When I was thinking about this topic, I wanted to know why vision issues are usually the first sign our bodies are in distress. Why is that such a common thread? There must be something there. Currently, the only thing I can find is that is a “definable” symptom. It’s not vague like numbness or tingling. There is actually data that can be collected when vision fails, a doctor can see the nerve that is angry and hurting. But there has to be more, the hunt for information will go on.
OPTIC NEURITIS
Optic Neuritis is caused by inflammation of the optic nerve, which connects the eye to the brain. The inflammation causes the symptoms which include eye pain, changes in color perception, graying of vision or loss of peripheral vision. It usually affects one eye at a time, but can affect both eyes, however, that is rare. Optic Neuritis can happen once, or multiple times during a persons life, as with everything else, it’s all individualized.
Treatment for Optic Neuritis is usually done with IV steroids, and occasionally a taper with oral steroids. As with most symptoms, steroids will calm inflammation, but will not speed the return to “normalcy” or change how well you’ll see after the episode of Optic Neuritis has cleared. Most individuals will find they eventually return to 20-20 vision in high contrast situations, so bright daylight they see fine. However, many individuals find that in low contrast situations, like dawn or dusk, their visual acuity/sharpness is still impaired. Some individuals find that their vision issues linger long after the inflammation has cleared, and this can lead to becoming legally blind.
DIPLOPIA
Diplopia is “Double Vision” that can be caused by a variety of things, but mostly caused by the eye muscles being weak or imbalanced, which causes the two images created by the eyes to not be fused together properly. It can also be caused by lesions in the brain stem or cerebellum. Diplopia can come and go, especially if fatigued or if straining your eyes (working on your computer too much?) and will often improve with rest.
Diplopia will usually resolve itself without treatment, but for some acute cases, IV steroids might be needed. Often times patching an eye for a short periods throughout the day (like for driving) might be helpful, but isn’t used in long term treatments as the eye will become weaker and accustomed to the non-use. There are special eye glasses that can be used in treatment as well, and also surgery, but that should be considered as a last resort, as resolving Diplopia can take a year or more in some cases.
NYSTAGMUS
Nystagmus is when the eyes will make uncontrolled, rapid, vertical or horizontal movements and is caused by damage to nerves and parts of the brain that control eye movement. Often times this occurs during a relapse, but may continue afterwards as well. These movements may be mild and unnoticed by the individual (only noticed by those worried individuals around them) or they may be more severe and interfere with vision. If severe enough to be noticed by the individual, Nystagmus may cause issues with depth perception and balance. Someone with severe Nystagmus may perceive their world as always moving and can contribute to feeling sick or unbalanced. Medication and special eyeglasses are the common treatments for this issue.
MY VISION JOURNEY
As I alluded to earlier, I started out my MS journey with Optic Neuritis, this is what first prompted me to head to the doctor. After several weeks of blurry vision in my left eye, I figured I should get it checked out. A few eye exams, some MRI’s, and a spinal tap later, I had an MS diagnosis. However, I never got direct treatment for the Optic Neuritis. Once we finally figured out what it was, it had been about a month since it began, a bit late to start IV steroids, so said the doc. So I just let it run it’s course, which ended up being fine. I don’t remember how long I dealt with the symptoms of it for, I just know it eventually went away. Now, when I get overheated, my eyesight starts to fade, and when it is low light, I have trouble seeing. But overall, I have my vision back.
Regardless of the vision issue that you may be experiencing, there are treatments available and a positive prognosis ahead. The vast majority of individuals will regain their vision, it may just take some time. But that seems to be the case with everything else in the MS world, right? I feel a new saying coming on.. “Time heals all…relapses?”
As always, let me know your thoughts in the comments! I love hearing from you!
And sign up here—> bit.ly/LissMS to get the latest and greatest about the LissMS Community!
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:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
:: first, comment WAITLIST below to be notified when my new Eating for MS Guide is available!::
When I was first diagnosed with MS I didn’t even think to ask if anything else besides medication would help me.
It didn’t even occur to me that changing my diet or managing stress would also play a part in my disease.
It took a few years, several relapses and failed medications for my BOYFRIEND (now hubby) to ask my neurologist if any diet would help.
And even then, my neuros answer was 🤷🏻♂️.
