When I think back on my life pre-MS, pre-autoimmunity, I was sick or hurt a decent amount of the time. Not like 24/7 or anything like that, but something always hurt, or I was sick. This increased as I got older, and especially through high school. I used to joke that my body was revolting and that it was attacking itself.
Damn. How spot on I was.
Little did I know that I was foreshadowing something epic. My little joke would become not so funny in the not so distant future. And that future? Would be changed forever.
Thankfully, I was diagnosed rather quickly. I started experiencing weird symptoms at the beginning of the summer of 2009 and by the end of August, I had a diagnosis of Clinically Isolated Syndrome (CIS). The first stage of an MS diagnosis; when you’ve only had 1 episode of symptoms, and your doc isn’t quite sure yet of how you’ll progress. So you get thrown into no-mans-land. A waiting game of will I or won’t I. Will this be the appointment where it all comes crashing down? Or will I squeak by until next time.
I didn’t make it that far into no-mans-land.
I got the “official” MS diagnosis soon after. To make things easier, I just count the original CIS diagnosis date as my MS diagnosis date. It was already happening, already set in motion, why confuse things even further.
I had my medication chosen. Reluctantly I began to learn how to inject myself daily. This was the new normal, I guess.
Over the next few years, I went along with life as “normal”. Or as normally as any young 20-something could, while shooting myself in various parts of my body daily. Dealing with the lumps, divots, aches and pains that it brought. Whenever anyone asked how I was doing, I gave the standard answer: I’m Fine. With and emphasis on fine. Almost like an annoyed teenager talking to their parents.
I was angry. I wasn’t letting the gravity of the situation sink in. I didn’t want to. I hated anything orange and any mention of chronic disease or autoimmunity. I felt like it was a direct attack on me. I didn’t want help (do I ever?) and I didn’t want this disease.
Thankfully, I was still able to do all of the activities I was previously doing. Including running. I enjoyed running races and ran several half marathons. This led to a few run ins with blisters, which led to a few infections. You can’t really be on immunosuppressant medications while fighting infections I suppose. Gladly, I took a break from my MS meds while clearing the pesky infections.
The rub? I never really went back.
I was rather inconsistent with Copaxone after that. I had stock piles in my fridge, only injecting on the rare occasion. It wasn’t until I met my then boyfriend, now husband that I went back to a more consistent schedule. However, as before, the damage and inflammation were already set in motion.
My neurologist doesn’t blame MS for my first relapse, he blames me. Which, to be honest, is totally fair. I stopped taking my medication cold turkey with no other interventions in place. What was I really expecting? To be magically cured by stubbornness alone?
This set off an almost 2 year period of relapses, symptoms and uncertainty. I went from being symptom free, being able to live life relatively normally to not feeling an entire side of my body overnight. Yikes. Talk about scary and life being flipped upside down.
It took me a long time to get back to where I was. And even then, I’m not sure if I was ever 100% “back”. Heat now affected me, I got fatigued easier, I felt numb/tingly/burny at random times. I started to feel like I actually had MS.
I’m not sure how exactly, but at some point after all of these relapses, I found a few articles about the Autoimmune Protocol. I remember reading about it for the first time and having mixed feelings:
The struggle was real.
I shared my newfound wisdom with a few people, who immediately called me crazy. Part of me agreed with them, TBH. But after enough time, I said enough.
I have to feel better, and medication alone ain’t cutting it.
I embarked on my AIP journey in January of 2016. Fueled with the frustrations of incredible pain, overwhelming fatigue and uncomfortable sensory symptoms.
It was not easy. But nothing that is worth it ever is.
I struggled without my chocolate and coffee, like whoa. I found out that nightshades (includes tomatoes), that I practically lived on as a kid, were one of my biggest offenders. And I realized, that yes, I can learn to like veggies. So sorry mom, for all the pain I put you through.
Eventually the pain subsided, the fatigue lifted and the sensory symptoms calmed. Was I “back to my normal, pre-relapse self?” Not really. But was I better? Hell yea.
