10K. I was in the middle of my running “career” and in the middle of my 2nd or 3rd 10k. …

Positive Things I’ve Gained from My MS Diagnosis

Usually when you think of getting a diagnosis like Multiple Sclerosis, only negative things come to mind. Depression, anger, grief or sadness are some of the first emotions that might pop into your head when you think of a diagnosis like that. However, once the dust has settled and you have time to think about life and how the diagnosis …

Grief

There are many emotions that come and go throughout life with Multiple Sclerosis and one of those is grief. Some people might not recognize their grief, as grief, and mistake it for depression (which often goes hand in hand) or just feeling down/angry/disbelief etc. But grief in chronic illness is real. Some professionals name our grief as “infinite loss” or …

Depression

Multiple Sclerosis is a tough disease. It has many common symptoms, vision problems, balance issues, cognitive difficulties. But one that isn’t mentioned, but should be, is depression. Depression is one of the most common symptoms of MS, but one of the least talked about. Prevalence The numbers can vary from study to study, but around 40-50% of individuals who have …