If you also haven’t considered it, let me be the first to tell you:
✨IT’S ABSOLUTELY POSSIBLE✨
to decrease your symptoms and influence your long term prognosis by implementing lifestyle changes.
What we eat
How we move
How we manage stress
Our toxin burden
Our hydration status
Etc etc etc
all go a long way in helping us MSers live better with MS.
I lived this transformation; from totally exhausted and unable to get off the couch to hiking mountains or playing golf,
I KNOW it’s possible for you, too.
I’m in the final stages of putting together a comprehensive resource on Eating for MS, comment WAITLIST and I’ll let you know when it’s ready!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
This is one of the most impactful shifts for my clients, to totally reframe their idea of consistency.
Because at one point perfectionism took over and told them the lie that only perfection = consistent.
This shift clears the way for action.
Action that allows for slow change to take place, that changes your life.
Change that allows for your body to start to repair.
Repair that allows for less MS impact on your day.
If you’re ready to change your life but in a way that fits into your life, DM me CHANGE and we’ll chat!!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
I’ve seen this trend with women under 35 and over 35.. so let’s see if we can adapt this for others living with MS!
Those of you who are living with MS for just a few years ask a question and those of us who have been living with it for many years will answer!
Who knows, this may bomb, but the idea is fun!!
Ask away!
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Last week I wanted 0 to do with working out.
I love working out,
I love being able to lift heavy things and feel strong.
But last week?
Nah, I was all set.
However.. I have some goals and abilities I want to maintain.
Strength training is one way of the consistent ways I help myself to feel good despite living with MS.
So I made sure that there wasn’t a reason I didn’t want to workout besides my inner toddler, and lo and behold- there wasn’t.
So off I went.
I gave myself permission to go lighter and slower, which helped me be successful in doing it at all.
I often find that when I stop strength training for a while, everything starts to hurt, so that’s obviously not what I’m going for.
I also have a goal of gaining muscle. Muscle decline happens anyway with age, I don’t need to help it along with not moving.
✨Following through with my daily habits is a form of self care.✨
If you’re done with thinking:
“I know what to do, I just can’t seem to do it”
DM me ACTION and we’ll chat
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
Instead of being a lump on the couch, now I can go hiking up a mountain with my husband
Or walk 8 miles around NYC with my sister
Or do a workout at the gym
Or shower, go shopping and cook dinner all in the same day
This is possible because:
✨Yes, the medication I’m on helps for sure
But truthfully my life has improved so much because of:
✨My daily habits and lifestyle (my morning routine, my diet, my sleep habits, my workouts..)
✨ But what REALLY moved the needle is actively working to have a mindset that allows me to be flexible with myself, to give myself grace when I “mess up” (aka- when I don’t follow through on a habit)
✨This is a mindset that doesn’t require perfection✨
This allows me to be consistent with the habits- like diet changes or movement programs or whatever else I want to do, which then allows me to see progress (aka: my body feeling better)
Which THEN gives me the motivation and desire to keep doing what I’m doing.
✨This is the secret to “success”- right here.✨
Consistent action + giving yourself grace + noticing progress = motivation to keep going.
It’s not quick or sexy, its actually rather boring.
But boring is actually way better!!
If you want a life where you:
Feel good in your body,
Have energy to spend on your friends and family,
Don’t think about what the MS symptom of the day will be..
I help you create that life for yourself in my signature program, Holistically Healing MS.
Today is the last day it’s on FLASH SALE…
Comment MOUNTAIN below and I’ll send you the details!!
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
If you’ve been a client, I’m sure you’ve heard me rant about how society’s expectations for women have set us up for autoimmunity and illness.
We were praised for being quiet, not rocking the boat, keeping the peace, helping others before ourselves, not talking back, etc etc.
But where did this get US? The women behind the behaviors?
Sick, anxious and depressed- that’s where.
Healing MS or any autoimmune disease can’t happen until you put yourself first.
That doesn’t mean all of a sudden become a b*tch and ignore the world.
It means considering yourself as much as you consider others.
One of my clients this week was talking about the boundaries she set in her life and how proud she was of herself.
She was able to manage the uneasiness (aka: terror) of:
potentially letting others down,
being abandoned and
discarded for voicing her needs.