I slowly crawled out of my relapse hole. I started being more active. Bringing back more foods as my symptoms calmed. I started living life again.
Was it scary? Absolutely. I felt like at any moment I could wake up and not feel a part of my body, or move a part of my body. But that’s how this goes. At any point, anything could happen. To any of us, really. But I try not to live there. In the “unknown”. Because that’s all it is, unknown. If I know that I’m doing as much as I can for myself, then that’s all I need. The rest will shake itself out.
How am I doing now? I’m doing pretty damn good for someone who has had MS for 10 years, if I do say so myself. I’m proud of everything I have done, everything I have accomplished. All the work I have put in to improve my health.
My MS has changed over the years, for sure. It’s gone from almost silent, to frickin LOUD, back down to a dull murmur. A question I get frequently is: Am I totally 100% symptom free? As improved as I am, I’d have to answer that with a big Nope.
I still have trouble with the heat, I feel weird sensory symptoms now and again and my bladder? Oy vey. That’s a story for another day. But, I’m able to mostly get through a day without being derailed by MS. And that’s a big Win, in my book.
Sometimes my brain gets the better of me when I think about the future and what it holds. But I remind myself all I can do, is what I’m doing. The rest is up to God.
If you’re into healing lifestyles like I am, I’d love for you to join my new FB group, The LissMS Healing Lounge. We talk about all things healing lifestyle, from nutrition, to sleep, to stress, even pet friendly indoor plants. I’d love it if you came over and joined the discussion. Join here.
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Leg Weakness (reader question)follow along on Instagram:
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
5 things to keep in mind about nutrition and MS
1. Addition before subtraction
2. Eat your fruits, veggies and fats
3. Think about how you’re eating vs what you’re eating
4. Hydrate!!
5. Consider elimination if needed
More questions on food for MS?
Grab your Eating for MS Guide in my bio!!
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Just a guess…
Did I nail it? Almost? I bet.
I’ve seen the same patterns over and over within my clients (and tbh myself)
Growing up hyper independent..
Possibly not getting your needs met as a kid..
Feeling like you’re in control of it all girl boss style..
But unable to say no when asked to do anything..
You think you’re just being helpful, or kind, or smart..
In reality you’re keeping yourself stuck and sick.
Babe lemme tell you, there is a way out.
Embodied Resilience gives you that path out from under your unhelpful patterns (that always saying yes thing) and your over stressed life
Comment OUT below and I’ll send you details on the group.. we start next week!!
#lissms #multiplesclerosis #nervoussystemregulation #multiplesclerosiswarrior #nervoussystemhealing #thisisms #becausems #msawarenessmonth
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Stress & MS!!
• How our nervous system should function
• Why it doesn’t work “right” in todays world
• How to support our nervous system & stress response
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
Don’t think people pleasing & being a perfectionist with 0 boundaries is adding to your stress?
Think again babe 😬
It’s amazing how different my clients have felt after stopping these patterns-
And having support while doing so is paramount.
Embodied Resilience is that place for support and change.
Comment SAFE below and I’ll send you details!!
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
First, comment SAFE below and I’ll send you details on my course Embodied Resilience-
(Maybe the only live round this year) we start March 10th!!
Years and years ago, someone really confused me when they said meditating made their anxiety worse.
My baby therapist-in-training brain thought, well crap- isn’t that supposed to help???
While yes, it is supposed to, it often doesn’t.
(Especially if you’ve experienced trauma)
You see, before we get quiet with our thoughts in meditation, our bodies need to feel safe doing so.
If you don’t feel safe in your body, meditation won’t “work”.
I see this all the time in my clients:
• they’re going a mile a minute throughout the day..
• thinking 10 steps ahead of what they’re doing..
• ignoring their body all day..
then all of a sudden they sit down to try and meditate and- shocker- they “can’t”
You too? You’re not broken- promise 🧡🧡
Try this instead:
- Stop what you’re doing and actually sit down (I’ll wait)
- Close your eyes, take a few deep breaths and focus on a loud whooooooshing exhale
- Put your hand on your chest and notice what your body is physically feeling (tight chest? Hole in your stomach? Exhaustion?)
- Gently sway/rock your shoulders back and forth
- Open your eyes and come back to your surroundings. Look around the room and name a few objects you see around you out loud.
- How did that feel to your mind and body?
If you’ve been trying all the things to help reduce stress + calm your body and mind but find they “don’t work” I invite you into Embodied Resilience.
This is one of my signature programs designed to help you learn how to actually manage stress in an effective way, so stress doesn’t cause a MS symptom flare or worse- full blown relapse.
We’re still in pre-sale, so to get the best price grab your spot now!!
#lissms #thisisms #becausems #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
This is where I start all my clients when they want to start working on their:
- stress management and response
- nervous system regulation
- undoing the unhelpful behavior patterns that got us sick (people pleasing, perfectionism etc)
And the first step I’ll share in my masterclass tomorrow, Cultivating Resilience, all about stress + MS.
I’ll tell you about the rest of the process too.
Haven’t signed up yet? There’s still time!!
Comment STRESS below and I’ll send you the link to sign up!!
#lissms #multiplesclerosis #nervoussystemregulation #stressmanagement #healingmultiplesclerosis #thisisms #becausems
More ways my life has changed
👇🏼👇🏼
- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!
These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!
I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.
The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
More ways my life has changed
👇🏼👇🏼
- less nail biting
- my tiggers aren’t as loud and I can move through them without shutting down
- I dissociate less when experiencing really hard things
- conflicts are shorter with the hubby
- I’m able to ask for what I need
- more enjoyment day to day
- more dancing and fun
- more attending to my own needs
- putting myself first
- boundaries!!
These don’t necessarily scream “they’ll help your MS symptoms too”
But they absolutely will!!
I’m hosting a Masterclass all about stress + MS- and how we can help ourselves manage stress more effectively which in turn helps us to manage MS more effectively.
The class is happening Tuesday evening- comment STRESS below and I’ll send you the link to register so you don’t miss it!!
#lissms #multiplesclerosis #nervoussystemregulation #thisisms #becausems #nervoussystemhealing #healingmultiplesclerosis #multiplesclerosiswarrior #multiplesclerosisawareness
Is people pleasing or perfectionism signs of stress?
You betcha.
Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..
Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.
When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.
Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush
The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.
Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?
I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.
Comment STRESS below and I’ll send you the link to register!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
Is people pleasing or perfectionism signs of stress?
You betcha.
Not only are they adding to your mental & physical load via ignoring your needs, demanding perfection from yourself, etc etc..
Having less flexibility in your emotions and actions tells me a lot about your nervous system and how dysregulated you are.
When we have less flexibility in our emotions or how we relate to ourselves, that usually means our nervous system lacks flexibility to manage our daily stressors effectively.
Meaning- you struggle to not feel like an anxious, out of control mess
Or like an exhausted pile of mush
The answer is cultivating resilience in your nervous system & body so that you are able to handle the stress without increasing MS symptoms or these unhelpful patterns.
Wanna know my blueprint I’ve used to help my clients finally come out of years of (partially self inflicted) stress?
I’m hosting a free Masterclass next week allll about stress + MS, and how to live WITH stress, cause it ain’t goin anywhere.
Comment STRESS below and I’ll send you the link to register!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #becausems #thisisms #stressmanagement #multiplesclerosiswarrior #holisticliving
It’s a bold statement, but I stick by it.
Countless times I’ve seen my clients improve their symptoms when they change their diet, add supplements etc.
But nothing changes you, your MS symptoms & progression more for the better than working on your mindset, stress management and how your body tolerates stress (all parts of the same coin)
THAT is how you’ll find that one day you aren’t:
• An anxious mess in the morning..
• Having trouble saying NO when you really mean it
• Doing all the things to help everyone else BUT yourself
(Which I know you struggle with- and that’s keeping you sick still babe)
You can do hard things..