No wonder we’re all sick when even saying our needs outloud is scary!
What allowed her to do that after all these years of staying silent?
Well many things, but one of them is “nervous system regulation” aka: utilizing small exercises that allow your body to “respond appropriately” aka: not entering an anxiety freak out spiral- to daily stressors.
This is the “stress management” you’ve been looking for and what will change your life.
My program Embodied Resilience is your road map to how.
Drop a 🌀🌀 in the comments and I’ll send you details
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
It’s ok if it takes time from learning about something to implementing it into your lifestyle.
There is a lot that needs to happen in our mind and body for us to be ready to change something about our day to day life.
And it’s ok if that process takes longer than you “think it should” or want it too.
You know what *won’t* help you when this happens?
Being mean and judgemental to yourself.
You’re not lazy and nothing is wrong with you, so stop saying that to yourself.
You know what *will* help you when this happens?
Taking action.
Action is the antidote to the fear and overwhelm you’re feeling.
But- in a whole different way than you have been trying.
The key is slow and steady, not sexy or flashy- but this means it’s something better- sustainable.
Sustainable means “able to be maintained or held”- which is the goal for habits right?
Being “perfect” for 2 weeks then “messing up” (missing a day) then feeling like a “failure” for that one day, then being “off the wagon” for 3 months isn’t doing you any good (said with muchhhh ♥️♥️♥️)
We want a Supportive Sustainable Lifestyle aka being able to keep up with your habits and progress overtime (ideally for the rest of your life right? It’s about the journey not the destination)
If you want to create a lifestyle that is supportive to reducing your MS symptoms, so you don’t need to be thinking about being on or off “the wagon” again, my signature program Holistically Healing MS is for you.
And good news, it’s on flash sale this week- and the lowest price it will be ever again.
Comment MSSUCKS below and I’ll send you details
🧡🧡🧡
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
One of the criticisms I see about using lifestyle medicine to help improve MS symptoms is that it means “I think my disease is in my control, totally up to me and therefore my fault”.
The things in our control, are only a piece of the puzzle in how we feel, our MS symptoms and disease progression.
Many more things also go into our health equation:
- Genetics
- Age
- Socioeconomic Status
- Education
- Health care access
- Your community
- Economic stability
I’m not saying that lifestyle medicine doesn’t matter, it does a lot. I’m just saying it’s not the *only* thing that matters.
What are your thoughts on this? I know it’s a highly charged topic for some!
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
Living with MS is hard.
Some days are harder, some easier.
If you’re in a season where it feels hard, I see you.
I believe in you.
🧡🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
The food we eat can have a powerful impact on our MS symptoms and how we feel.
It’s not a magic bullet- because nothing is.
But, there is incredible potential for healing and improvement.
If you’re not quite ready to follow a “diet template”, like The Wahls Protocol or Autoimmune Protocol, that’s ok.
Focus on getting some of these foods on your next trip to the store:
🥗Brightly Colored Fruits & Veggies
🥬Deep Leafy Greens
🍤Seafood & Shellfish
🥜Healthy Fats
🥩Organ Meat
Each of these different types of foods contain antioxidants, vitamins and minerals that help support cellular functions, immune health and even help with myelin formation.
Not eating any of it? That’s ok!
Start with adding a serving or two here and there.
Ideas:
✨Have a salad with dinner
✨Toss some veggies in your breakfast egg scramble
✨Have some olives or nuts as a snack instead of chips
It doesn’t have to be hard or complicated.
There is SO MUCH we can be doing to help improve our MS symptoms & progression with diet & lifestyle interventions.
Each thing you’re doing matters.
It may seem like it’s not worth it sometimes, but I’m here to tell you it is.
Keep going!
🧡🧡
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
In case you needed to hear that today.
You’re not a failure.
You didn’t “fail” at healing.
Having MS is hard- do what’s best for you.
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
This is my challenge to you over the next week.
Take some time and think about this past year.
All you’re proud of, all you’ve accomplished. And if you have some things that don’t bring you joy, be proud of yourself for making it through in one piece and still being here.
Reflection is a great way to cultivate motivation to keep going..
You’re doing amazing.
You’ve done amazing.
Let’s keep going.
🧡❤️🧡
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