#lissms #stressmanagement #multiplesclerosis #multiplesclerosiswarrior #thisisms #becausems #nervoussystemregulation #nervoussystemhealing
It’s a bold statement, but I stick by it.
Countless times I’ve seen my clients improve their symptoms when they change their diet, add supplements etc.
But nothing changes you, your MS symptoms & progression more for the better than working on your mindset, stress management and how your body tolerates stress (all parts of the same coin)
THAT is how you’ll find that one day you aren’t:
• An anxious mess in the morning..
• Having trouble saying NO when you really mean it
• Doing all the things to help everyone else BUT yourself
(Which I know you struggle with- and that’s keeping you sick still babe)
You can do hard things..
#lissms #stressmanagement #multiplesclerosis #multiplesclerosiswarrior #thisisms #becausems #nervoussystemregulation #nervoussystemhealing
First, save this for later!
Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards
You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.
It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body
Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.
👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.
Awareness is always the first step babe.
Wanna know more?
Come to my Masterclass all about stress + MS, Cultivating Resilience
Comment ATTEND below and I’ll send you the link to save your seat!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
First, save this for later!
Second, what you gotta know about “managing stress” is:
it really matters how you care for yourself in the moment and afterwards
You see, most of us know when we’re experiencing moments of stress,
but we don’t know how to attend to ourselves to mitigate the impacts.
It all comes down to awareness of:
- Your present moment
- How that moment is impacting your body
Once you’re aware of how the stress you’re experiencing is impacting you and your body, THEN you can start attending to yourself and changing how your body handles stress.
👆🏼👆🏼that’s also how we mitigate stress induced MS symptoms or relapses.
Awareness is always the first step babe.
Wanna know more?
Come to my Masterclass all about stress + MS, Cultivating Resilience
Comment ATTEND below and I’ll send you the link to save your seat!
#lissms #multiplesclerosis #healingmultiplesclerosis #nervoussystemregulation #stressmanagement #spoonielife #thisisms
Yes I had been moving consistently
Yes I had been eating my veggies
But, the big thing that has helped over the last few years is regulating my nervous system.
You wouldn’t necessarily think so right away but let me explain..
You see, working on your nervous system means improving the amount of stress your body can handle.
And when your body can handle more stress, you can do more things (like walk miles and miles)
Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.
ESPECIALLY when you’ve “done everything” and “nothing works”
I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution
Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
Yes I had been moving consistently
Yes I had been eating my veggies
But, the big thing that has helped over the last few years is regulating my nervous system.
You wouldn’t necessarily think so right away but let me explain..
You see, working on your nervous system means improving the amount of stress your body can handle.
And when your body can handle more stress, you can do more things (like walk miles and miles)
Stress is one of the biggest triggers for MS symptoms and relapses, so working on your nervous system usually brings MS symptom relief.
ESPECIALLY when you’ve “done everything” and “nothing works”
I’m hosting a Masterclass on Feb 18th:
The MS Stress Solution
Inside you’ll learn my blueprint for nervous system regulation that I’ve used with my clients.
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement
Get in MS girlie, we have stress to manage 💅
But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.
You see- STRESS is where our autoimmune diseases alllll started.
Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.
And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.
Totally lost on how to do that? I got you!
I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.
Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
Get in MS girlie, we have stress to manage 💅
But seriously… stress management is the KEY to symptom management when you live with MS or any autoimmune disease or chronic illness.
You see- STRESS is where our autoimmune diseases alllll started.
Either due to emotional stress, physical stress, environmental stress… you get the picture, stress is the problem.
And unfortunately- it’s never going away, we can only learn how to manage it better for ourselves and our bodies.
Totally lost on how to do that? I got you!
I’m hosting a free masterclass all about how to manage stress in your daily lives- and in a way that doesn’t add a ton to your already packed to-do list.
Wanna sign up? Duh..
Comment STRESS below and I’ll send you the link to save your seat!!
#lissms #multiplesclerosis #nervoussystemregulation #nervoussystemhealing #thisisms #becausems #stressmanagement #seasonaldepression #healingmultiplesclerosis
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